Wife in Battle with pp : Currently my... - Action on Postpar...

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Wife in Battle with pp

Thewifewhoshome profile image
58 Replies

Currently my wife is in battle with this PP and ina mental healthcare facility she is struggling speaking and isolating herself from everyone including drs and nurses she is very confused about the ability to to any certain task and delusional . They have just started her on a treatment of resperidol she has refused meds once but is taking it again now . I guess I'm just trying to figure out what else if anything to suggest or do for my wife while going thru this process out side of prayer and waiting and anything I can currently do for my kids and self in this whole situation . My wife has never been treated for any depression and had our 1st 2 children with no problem mental or physical at all. We are both believers in Christ and ive never expected to battle anything like this at all . our newest child Is perfectly healthy and no complication in pregnancy at all. More then anything I guess I'm just venting and needed to write this out to any other husband who may be going thru this also.

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Jenny_at_APP profile image
Jenny_at_APPPartner

Hello Wifeinbattle

I’m sorry to hear your wife is currently suffering from PP. I’m glad you’ve found the forum where you’ll find support and shared experience.

I had PP after the birth of my first child in 2012, no history of any mental illness prior to that. It’s a shock to say the least, and feels so unfair I know.

Are you in the UK? Is your wife able to have your baby with her or are you looking after all three children? I hope you have support around you? I was in a Mother and Baby Unit with our son and my husband travelled every day to visit us. I know it was so hard for him and he didn’t have other children to look after and worry about. Are the children able to visit your wife too or is she too poorly at the moment?

I don’t know if you’ve seen APP’s insider guide for partners - app-network.org/what-is-pp/... - I’m sure you’ll find helpful information in there when you have the headspace to have a look through.

For me, when I was acutely psychotic I wouldn’t even look at my husband - I didn’t believe he was real. He then became the one person I trusted and I’d wait for his visits every day and barely speak to anyone else. I’m sure he was terrified and confused but to me he was calm and constant and represented love and reassurance. Just being there for your wife is enough for now, reassure her that she’ll be ok. Hopefully her care team are keeping you well informed too, and making sure you understand what’s going on.

Your wife will get better with the right care and treatment, and hopefully once she starts responding to medication you’ll see progress. Maybe take her some familiar things from home, photos and anything she might find a comfort, her own pillow or blanket perhaps?

Look after yourself too, I’m sure it’s a huge strain and worry and I do hope you have support - mum and baby tend to be the focus but partners need support too!

Take care and I hope your wife starts to get better soon, it can be a long process but she will get better.

Best wishes,

Jenny

Thewifewhoshome profile image
Thewifewhoshome in reply to Jenny_at_APP

I actually live in Texas USA she is not allowed to see the children yet as she was a danger to herself amd the new baby. My Mom and sister have been tremendous help with the kids so I can still get some work done as I am self Employed . She has been in the mental hospital for 5 days now and only taken her med 2 times. I only get to visit 3 days a week as of today will be the first visit. I will bring something from home to see if it may help spark a memory and keep her motivated to continue to take her medicine. Thank you for your response I will keep posted on her update. I'm keeping the Faith that she will be healed by Gods Mercy !

Jimmy

Lilybeth profile image
LilybethVolunteer in reply to Thewifewhoshome

Hi Wifeinbattle Jimmy

I'm so sorry your wife is very unwell at the moment. For many of us PP strikes out of the blue, so it is such a shock and very hard to understand at first. I had PP many years ago and was sectioned to general psychiatric care for my own safety, without my sons.

I hope your visit goes well today and your wife will be encouraged to take her medication to keep her stable. I think perhaps at this early stage she will be very confused and worried about what has happened. Hopefully the link given by Jenny to the Insider Guides might help you to reassure your wife that she will eventually recover but at the moment it must be a lot to come to terms with.

I wonder, did you find the forum via Postpartum Support International at postpartum.net/? On their page it is possible to find support local to you, if needed. Under 'Getting Help' you can click on "Postpartum Psychosis Help" go to "Find Local Support and Help" and there is a map of the US and Texas is in the menu. Just a thought for you but you are always very welcome here. It's very good that you have family support at such a worrying time. Please be reassured that with good medical care and support your wife will be well again. Take good care of yourself too.

