Having huge probs with my son and his asthma at the moment. He is currently on his 4th week of being low. We have had numerous attendances to the ward for nebs and are having close follow ups with the Brompton. His appointment last week was a little disheartening as he had a fev1 of 34% and only had a 10% improvement after a neb. He is feeling really down, has missed his 1st 3 GCSE science exams and really can't manage to do much at all. He is taking ridiculous amounts of Ventolin, has been on 40mg of Pred for 3 weeks, on top of an 80mg Triamcinolone (Kenalog) injection. Docs are now wondering whether the steroids have any effect on his asthma and are running out of ideas as to what to try next. He is so fed up with the whole thing at the moment and I don't know what to say to make him feel any better. Thankfully, he doesn't seem to be getting any worse, but surely he should be improving considering the meds he is on.
am sorry that no one seems to have replied to you because a moan like this is quite important and actually I think your moan is very justified.
Sadly there isn't a lot you probably can say to your son to help him feel better. The main thing is just be there for him as a parent. Convince him it don't matter about his exams right now for he can catch up once he is better.
I am just wondering whom you actually talk to outside your family network? It is sometimes good to share things. Could I suggest something personal here and ask ""Do you pray""? The choice is yours and wouldn't necessarly see any obvious change but you may well feel you can offload to God. You don't need amens or anything. Just talk-shout at God if that helps. Have a really good rant at him in your own space.
Whatever you do, you do need to find someone to offload and you are on the right lines by sharing here.
I hope they sort it out for your son soon. It is challenging watching him suffer when you feel so useless. But you are not useless because you are a parent and by being a mum he will gain all the support and love from you and know that everything is alright and that he has to give things time. With your love and patience he will continue and his lowness is no doubt due to his asthma being bad right now. What is his favourite dinner? Try planning a dinner for him that he likes, and that may give him an attempt to smile.?
keep thinking positive.
I know this is really hard but its similar to the advice ginny gave me. Try your best to stay postive - think of positive things. keep saying them to your son - keep reminding him that this is a blip! On the plus side he will be able to redo those GCSEs and may even get better grades as he will be in much better heatlh when he sits them.Some times mind over matter can help with the little things.
hang in there - and keep moaning. its hard to tell you what to do but you have to stay positive to keep your hopes.
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Getting a bit fed-up now....
Fed up and things dont seem to be getting much better...
Fed up and want to moan!!!!
So frustrating - bit of a moan
