Age of diagnosis

[HenryW]

I was diagnosed with AMN at the age of 25 and started having symptoms at 23. Can I ask others here your experience.

[Equinney]

I was diagnosed at 43, started showing early symptoms in my 20’s.

[COwithAMN Administrator AMN EASIER Volunteer]

See the poll healthunlocked.com/amneasie...

[artortega78]

I was diagnosed at 22 with AMN, Addison's disease, and arrested childhood cerebral ALD. My AMN symptoms started when I was 19 and I was having an adrenal crisis when I was 20. I was being misdiagnosed with autism and ADHD when I was a kid. I will turn 26 next month.

[deengo]

I was confirmed and diagnosed when I was 39. I started having symptoms (that u was aware of) at 37

[DennyB]

I'm 63 and was diagnosed at 13 with Addison's disease. I showed my first symptoms of AMN at 48. I already knew that I had AMN as there was a family link to it. Our whole family was tested approx 10 years before this and I tested positive for it. The first symptom I had was leg shakes. I now need 2 canes to walk. I get annoyed with this condition, but one saying I use a lot is that you don't have to look very far to see someone worse off.

[HenryW]

Thanks for the responses.

[Aaron98 in reply to HenryW]

If you're willing to share, may I ask where you are from?

[HenryW in reply to Aaron98]

Hello, I am from the Province of Ontario in Canada.

[Coslet]

Mild symptoms at 28-29. Undiagnosed adrenal crisis at 33. Serious walking/gait issues started the same year. Misdiagnosed for 9 years total till 39. Was even told to see a psychologist because prior to the very long chain fatty acid test no bloodwork could explain my condition so obviously it was in my head. Without an open minded neurologist at Vanderbilt University Medical I might believe it is all in my head by now. One of the most frustrating time of my life.

[mariagno]

Symptoms started at 32, diagnosis at 34, wheelchair 50, and I am 58 today and still going strong an attacking life. You may be limited but there is still a lot of living to do.