Jenny_at_APP profile image
Jenny_at_APPPartner in reply to Thewifewhoshome

Hi Jimmy

Thank you for the update. That’s hard, only being able to visit 3 days a week and your wife being apart from the children, but it’s good that she’s safe and being cared for, one step at a time.

My sister lives in the US and also spent some time in a psychiatric hospital after their third child (no issues after the first two), I know the set up is much different there to the UK. She too made a full recovery, and there was no damage to any of her relationships with her children if that’s a concern.

I’m glad to hear you have good support from your mum and sister, that’s great and I’m sure keeping some semblance of routine at home will be good for everyone.

It’s very early days for your wife and yes encouragement to take her medication is really important. Hopefully as she becomes more responsive it’ll start to get easier - I was incredibly paranoid and confused, and remember being so suspicious of the pills I kept being told it was so important I take...

Take good care and thank you for updating.

Jenny

Freedom200 profile image
Freedom200 in reply to Jenny_at_APP

Jimmy

I had my first postpartum psychosis with my first born son. It the scariest time in my whole entire existence. I dealt with paranoia, insomnia and so much anxiety of being a first-time mother. I felt so overwhelmed that I could not even breathe. When I saw my husband I could not really recognize him emotionally. When I saw him I almost felt like a false version of my husband. Like an imposter that looked like my husband. He was also stressed with having a newborn child. I saw a lot of anger and frustration that I had never really seen before have our son. I started going inward thinking that I was in a false reality and this was not really my life. I could not trust anyone that was close to me. I had to just protect my baby. I thought I had to do everything in my power to protect him from my husband from my mom from sister the paranoia set strong. I was hospitalized for about 10 days unable to visit with my son. Once I actually had full night's rest my mind became more clear. I am here to tell you that even in the midst of the chaos of your wife's health. Hold on to the hope of Jesus Christ. I am here standing three years later still trying process what exactly happened to me in those first few month of my sons life. But this experience has made me stronger. I cling on to the verse 2 Corinthians 12:9 ““My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. I don't have to have all the answers. All I needed during that time was Christ was with me through it all. He got me through the worst time of my life. Your wife right now she may feel shame guilt and isolation because of her mental state. Just continue to pray that she feels the love of her Father in the mist of her pain. After I got check out of the hospital I spoke with many counselors but the only Counselor that could truly help me was Jesus he completely Set Me FREE. He has continued to set me free from all of the shame, Anger, Frustration and lies that enemy has placed over my life. I know he will do the same for your wife. It takes time to get to this point. I refuse to take any medication after leaving that hospital I did not want to be on medication for the rest of my life. I ran to Jesus for my healing and he healed me completely.

Thewifewhoshome profile image
Thewifewhoshome in reply to Jenny_at_APP

So we are 4 days into consistant medication and she still has a blank faced stare. She is having trouble remembering things she told me on the phone and has a hard time just talking in person and on the phone. I know that with paitence we will see some more progress. My kids are doing we'll amd baby is growing like crazy. I am trusting in the Lord on this, knowing his timing that all will be well . It is hard but I know we will get thru this

Freedom200 profile image
Freedom200 in reply to Thewifewhoshome

In the future when your wife is wanting to process all that happened to her a great resource is counseling with betterbeginningsfl.com/

Kerri_123 profile image
Kerri_123

Hey there, I completely understand what your going through it's horrendous, and I'm not a husband or in your shoes but I was in your wife's situation and can explain what it's kind of like for her. I was also the same I had two healthy boys absolutely fine and when I had my 3rd which was my daughter 3 years ago I became very unwell and got sectioned.. For an attempted suicide because I had horrible thoughts and heard voices and was seeing things I was dilouaional paranoid and didn't trust no body. I was scared. It was the worst experience of my life you get completely lost, after a week they decided it was pregnancy related and called postpartum psycosis so I got moved to a mother and baby unit with my daughter and closely monitored I was there about 8 weeks until I could come home xx

Simon_at_APP profile image
Simon_at_APPAPP

Hi Jimmy,

Sorry to hear your wife and yourself are having to go through pp, it is a terrifying illness.

