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Advice needed for 2nd pregnancy, undiagnosed psychosis?

Rach1012 profile image
7 Replies

Hi everyone, I have never done anything like this before so I apologise if I’m posting somewhere random but just after a bit of advice really. I have a nearly 4 year old little girl, I had to have a c section due to her being breach for the entire pregnancy. My story is a long one bit in an attempt to cut it as short as possible, I had a relatively healthy happy pregnancy with the exception of the health care professionals who I felt didn’t really offer much support of care and being what you would consider an older first time mum I was given the impression I should rally know what I should be doing. Anyways, aside from that the pregnancy was fine with the exception madam was breach all the way through, they did towards the end try to convince me to try and turn her by way of some health professional manipulating bump etc (not entirely sure what they do) but I got quite upset as I genuinely felt something bad would happen if I was to go through with that procedure, they nagged and nagged and pestered me to go and get this procedure, for over three weeks I was a bag of nerves over this as I really didn’t want that to happen, on the morning of the appointment I called up the hospital and burst in to tears telling them I won’t be coming because I didn’t want to do it. I was given a huff and “you are being very silly” but it’s your choice. So with that I was booked for a c section a few weeks later.

On the morning of the c section i was seen by the surgeon who did a last scan to see if she moved (she didn’t) and was wheeled down for the section. The procedure wasn’t as bad as I imagined and i was pretty relaxed throughout.

Fast forward to the ward, it was noisy bright, busy and all I wanted to do was sleep, by this point I had been awake for around 28hours.

After family visits, doctors and nurses, people wanting to photograph the baby etc I managed to get a minute or two shut eye I literally mean five minutes. This went on throughout the night, the nursss eventually came in and shouted at me to hush my baby as she was disturbing the rest of the baby’s. I felt absolutely useless as a mother I could t stop her crying I couldn’t do anything, I couldn’t even lie down as the pain from the c section hours earlier was unbearable, I then after sobbing away to myself with my baby for a few hours fell asleep with her on my chest, a nurse came and abruptly woke me shaking me saying I can’t fall asleep with my baby that way because I could kill her, again I felt useless, I sobbed my eyes out again and the nurse just pulled my curtain over and went away. I then managed to fall asleep for a further few minutes and was shaken awake again by two nurses saying I had to sign some forms, they were asking me how I would cope with my baby at home because of my epilepsy , what was my plan if i was to have a seizure, who was going to help out etc , I genuinely couldn’t hear what they were saying as I was so exhausted all I wanted to do was sleep. I think I said I will talk to them in the morning but I know I said please let me sleep.

A few hours after I was told I needed to get a shower, so I hobbled to the bathroom with my catheter still in and then “whack” a nurse came from behind and ragged my catheter out, I genuinely never felt pain like it, it was horrific! I was so mad! I shouted at her and said couldn’t you have bloody warned me! She said well it needed to come out lass! I felt like I was a piece of meat.

My partner then came up at tea time the next day, (I had been in hospital for just over 30ish hours at this point) he looked white as a sheet, asking what on Earth was up with me, I asked him what he was taking about and apparently the nurses called him to say I was screaming to go home and was getting very distressed?? I was gobsmacked, but seeing the opportunity to get to a familiar place where I was not treat like a prisoner of bloody war, I took it and got ready to go.

