Just a quicky: Hello chaps and... - Atrial Fibrillati...

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Just a quicky

Ducky2003 profile image
20 Replies

Hello chaps and chapesses.Hope all is good.

Just wondered, has anyone used Lindens Health and Nutrition supplements?

My thyroid check blood test showed my Vit D had dropped to 34 (usually in the 50s taking Ad Cal) which may explain why I've felt like I've been walking through treacle for the past few weeks and feeling exhausted at times.

I had thought it may be the valve causing problems (yes, still waiting for the surgery) but possibly, its the Vit D drop instead.

Endocrinologist wants me to take Vit D and calcium separately, rather than combined in one tablet, with a higher Vit D dosage.

Seems quite difficult to find calcium without Vit D added but have found some on Lindens.

They have good reviews and British manufacturers.

Any experience anyone?

Thanks in advance.

Ang.

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Ducky2003 profile image
Ducky2003
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20 Replies
Blearyeyed profile image
Blearyeyed

I have and it is a good product range with a reasonable price.I generally require daily Vitamin D and use the BetterYou Vitamin D with K2 spray , which is then topped up to 4000iu with my prescribed Vitamin D.

So you can technically still use the Adcal but then alter the dose of the separate vitamin D spray or oral you use to top up the amount of daily Vitamin D to the amount you require instead if you are happy using Adcal.

Have you had your Vitamin B 12 and Folate tested?

I was eventually diagnosed with both Vitamin B12 and Folate Deficiency Anaemias, and it was my severe B deficiencies that prevented me increasing my Vitamin D beyond insufficient levels despite more than 18 months of high supplementation of all sorts.

It also caused me increased cardiac arrhythmia events, fatigue and pain, and thyroid symptoms.

I think it's worth checking these blood results if you find yourself struggling to improve Vitamin D , unfortunately doctors often neglect researching and testing this link.

I have to have B12 injections now and Folate infusion because of a different root cause for my malabsorption. After proper B supplementation my Vitamin D and Iron both improved very quickly.

This also means that I need to take sublingual and active supplements or sprays to keep my other nutrients in range.

I have to top up my B12 injections and Folate infusion with daily orals.

I and my daughter use Lindens for sublingual tablets for B12, or we use the BetterYou B12 spray.

I also have MTHFR mutation so I need to use active Methylfolate as my Folate option.

Now my iron is in ideal range I still take Solgar Gentle Iron every 2-3 days to maintain it.

Taking your Vitamin D , even if it is an active form absorbed through the mouth, is better after a meal including fat, at the same time as Folate and Vitamin C as this also improves the metabolism of these nutrients and I've found increases the speed that you can increase your level and sustain in long term.

It's such a pain isn't it to get these things finely tuned , take care , Bee

Ducky2003 profile image
Ducky2003 in reply to Blearyeyed

Thanks for the info.She has told me to take 1000iu Vit D for now and 500mg calcium separately, so I shall try that first

I take B12 tablets, prescribed by the GP, as I had very mild B12 deficiency, which last time checked, was ok. 😊

Auriculaire profile image
Auriculaire in reply to Ducky2003

34nmol/l is pretty rock bottom. My vit D was at that level when deficiency was diagnosed and I felt awful. My GP prescribed a loading dose vial of 400,000 iu - this is common practice here in France as it gets the level up fast . It rises in about 10/14 days - the time it takes for the liver to convert the cholecalciferol to calcifediol. The conversion to calcitriol ( the active form of vit D ) then takes place in the kidneys but much quicker - 1/2 days. Unfortunately I used to find that my levels would drop over the next few months as this big dose got used up . The loading dose works best if you then continue with a daily amount - eventually my doctor prescribed daily drops. 1000iu a day will take months to get your levels up into the sufficient range -if it ever does . If you want a quicker result you will probably need to take more. Taking magnesium help with absorption.