My wife had pp with our first child, she'd not had any previous mental health illnesses, so was completely out of the blue. She also refused to take medication, in fact, at some points actively chucked it away! It was the steepest learning curve I've ever had. She spent a total of 12 weeks in an MBU but she did get better, it took time, especially to build her confidence after those initial weeks in the MBU.

I used to visit my wife in a mother and baby unit, just listening to her, when she wanted to talk, initially that wasn't that often but she did tell me, once she'd recovered, that she would wait for me to return, as I (plus her brother) were the only ones that she trusted; just being there to reassure her. It can be hugely frustrating at times and I found myself screaming to myself in the car on one of the days.

Hopefully, you have good family support around you, who can look after your children and give you some time as well.

With care and best wishes

Thewifewhoshome profile image
Thewifewhoshome in reply to Simon_at_APP

When she was in the early stages was she ok for about the first 10 to 20 minutes and then go into a stare like mode and just nod yes or no to questions ? It is very hard to watch her not talk or be able to do anything for herself like just brush her teeth and take showers while in the care of the mental ward.

Simon_at_APP profile image
Simon_at_APPAPP in reply to Thewifewhoshome

Many different stages I would say from our experience, ghost like staring at the wall, not looking at me or any sign of interaction, my wife wouldn't acknowledge anything.

The MBU was our life saver, allowing time for her to get treatment and support but also having our baby near to her, but there were days that she just couldn't care for him at all.

I'd visit and there were times when very little was said at all, other times when she couldn't remember that we were married.

Eventually though and once the meds were sorted and starting to work, we slowly saw better days mixed in with the bad ones, a very up and down path to recovery though.

Sally_at_APP profile image
Sally_at_APPAdministrator

Hi Wifeinbattle,

I just wanted to say I am so sorry you and your family are going through this at the moment, it must be a very worrying and scary time for you, but it sounds like you are doing the right things and reaching out to people. You have had some lovely replies on here and I do hope they will bring you some comfort at this time.

I too had postpartum psychosis in 2015. It was a complete shock, with no history of previous mental illness. Our world was turned upside down and it was a very scary and traumatic time. However, with the right treatment and support, I have recovered. I say this to give you hope and to keep it in mind through all the hard times, that your wife will get better with the right treatment and support.

It must be so hard for you to see your wife like this at the moment. I remember my husband found it very upsetting to see his once confident and happy wife in a psychiatric hospital, so poorly and barely functioning and communicating. I think it would have helped him if someone had told him that I was going to get better.

I think you are doing an amazing thing already by being there for her, looking after your children and reaching out. Just being there and listening to your wife will help her, but keep in mind that some days it will be hard for her to concentrate, or function. For me, it felt like the brain had completely stopped working, probably due to the illness, but also the medication. I found it so difficult to think, talk, concentrate, and think about self-care. It was like my brain and body had slowed down and nothing made sense. I also had real problems with my memory and there would be whole conversations and things that I just couldn't remember. Even things like who the prime minister was. This was really scary at the time and I would spend hours with my husband trying to work things out. This got better with time though.

I also remember not trusting anyone who tried to give me medication. This was all part of the illness and I just thought everyone was conspiring to poison me. I used to wait for my husband too and tell him all the things I thought the nurses and staff had been trying to do to me. It must have been so hard for him, but it was because I trusted him. Sometimes I found it hard and I thought he looked quite stranger like and sometimes I thought he was 'in' on the conspiracy too, but deep down I knew that he wanted me to get better and that he was trying to help me.

I am thinking of you at this time and hoping you can take some comfort in the posts.

Take care of yourself,

Sally

Thewifewhoshome profile image
Thewifewhoshome

So an update on my wife she is still in mental hospital and is now being givin fluphenizine oral and by injection she seem to be more active like actually going to lunch and dinner in the ward . Iahe trued to reach her for 3 days now on the phone and she has said no to my calls until this evening. She kept saying something about she was tired of seeing all the colors and wish I would stop forcing her to see colors . She seemed very irrated and did not really want to talk all she kept saying is she doesnt want to come home becauee we are changing on her to much and forcing her to see colors . I hope this is part of the healing process . I dont get this at all . I am glad I get to vist tomorrow I hope she will be doing better . This is a very hard thing to endure fortunately my kids are being really good thru this and my mom and sistrr are helping a ton with the new baby so I can still work to keep the lights on. I know that God is in the this and that his healing is taking place .