The two weeks after this I was extremely ill, I would not close my eyes because I genuinely believed if I did my daughter would stop breathing, if I slept she would die. I wouldn’t ask for help with anything because I believed I had to be a perfect mum so I would go mad if someone offered to help tidy the house, make her bottles etc, my poor partner was begging me to get help because I was convinced he was trying to get me locked up and he was going to take my baby away from me, the worst was yet to come after three or four days of no sleep and massthen be highs of wizzing around the supermarket 42 hours after having a section, I hit my all time low. I started to hear voices asking for my baby to be given to them, the voices would come and when I argued against them as I knew I couldn’t give my daughter to them, I would hear banging in the house, the curtains would move, the house felt like it shook and the voices would get louder and louder, but in my head at the time I felt I had to shout louder to block them out and protect my baby, I then suggested to my partner to phone a priest as I wasn’t prepared to let “them” take my daughter. At the time I felt a massive urgency to get “them” out of my house and away from my baby, and didn’t question the normality of what I was actually saying was happening. My partner was calling my mother and no one anywhere offered any help, all I knew is if I told someone else then they would take my baby away from me and “they” would get to her. I was ebxtremoy aggressive towards my partner and stated if he said anything I would run away with our baby and he would never see us again, obviously fearful of this and him knowing I was extremely unwell her agreed. So the worst mistake I ever made in my life was sitting there like some normal got it together mum in front of the health visitor nodding in all the right places ticking all the right boxes, and getting my partner to do the same, when inside I was extremely ill and my poor partner in massive need of help and support too.

I received no help whatsoever and that was because I never asked for it.

It took me many years to feel relatively normal, it took the same amount of time to try rebuild our little family, And to get over the guilt of being quite ill for quite a long time, the madness of thoughts of spirits trying to kill my baby was over within weeks but the depression lasted much much longer.

I did start out writing this for some advice on how to avoid getting this again, as we are now going to try for baby number 2 , but after reading it back I now realise that a massive part of this problem has obviously come from the trauma of the care I received as I genuinely feel that I was let down. so if anyone does get to the end of this long post, I just want to say thank you for reading my post and it’s helped me to actually write it down what happened to me some 4 years ago

I would however welcome anyone’s advice on how I go about explaining the above this to the next set of health professionals that will be dealing with me in my second pregnancy as no one anywhere knows what me or my partner went through, and maybe advice on what I should be asking for if it was indeed psychosis I was suffering From.

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Rach1012
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7 Replies
Jocelyn_at_APP profile image
Jocelyn_at_APPPartnerAPP

Hi Rach1012,

It's great you have found the forum. I got to the the end of you post! Well done for being brave enough to "put it out there". I didn't get any help with my episode due to giving birth in Brazil either, so understand where you are coming from.

APP has a great guide of things to consider if you are trying for a second baby. The link can be found here: app-network.org/wp-content/...

As for advice on explaining your experience to your next set of health professionals, I am sure others on the forum, who have gone on to have a second baby, can give you some advice, I have just the one!

I am so glad you have found us and hope you manage to get some insight and advice!

J x

Rach1012 profile image
Rach1012 in reply to Jocelyn_at_APP

Hi J, thank you for your reply it’s much appreciated and the info link you provided is really helpful , I have been speaking with my other half and he seems a lot more settled that I’m now talking about it and being active in seeking advice. So glad I found this group and thank you for your kind words and support. Much love Rachael xx

Theo116 profile image
Theo116

Hi Rach1012

I have read your whole post and I send you the biggest hug ever. I also had a horrific time in hospital and ended up with an emergency c section. I believe sleep was the biggest contributing factor I was I there for 8 nights and was telling everyone I am cracking up. We are considering having another baby and if we do I will be requesting a private room, requesting that I am left alone and not debriefed by every Tom dick and Harry nurse and Dr as this can be done at a later date. like you I was not left alone in hospital. We may also look into private midwives that come into the hospital to look specifically after you this is a service that has to be paid for. We will also request a midwife from the sunshine team as they look after mums who have or who have had mh issues. We did make a formal complaint to our hospital and changes were put in place because of this. Hope this helps x

