ALD Connect's Breakout Session for Men with AMN - AMN EASIER

AMN EASIER

1,328 members1,190 posts

ALD Connect's Breakout Session for Men with AMN

bsc78 profile image
3 Replies

Next Monday at 7:00 PM Eastern, ALD Connect is hosting a conference call for Men with AMN as sort of a support/networking-building event. From their Facebook event page:

What are Breakout Sessions? They are conference calls that allow segments of the ALD community to share experiences and lend support to one another. Online discussions are great, but we at ALD Connect think being able to talk to someone who has similar experiences creates deeper connections and a more engaged #adrenoleukodystophy #ALD and #AMN community.

Join the discussion moderated by #ALD and #AMN patient advocate Justin D'Agostino as men talk about important issues they confront with adrenomyeloneuropathy.

Here's the link to the event to register: facebook.com/events/1256042...

Written by
bsc78 profile image
bsc78
To view profiles and participate in discussions please or .
3 Replies
Aaron98 profile image
Aaron98

I would be interested, but I am on the west coast, and only just get out of work at 8:00 pm Eastern time. Maybe one of these events could be scheduled on a Saturday in the future, at a time that would allow men from all around the US and the UK to attend. At any rate, thanks for hosting these conference calls!

bsc78 profile image
bsc78 in reply toAaron98

Thanks for the suggestion Aaron. I'll be sure to pass it on.

AussieBob profile image
AussieBob

And Australia and New Zealand please.

Not what you're looking for?

You may also like...

I saw Ken, Aaron, and Songstream at ALD connect annual meeting today.

How was your experience with the ALD connect annual meeting today? I attended that conference to...
artortega78 profile image

ALD Connect Annual Meeting

For those of you who may be interested, ALD Connect is hosting its annual meeting/patient learning...
bsc78 profile image

Any ALD post BMT men or families here?

My son had a BMT for ALD years ago. I have been trying to find information on the whispers I hear...
quilling profile image

Anyone have the email address for Dr. Florian Eichler?

Dr. Eichler is at the Massachusetts General Hospital and sat in on an AMN session at the ALD...
SongStream profile image

33 with AMN - Introduction

*No, I'm no Britney! Haha I stumbled upon this great community tonight and just wanted to...
KennyInPA profile image

Moderation team

COwithAMN profile image
COwithAMNAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.