NanaJudith_APP_Vol profile image
NanaJudith_APP_VolVolunteer in reply to Thewifewhoshome

Dear Wifeinbattle,

I am so sorry that your wife and whole family are suffering with the devastating illness of Postpartum Psychosis. I am glad that in some respects, you think that there is some improvement and hope that when next you see her that there will be even more. Recovery can be so up and down but with the medics and your support she will get better, as did my daughter.

Your wife is fortunate to have such a supportive husband and family.

Best wishes

Judith

Lilybeth profile image
LilybethVolunteer

Hello WifeinBattle

I'm so sorry this is hard for you and must be heartbreaking. Please know that your wife must be very confused trying to make sense of what has happened and at times will say things which might be hurtful and out of character. It is very difficult when everything seems so real and frightening at the time.

I think your wife feels secure in the hospital and probably doesn't feel strong enough yet to leave. This is how it was for me ....... it was a safe place although I didn't have my son with me as there were no facilities in the psychiatric hospital years ago. Over time I was allowed home at first for an afternoon, then one night, progressing to a weekend and soon realised that I would rather be home than in hospital.

I hope your wife will be doing better when you visit. It's good that she is more active in the ward and mobile. I know it must seem that PP is far from a temporary illness at the moment but it is very treatable and your wife will eventually recover. I'm glad you have the support of family as it is very hard to come to terms with what's happening in these early stages. Take good care ..... we are all here to listen.

Jenny_at_APP profile image
Jenny_at_APPPartner

Hello Wifeinbattle

Thank you for the update, it’s good to hear your wife is showing some improvements and being a bit more active.

At this stage I think all you can do is take things day by day, it may take some time but your wife will get better.

I hope your visit tomorrow goes ok. I remember my husband’s visits meaning so much to me, but at the same time being so very confused and not really able to communicate, my mind was so muddled. It must be so hard being on the other side of that confusion, but things will start falling back into place eventually.

I had a thing about colours too - I thought I ‘was’ colour at one stage, all very abstract. I think some people also find their senses really heightened, to the point it’s almost too much...

I’m glad you’ve got good support and the kids are doing well.

Take good care and good luck tomorrow.

Jenny

Ellie_at_APP profile image
Ellie_at_APPPartner

Hi Wifeinbattle

I know I haven't written on this thread to you yet, but I have been following it, and I know you have had such good support here.

I'm so sorry to hear that you are going through such an awful time, and that your wife has postpartum psychosis. I had pp in 2011 after the birth of my son.

How did your visit go yesterday, or perhaps it was the day before now? it will take time for your wife to respond to the medication (sometimes it can take a while to find the right combination of medication), and for the psychotic and unusual thoughts (such as her thoughts about colours) to go.

My partner had to travel to see me in hospital too, and would visit every weekend. I remember a time where I refused to speak with him on the phone too, he must have been so worried. I just want to reassure you that this really is all part of the illness and she will come through this. It is the illness talking, and not really her.

My son is nearly 8 years old now, I am recovered, and now work for APP. Your wife really is going to come through it, and even perhaps good things will come of it, for all of you. That has certainly been my experience, though it was so awful and traumatic at the time.

Take care, I hope you have all the support you need too, Ellie

Thewifewhoshome profile image
Thewifewhoshome

Update on my wife is that she is being diagnosed as catatonic and the dr is wanting to pursue electroshock therapy . I am blown away that im even having to say this I dont know what other treatments if any could be done for my wife . her memory has returned somewhat but she is extremely sluggish and very slow to respond to anything . lots of blank staring again after a weekend of what looked to be great progress in her ability to communicate and just really weak muscle wise unable to stand or doing any phyical activity for a given amount of time . I am worried that it is the medicine she is on is causing some of this Idk . I'm so lost right now on what to do . but really at the mercy of practicing Drs that have really a small clue of whats going on with my wife. I apologize for venting on here its just I'm so frustrated and I'm trying to get that peace from God about this but finding it extremely difficult.

