Hi

[Hope100]

I'm new here, not sure where to start, I'm so fed up with being in pain! I've got PSA, fibromyalgia, hypermobilty syndrome. And I've just had my other ( left ) carpal tunnel done! I've bee ftn having back ache for a about a year, it's got to the point we're I'm in so much pain I'm 😭! I just don't know where to turn

, I've got pain clinic in April , ( I've waited a year) and not holding much hope! If anyone could advice me on what to do i would very appreciative

it .

[Fristrated]

A good rheumy is a must,u don't state ur age, 1 am 77, and much improved from once a week EMBRIL INJECTIONS, filled out form with Safetynet Corp, qualified for free injections my Rheumtologist did a lot of paperwork too, if u force yourself to walk 20 mins each day and light exercise, 2 Tylenol 3 X a day

You can be a happy again patient. &if u r overweight and do nothing about it🙏🏼🙏🏼U can guarantee an early death from resting too much, easy on pain meds ..ibuprofen will murder your insides slowwwwwly, ( ulcers heartburn, internal bleeding) sure , they help in beginning, Beware, 😡good luck always🙏🏼🙏🏼🙏🏼😊🍀🍀🍷🍷🍷

[Hope100 in reply to Fristrated]

Can not take ibuprofen or anything like it! I'm 46 had pda since middle 20s, tramadol and diazepam are what I take was recently on methotrexate injections and sulfazine

[Heacdwrecked]

Hi HOPE100

I know what its like to be in constant pain. I have arthritis, fibro, and a back injury, I had a knee replacement a year ago and was jubilant for about five seconds because I could walk without a limp and now I have horrific fibro in my knee so Ive a different type of pain.

I had a rotator cuff repair thats in the shoulder region I had two rods and a patch inserted because using my arm was not possible. I bounced back after the knee surgery but unfortunately did not bounce at all after the shoulder surgery. I was on five antibiotics because I developed an infection still have not got full use of my arm the surgery was at the end of January.

I really don't feel the meds work for the pain of fibro. I am on an anti inflammatory and Paracetamol.

I normally don't take anything I use distraction. I do art, meditation, meet up with my friends, listen to music, and read in fact anything I can do for myself that will give me pleasure. I went on a course called Living Well with a Chronic Illness it was run by the Arthritis Society and I learned a lot and started to accept that this is my lot in life before that I was kicking and screaming to get better. There will be some days that are better and some days that are worse but acceptance can be difficult. One last thing I do and I find it helps me a lot I attend counselling once a week I feel it is essential as low mood and sometimes pure sadness envelops me so its so good to unburden.

I hope you get something that might help you. Gentle hugs coming your way.

[Hope100 in reply to Heacdwrecked]

Thank you I might look into that group xxx

[Fristrated in reply to Heacdwrecked]

Bless you...wow. U surely do understand.i will look into the group as well. If not in Florida....? The arthritis state😃😃😃😃😃😃😃😃😃😃 gentle hugs right back at you🙅🙅🙅🙅🙅🙅

[Slivia]

Hi Hop e 100. Sorry you are having so much back pain. It is horrible.is it your lumber region? Have you had an MRI yet? When you Get the MRI scan results, you can start doing the correct exercises, but you must get a diagnosis first . I found the back pain clinic at our local hospital v good. They start you off with the right exercises for your condition, then you continue this at home, under their guidance. Hope you improve. Slivia.

[Hope100 in reply to Slivia]

Thank you so much for replying I'm seeing my Rhemy in April at last and will mention to him! I'm just stuck in a rut atm and can not seem to see light at the end of the tunnel! Thanx for all the advice; sometimes just feeling like your not alone really helps x