Is AMN degenerative disease?: By definition, it... - AMN EASIER

AMN EASIER

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Is AMN degenerative disease?

JasonHarnum profile image
5 Replies

By definition, it fits. However I don’t recall any scientists and researchers defining AMN in as a degenerative disease. Anybody have any thoughts on that? Yes, you too monkeybus

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JasonHarnum profile image
JasonHarnum
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5 Replies
AussieBob profile image
AussieBob

It is a neurodegenerative disorder

monkeybus profile image
monkeybus

I'd say so. All that myelin, all those axons, all the organs attacked by the VLCFA into the bargain.

It's downhill all the way, baby.

I still think it can be slowed with antioxidants and upregulating ABCD2. I took Valproic Acid a year or so back. Seeing my neurologist in April, I'm going to get some more and take it for a year. All scientific-style.

JasonHarnum profile image
JasonHarnum in reply to monkeybus

can always count on you for a positive spin on it :)

csak profile image
csak

Neurodegenerative Diseases by Beart et al:

ALD and AMN are listed in this work as a neurodegenerative disease.

books.google.at/books?id=je...

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I do think AMN can be a progressive, neurological disorder for some in how it affects their lives. I hope that not all are affected by it in a way that their health steadily deteriorates and maybe some only progress very, very slowly. Strictly speaking it is probably neurodegenerative, even if it just progresses in infinitesimally slow steps:

Maybe in some patients the VLCFA‘s (and other stuff?) are not so high throughout their lives and so they can maintain a somewhat or even (?) normal life (even if there is a machine that could detect very small damages); I don’t know, if that is possible, I just hope.

Today is Rare Disease Day

julie_ profile image
julie_

It is degenerative but it does vary from person to person.

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