Becciandbump profile image
Becciandbump in reply to Thewifewhoshome

I know this is an older thread but how is your wife doing now? Im so sorry she was so poorly xxx I have had Catatonia twice due to my bipolar/medication and I thought I might be able to explain how it feels, I felt totally detached and felt like I was suffering a lot of spasm by body felt quite rigid my jaw felt locked and it felt like all of my movements were still and everything including my movement was slowed. I used to walk around the ward in a total daze. I just wanted to say that although it’s really scary I made a compete full recovery both times with no lasting effects apart from I’m rubbish at yoga as I seem to have tight inner thighs and hips but I’m not sure if I was any good at yoga beforehand! the second time I had it the catatonia made me very unwell and I ended up very critically unwell in intensive care when I left intensive care I had huge blisters on my heels from pressure areas where my rigid body had been pressing into the bed. I wanted to reassure you that I recovered it was a slow process but I got there and have gone back to work and gone on to have two children since and my mental health is a lot lot better than it was back then. Being there for you wife just cuddles and hugs if will mean the world to her and telling her that you still love her will mean the earth to her even if it doesn’t appear she responds I suffered quite a lot of muscle aches afterwards for quite some time so nice things like having a regular massage and warm baths really helped xxxx

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Good to hear from you .... this is the place to come to vent as we are all here to listen and know how difficult it must be for you. The prospect of ECT is a lot to process but perhaps I can reassure you. When I had PP I was unresponsive to medication alone and not communicating. I wasn't able to agree to ECT treatment myself so my husband was left to decide for me.

From my notes, after the first course of ECT in tandem with medication I began to communicate and was back in the room. I am so grateful that I received this treatment as it really saved me from a rapid decline. I'm sorry this is such a weight on your shoulders and your wife is struggling to be well but with good medical care she will recover. We are all here to lean on ... take care.

Ellie_at_APP profile image
Ellie_at_APPPartner

Hi Wifeinbattle

I'm really sorry to hear that your wife isn't responding too well to just medication, and the doctors are suggesting ECT. As Lilybeth says I imagine that is such a lot to process. I think a lot of us have a perception of ECT as a very extreme treatment.

I didn't have ECT myself, but I have heard many stories of women who had postpartum psychosis, who had ECT treatment (either because they weren't responding well enough / recovering quick enough with just medication, and/or like your wife they were in quite a catatonic state) and they swear that the ECT saved their life and made a big difference to their recovery, and they began to really turn a corner after they had it, as Lilybeth says herself. I hope some more people can write to you about their experience of ECT.

You are coping with so much though Wifeinbattle. Stay strong, it may seem that your wife will never get better, but she really will - she is going to come through this, this really is temporary, and you will have the family life you hoped for.

Thinking of you, take care,

Ellie X

Hannah_at_APP profile image
Hannah_at_APPAdministrator

Hi Wifeinbattle,

Your recent update could have been written by my husband as it so well describes what happened when I had PP, so I did have a course of ECT too. I know it's a scary thought but I believe that it in fact was very helpful for me. Medication wasn't working, or at least quickly enough, and I was becoming dangerously ill (physically as well as mentally). The ECT did really help and after the initial sessions whilst I was under a section, I agreed to continue the rest of the course of about 12, as I was so scared of what had happened and that I had "lost" a few weeks completely that I didn't want to go back there. Continuing medication alongside treatment (and also after it) was then the key to my ongoing treatment and eventual recovery.

I hope this gives you some reassurance; whilst some of my memory loss of those early days may be due to the ECT, I think it's also linked to the trauma of the PP itself and to be honest, there not being anything that I need to remember from those awful days and weeks. Of course, my husband does remember it and I will be forever grateful for all the love and support he gave me, as I am sure you are doing for your wife. It might not feel like it, but you are doing an amazing thing, and venting your feelings here, or however is helpful to you, is really important for you too.

Here are a couple of links about ECT, if helpful for you and others reading here (I remember being given a leaflet, which hopefully you have had from the Drs if they are considering this for your wife too):

app-network.org/wp-content/... (p7 of the APP Partners Guide talks about ECT)

The Royal College of Psychiatrists page is currently being updated but is here: rcpsych.ac.uk/mental-health...

rethink.org/advice-and-info...