Rach1012 profile image
Rach1012 in reply to Theo116

Hi Theo116 thank you for your kind words and support, and I shall defo look in to maybe seeking some additional help even if I have to pay for it because as I’m sure you will agree, if you have had a traumatic time and having MH issues that extra support for all involved would be worth every penny I’m sure. I am very much on the same page as you with regards to making sure if we do have number 2 then everyone will know about it in hopes that we get the best possible support and care, I have a lot of respect for our NHS and the docs and nurses but I do believe I was an unlucky one where I was continuously failed, and although I’m not sure if that was a contributing factor of me feeling like I have lost th plot it certainly didn’t help. I’m just glad that I’m now speaking about it and hopefully by talking about some other new mummy’s and families going through the same thing will ask for that help because I just wish I screamed for it at the beginning. Things I’m sure will be different this time because I will make sure I speak about my last pregnancy and experience with the consultants and midwife etc (I also have epilepsy so would have to be under a consultant with number 2 also) and your advice of making sure plans are in place for all involved etc and the info you have kindly offered has really helped loads. Just in openly speaking about it with the replies has made me feel not so alone and that I can ask for that help without running the risk of people think I’m a nut job, thank you once again I really do appreciate it

Much love

Rachael

Theo116 profile image
Theo116

I would also be more practically prepared. I have read some great support ideas.

I would maybe get an au pair they live with you and if only for a few weeks would be a massive support. I am lucky to know people who do this. I would look to organise a freezer full of food, a Gardner and people to take care of as much as possible because my partner just couldn't do it all last time. We have also spoke about not announing the birth immediately and the constant visiting just would not happen. I would put myself first this time. I have been very open about my illness and would set up a WhatsApp group with all my mummy friends so that if I did get ill my mum and husband could call on those people to ensure our little boys life carried on as normally as possible. I know we were so unprepared in so many ways last time but had never even heard of pp.

Jenny_at_APP profile image
Jenny_at_APPPartner

Hi Rach1012

Thank you for sharing your story, I’m so sorry you went through such a horrendous time and were so let down in how you were treated, I’m sure that didn’t encourage you to seek help :(

I had PP after my first child in 2012, no previous history of mental health problems and completely out of the blue. I went on to have a second child in 2016 with no recurrence.

It’s such a hard decision, I agonised over it and my husband just said it was ultimately my decision which I didn’t find helpful but do understand (he said he couldn’t ask me to have another child if I didn’t want to risk it, and similarly wouldn’t refuse to try for another if that’s what I wanted). We used APP’s second opinion service and saw Dr Ian Jones in Cardiff which was extremely helpful - app-network.org/what-is-pp/... He talked through the risks and options and how we might try and reduce the risk of recurrence. He also confirmed my diagnosis. This is something you should be able to access if you’re in the UK, you just need a referral from your GP and there’s no cost to you or your referring NHS trust. I’d highly recommend it if it’s available to you.

For me, I opted to formula feed, had help with night feeds from my husband and mum, and took a low dose of the medication that had helped me when I had PP (I took this after the birth for 6 months). I was well supported and basically planned for the worst then put the plans in a drawer in the knowledge we’d know what to do if PP struck again but in the hope it wouldn’t. Dr Jones wrote to my GP (who was and is wonderful) and copies were shared with my midwife and mental health specialist nurse. I wasn’t referred to the CMHT but saw the MH specialist nurse antenatally and was under consultant care for my pregnancy (but not the birth). I wrote a one pager to go at the front of my maternity notes for when I was in hospital (high risk of PP, request for help with night feeds, request for a side room and not to put any pressure on me to breastfeed etc.) and had an advance decision that my husband was aware of - basically setting out my preferences should I become ill and what worked for me first time.

Fortunately I stayed well and had a good experience of those early weeks that had been so awful with my first.

I hope this helps a bit. Hopefully there’s as much chance that you won’t have a recurrence as there is that you will, but planning and being aware of the risks should put you in a good place to get help and treatment quickly if you did become unwell again, and you wouldn’t suffer as much as you did first time around.

Any questions do just ask.

Good luck and take care.

Best wishes,

Jenny x

Hazello profile image
HazelloVolunteer

I think it's really great that you're planning to be up front about the difficulties you had and hopefully your experience will be more constructive a second time. I found Ian Jones 2nd opinion service very helpful and also from discussions when I was an inpatient feel very reassured that forward planning will minimise the risks.

Hazello

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