Teresa156 profile image
Teresa156 in reply to Ducky2003

Hi Ducky2003,

I agree with Auriculaire,

Your vitamin D levels will take many months to rise over 75 (which is the ideal) on only 1000 iu a day. My results were similar to yours a couple of years ago and it took 3 months to get to 87 on 4000iu per day. I do however take a medication which depletes vit D, so was fighting against that too, but yours would still take a long time to get to sufficient levels on 1000iu.

You need around 4000iu per day for at least 2-3 months, with perhaps a maintenance dose after of a lower iu. It is worth then getting retested every three months for up to a year, just to check levels, as you can never tell what is happening, unless you do.

I take Lamberts Vit D ( I order them on line from Bodykind) but you can get them in a few places.

Ducky2003 profile image
Ducky2003 in reply to Teresa156

I'd already emailed the endocrinologist, as per my reply to Ozzie Bob. They are happy with mine as long as its over 50.I'm taking 2 Vitabiotics 1000iu gummies per day until I can clarify with her.😊

I'm already tested every 3-4 months as part of my thyroid and parathyroid monitoring , which is what picked up this blip.

Teresa156 profile image
Teresa156 in reply to Ducky2003

Hi Ducky,

I’m glad you’re taking 2000ui….but when you speak to her, please do double check the 50nmo/l, as you will still be classed as insufficient if you are just over 50. The current NHS guidelines in the past year or so changed to be sufficient when you are 75nmo/l or over ( up to 150). It’s all on line in the guidance etc.

I’m sorry to harp on about it, but I spent a long time researching it all as I take a drug which is known to deplete vit D and I never knew…

I’d been deficient for years and I have to keep an eye now. I try to stay around the 100 mark with alternating 4000 iu with 5000iu. If I had taken the advice of my GP, I’d still be deficient, as he said to take 1000 iu as maintenance, after I reached sufficiency.

Ducky2003 profile image
Ducky2003 in reply to Teresa156

I've not been over 60 for many years and I've had kidney problems, so they have to watch I don't have too much Vit D as my parathyroid can throw wobbles as well.It's a fine balance which works fine for me between 50 and 60, usually.

I suppose we're all different and our bodies cope in different ways. I'll be happy to get over 50 again as I know I feel perfectly fine at that but thanks for the info.😊

Teresa156 profile image
Teresa156 in reply to Ducky2003

Ok, I understand 😊 x

Ducky2003 profile image
Ducky2003 in reply to Teresa156

I will mention what you've said to her about whether a higher level would be safe with my kidneys. I have gallstones and don't want to end up with their kidney cousin's. 😁

Teresa156 profile image
Teresa156 in reply to Ducky2003

I just did a quick google as you’ve got me on a mission now 😊 and low vitamin D can cause gallstones…..but that is Dr Google telling me that….

Ducky2003 profile image
Ducky2003 in reply to Teresa156

Mine actually kicked off when I got healthy and lost a lot of weight (I should have just stayed fat 😃) but cholesterol is the biggest cause. The pain is indescribable when they decide to move.

Teresa156 profile image
Teresa156 in reply to Ducky2003

😳 sounds very painful….sometimes you just can’t win, whatever you do, to try and stay healthy.

I do hope you get it all sorted out with your Vit D. Take care x

ozziebob profile image
ozziebob

In the light of Blearyeyed 's informative reply, and my experience, I will be surprised if 1000iu per day will correct a deficiency.

But please let us know, after your next Vitamin D blood test, whether the 1000iu per day has worked for you.

PS. I'm assuming the number 34 you mentioned is nmol/L, and not ng/mL.

Ducky2003 profile image
Ducky2003 in reply to ozziebob

Hi, yes nmol/L. 😊.I had already emailed her to query if 1000iu was sufficient, as I looked back at old paperwork (I keep everything 😁) and in 2019, I had a dip to 38 and she had me on 20000iu per week for 6 weeks.