I hope that things are improving for your wife. Of course it is a really personal choice, as with a lot of treatments, but I hope it's reassuring to know that although it sounds so scary, the Drs will have tried lots of other things before considering it, and also that it can be helpful for people too. Thinking of you and wishing you all the very best, xx

Thewifewhoshome profile image
Thewifewhoshome

So update on my wife is she is almost all back mentally and without the use of ect they used cojentin to bring her out of the catatonic state she has been moved to a different ward . more relaxed environment to recover the rest of the week. She is only on one drug right now and that is the cojentin that they will be stepping her down off of The Dr is hopeful to be able to release her by Friday to come home . I had a really great talk with my wife on the phone last night and she sounds great . Only thing is she has a horrible rash all over body and blister in her mouth some reaction to one of the drugs she was on. I pray that the Benadryl will get rid of the rash today . I can barley contain myself has this has been so exciting to speak with MY Wife again and know her voice. God is Good and he is worthy to be Praised . Thank you Jesus !!

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

So good to hear that your wife is battling her way through the awful time she has been going through. It must have been a relief to talk to her on the phone and hear the voice you have missed so much. I hope the rash and ulcer clears up and she will be home with you and your family soon to continue her recovery. Take care.

Maria_at_APP profile image
Maria_at_APPModerator

Hello Wifeinbattle,

I am so chuffed for you, quite the breakthrough, your wife is coming through bit by bit, she is a very brave woman. I had ppp back in October last year and it was extremely hard on my husband to see me sink so low, at some point he couldn't see how I could go back to my old self - but that I did, as did the other mothers on this forum. Hope that the rash has cleared up and that all is set in place for going home tomorrow - how exciting. I wish you all the best in your recovery journey, it is a long one, but there is light at the end of the tunnel. And congratulations on the birth of your baby, too!

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

I hope the doctor felt your wife was well enough to return home to your care on Friday. It took me a while to settle when I went home for good, so your wife may or may not need time to adjust. Take care ..... thinking of you and your family.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

We are home she is having trouble getting comfortable with all the soreness in her body . From the sideaffects of the meds that made her sleep so much and also the pschy meds causing her cataonia . I'm hopeful that within a month of the meds getting out of her system she will be back to her normal self Thank you for the continued support. I havent even gotten to share this forum with her yet as her attention is kind of short .

Hazello profile image
HazelloVolunteer in reply to Thewifewhoshome

Hi wifeinbattle,

I've not spoken to you on this thread yet but just wanted to say how glad i am to hear that there has been some improvement in your wife and she's come home.

I had PP in 2016 and was in hospital for a month.

I'm a believer too and i have to say there were times i felt so lost and confused but i had one song that really spoke to me by a Scottish Christian singer called Steph Macleod "my father". The lyrics really comforted me.

I personally wouldn't have managed on to this forum when i first got home from hospital as i still felt like i needed to focus on the day to day but when i started to recover a bit more i started to question what had happened and feel quite shaken in my identity. It was really helpful to me to "meet" other women who'd had a similar experience as i felt quite alone meeting other mums at times.

Hazello

Lilybeth profile image
LilybethVolunteer in reply to Thewifewhoshome

Hello Wifeinbattle

I'm sure you're over the moon that your wife is home. I'm sorry she has soreness in her body due to medication side effects. I think with your good care and support she will slowly recover as she needs time to come to terms with all that has happened. She has shown a lot of courage to come this far. I think I had a short attention span when I first came home and my husband and family took things slowly so that I wouldn't feel overwhelmed. We are all here if you need us ...... take care.

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

I hope your wife is settling in at home and the soreness in her body is fading. Hopefully her recovery is being monitored and she is doing well with all your good care and support. Thinking of you and your family.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

We are in a routine for the most part . she is sufferring from akathisia (an inability to remain still) . which is a direct side affect of the fluphenozine antipsychotic . so its been rough on her she cant stay comfortable but she is improving . from my research it takes a month or longer to clear out of her system when given 1 injection and she was given 2 in 1 week. I really think that she was over medicated but with Gods help we are getting though this! My mom and sister have been fantastic support through all this helping with her and baby and My other 2 kids so I may still work and make the bills . Thank you for all the continued support!

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

It's good that you are in a routine most of the time but I'm so sorry to hear that your wife is suffering from such an awful side effect of the antipsychotic. It must be so tiring for her and upsetting for you to watch but I hope she continues to improve. I'm glad you are able to have family support as it is a lot to come to terms with at home and considering work to make ends meet. You are more than welcome to our support ... we are all here for you. Take care.

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

I hope your wife is slowly recovering from the awful side effects of recent medication and that she is more comfortable now as time goes on. It really has been a battle for her but with your good care and family support she will be well eventually. I hope you are finding time to rest yourself and are not too pressured supporting your wife and meeting the bills. Take care.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

Unfortunately I had to bring my wife to the medical hospital 1 week ago as she had stopped eating and drinking fluid and stopped moving she is now going thru parkinsonism and is javing a horrible time . she has been on a feeding tube and been thru all sorts of medical test that showed up normal ot negative. The nerologists believes that her brain was completely depleted of dopamine from the antipschychotics the head hospital gave her, and he is giving her a medicine that is supposed to help repair her brains dopemines levels . My wife is mentally all there but she is bed ridden right now. It has been absolutely awful but I know and belive that this storm we are going thru will end in God's good timing . Thank you sooo much for your continued support!!

Ellie_at_APP profile image
Ellie_at_APPPartner

Hi wifeinbattle

I’m so sorry to hear that your wife is so unwell, that sounds awful , you have all been through so much.

It sounds like the doctors are working out what has happened. I know that some people do have bad reactions to some medication.

As you say yourself you really are all going to come through this.

You are all in my thoughts, take care and I hope you have all the support you need around you,

Ellie x

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Thank you so much for taking time to reply. I'm so sorry your wife is going through such a horrible time. Hopefully the medication she is being given now will restore her functioning.

It must be very distressing for you to see your wife struggling even though she is mentally all there. Take very good care of yourself .... we are all thinking of you and your family.

NanaJudith_APP_Vol profile image
NanaJudith_APP_VolVolunteer

Dear Wifeinbattle,

I am so sorry that your wife is so unwell and suffering so much. I just wanted to send sympathy and good wishes to you. It is so distressing to watch someone you love suffer, I hope that your wife resonds to treatment soon and that you too have the support you need.

Thinking of you.

Best wishes to you and family.

Judith

Pikorua profile image
PikoruaVolunteer

Hello Wifeinbattle

Yes, me too. I am so sorry for your wife's suffering.

It is such a trauma for everybody involved, who shares the love with you and your wife.

You will grow strong and stronger.

We are all thinking of you.

x

Maria_at_APP profile image
Maria_at_APPModerator

Dear Wifeinbattle, I am sorry your wife is going through such an awful experience. I am joining the others in sending my wishes for her improvement with the change in medication. We are all thinking of you both, you are a great husband I know it must not be easy, we are all here for you.

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

I've been thinking about you and Just wondered how your wife is at such a distressing time? I hope she is showing a slight improvement with the medicine she is now being given. Hopefully your faith is keeping you strong at such a difficult time. We are all here to listen if it helps you. Sending all my good wishes to you, your wife and family. Take care.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

Thank you for thinking of us . She is no longer in intensive care and is on a liquid diet for now still not moving a whole lot bit little improvements everyday . God is Good and I know we will have her 100% soon

Lilybeth profile image
LilybethVolunteer

Hi Wifeinbattle

So happy for you ....... such a big step forward that your wife is no longer in intensive care :) I'm sure it is a concern that movement is restricted but how good it must be to see little improvements everyday. Your wife is battling very hard, so that with your loving support and faith she will be well again. Take good care of yourself for now.

Lilybeth profile image
LilybethVolunteer

Hi Wifeinbattle

I hope your wife continues to have little improvements everyday. Thinking of you ...... best wishes to you and your family.

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Thinking of you and hope your wife is slowly improving. Although you have very good support around you with your mom and sister helping, I hope you are coping with seeing your wife battling such an awful illness and your faith is keeping you strong. Take care.