Still waiting for her to reply.🙄

ozziebob profile image
ozziebob in reply to Ducky2003

Your loading dose was 20,000iu/week for 6 weeks = 120,000iu. Mine was 20,000iu/day for 30 days = 600,000iu.🤔

However, I did initially think, 2 years ago now, that my loading dose might have been a rushed mistake by an unknown-to-me GP who then went on holiday and consequently I couldn't interrogate. But after mixed positive and negative feedback about this loading dose on the Forum, I chose to believe that my higher than NICE recommended dosage was not going to harm me, so I proceeded with that prescription. And no problems were caused. And, like you, after the loading dose comes the maintenance dose.

My initial deficiency was 22 nmol/L, but it was only discovered in blood tests at the time I was diagnosed with paroxysmal AF. Never had a Vitamin D test before then. A frustrating state of affairs that. I have now, after experimenting with different suppliers, hard capsules, soft gels, tablets, and doses, settled on a 4000iu D3 capsule which also includes 100mcg K2. I am still in the process of learning the best dose for me to keep my level high, but not dangerously too high. I have been permitted one Vitamin D blood test per year now by my GP because of its proven value in reducing the frequency of my AF. And that's important so I can keep a record of how my supplementation is working or not, as you also do.

I think my levels over these 2 years have risen as follows ... 22-->95-->107-->142nmol/L. Now this latest highest-ever-for-me level is still only 56.8ng/ml, and this, by French standards, which I respect, is not high.

Good luck, let me know how things proceed for you re the Vitamin D.

bob

Ducky2003 profile image
Ducky2003 in reply to ozziebob

I've actually had an issue with Vit D for a good few years on and off. Worst level was 18. Has been behaving for 5 years but has decided to have a naughty session.

I take Ad Cal normally, which includes calcium.

After asking the question about Lindens, hubby actually remembered we had some 1000iu gellies. We went to The Good Food Show in May and got given free goodie bags, both of which contained bottles of Vitabiotics 1000iu gummies.

I'd just put them in a cupboard.

I'll have a chomp on them and see what she comes back with.

In 2019, it went back up into the 50s after 3 months check.

I'll update when I know what's what.😊

Auriculaire profile image
Auriculaire in reply to ozziebob

56.8ng/mL is an excellent result. My granddaughter has been staying with us last week. This time last year we took her to our local lab to get her vit D tested as it was obvious from her extreme pallor she wasn't getting much from the sun! Her level was 14ng/mL. After a year of taking 8,000iu a day ( this was the amount prescribed to her twin in England who was also deficient ) her test last week showed a level of 52ng/mL. Similar for my step son who had also been taking that dose. They are now dropping down to 4000iu for maintainance. It costs 22€ here for the test (if you have no insurance)and you get the results the day after so money well spent.

ozziebob profile image
ozziebob in reply to Auriculaire

Thanks for your helpful information about dosage etc.. Is this the same granddaughter with the ecg concerns? And a level of 14 ng/mL (= 35 nmol/L, I was 22 nmol/L) wouldn't even be recognised here in UK as a deficiency, even if the NHS approved a random Vitamin D blood test. Go figure!

PS. More positively, it was mainly your experience and advice 2 years ago that gave me enough confidence to proceed with my 600,000iu loading dose. Thanks for that.👏 However, in the light of your granddaughter's original dose over a full year, my loading dose seems already out of date.🤔

Auriculaire profile image
Auriculaire in reply to ozziebob

A loading dose of 600,000 is the highest you would ever get here. Usually it's 200,0001u or 400,000iu. I think the 600 000 I got the first time was D2 as well which is not ideal. Maybe that was why the dosage was so high. Yes it is the granddaughter who can't make my Kardia work! UK levels for what is sufficient are among the lowest internationally. Most other countries start at 30ng/mL

gladliz profile image
gladliz

I've not used them myself but my partner takes their odourless garlic capsules. Pills of various sorts don't usually excite a response but these always make me smile . They are round little pearls of sunshine, light making them seem irredesant. How effective they are I can't comment but he says he hasn't been bothered by 'mossie' bites since starting to take them.

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