Strawberry55 profile image
Strawberry55

Hi,

Well done for reaching out. It is such a scary ecperience, for us going through it and loved ones supporting. Each persons experience will differ slightly.

I too would not take my medocation whilst in a mother and baby unit. Before getting ill I was against taking meds, and whilst ill I felt no one was explaining anything to me. No one ever actually told me my diagnosis for a long time and never once really explained why I needed the meds. If I were to offer any advice it would be to encourage your wife to take them and explain how the medication will really help to remove the acute physchosis symptoms. reassure her it will get better and there is no shame in taking the medicine.

I wish you all the best

Pikorua profile image
PikoruaVolunteer

Hello,

just to let you know we are here to listen. It is such a tough time for you and your loved ones...wishing your wife strengths. Sending you much love and kindness.

x

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Just wondering how your wife is coping with her daily challenges. I hope your faith is keeping you strong through such a difficult time. Take care .... we are all thinking of you and your family.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

Back in abilene for a quick visit with my wife today and tomorrow we enjoyed a picnic outside today and Jackie is doing great she is improving day by day better and better. She still needs prayer for her emotional tole that is taking over from time to time . The meds she was on really supressed alot of her feelings and emotion . She is down to one med now and things are coming in waves emotionally and she doesnt see the improvement . But everyone around including me see a ton of it. So thank you everyone for the continued support and prayers . I cannot express or explain everything the Lord has done so far not just with her but for her family outside of us God is soooo faithful Thank you Jesus! He has certainly done a work in me and I know the people around us as well!

Lilybeth profile image
LilybethVolunteer

Hi Wifeinbattle

Thank you so much for taking time to update. It's lovely to hear that you enjoyed a picnic outside with your wife and she is improving day by day. So happy for you and your family. Take good care of yourself too.

Pikorua profile image
PikoruaVolunteer

Hello Wifeinbattle,

so pleased that your wife is improving gradually. Thank you so much for your up-date!

Look after yourself, too.

x

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

I'm sure the quick visit to your wife last week in such a lovely setting meant a lot to her and must have reassured you that she is battling to be well again. I'm so happy that thoughts and prayers are working and hope your wife continues to slowly recover. With best wishes to your family ..... take good care of yourself too.

Thewifewhoshome profile image
Thewifewhoshome in reply to Lilybeth

Sorry I haven't gotten back on here update on my wife praise God she's back home she is in recovery physical therapy mentally she's stable with no medicines. The only medicine she's taking right now is for the anti Parkinson's from the drug-induced parkinsonism which we are slowly tapering off she's regaining more strength in her body and walking as much as she can although she's Tippy Toe walking but improving by strengthening those muscles to get them back Heel To Toe. Thank you so much for all the continued support on here it has been a tremendous blessing you have all been great we will continue to give updates.

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Please don't worry about getting back to us as we all know how busy you must be caring for your wife and family, as well as routine. So happy to hear your wife is home and I'm sure she is relieved too. I remember how good it felt to be home after I had been in hospital for months into my recovery.

I hope your wife continues to improve as she regains her strength. It's good that your faith is keeping you strong .... you are all in my thoughts and prayers. Take very good care of yourself.

Pikorua profile image
PikoruaVolunteer

Hello,

Take good care of yourself. We are always happy to listen, whenever you like...no obligation in having to reply.

Sending your wife and you positive vibes and strengths.

Love and kindness to you both and your family.

x

Lilybeth profile image
LilybethVolunteer

Hello Wifeinbattle

Thinking of you and your family. I hope your wife is continuing to regain strength in her body and you are comforted by your faith. Take good care of yourself.

Lilybeth profile image
LilybethVolunteer

Hello Thewifewhoshome

No need to reply as you must be very busy caring for your wife and family. Just letting you know we are all thinking and hoping for you, your wife and family. Take good care.

Lilybeth profile image
LilybethVolunteer

Hello Thewifewhoshome

I'm sorry I hadn't realised you changed your screen name a few months ago.

I hope you have been receiving our support and good wishes across the miles and your wife is slowly improving. Take care.

Lilybeth profile image
LilybethVolunteer

Hello Thewifewhoshome

Thinking of you and hope your wife is now feeling much better at home, comforted by the love of family. Stay safe in Texas ... take care.

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