Good news story: Hi, I’ve been meaning... - Atrial Fibrillati...

Atrial Fibrillation Support

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Good news story

SingingT profile image
31 Replies

Hi, I’ve been meaning to post this update for weeks but have been too well and busy!

A shortish resume:

Diagnosed 2018, paroxysmal AF treated with Bisopralol and Flecainide. Very symptomatic and intolerant of drugs. Feelings of passing out during episodes resulted in PM being fitted 2019.

Episodes of AF became more frequent and lasted longer. My lifestyle was severely impacted because I couldn’t work through episodes, therefore I had to cancel plans etc. I have always eaten healthily and gave up alcohol and caffeine.

The cardiology dept. locally was staffed by locums and when I was reviewed I would get a different opinion each time so I arranged a private consultation seeing someone recommended by members on this platform. Particular thanks to LadyLawson 👍

The consultant I saw privately recommended an AV node ablation and said he would arrange this through the NHS. I had the procedure last November and wish I’d had it done earlier. My lifestyle has improved enormously. I haven’t had one day of feeling ill since. I’m off drugs (except Apixaban of course) I’m gardening and entertaining friends again and walking at least 3 miles regularly. I’m working to increase this distance so that I can go on a walking holiday which I haven’t done since 2018. I CAN MAKE PLANS……..bliss.

If any of you are in the situation I was in after making all the lifestyle changes ie very symptomatic when in AF and intolerant of medication then do not be afraid to have an AV node ablation if it is offered to you.

It has taken 5 months for my heart to accommodate to it’s new resting rate but I haven’t felt a thing.

Husband and I are off for lunch with friends and I may even have a cheeky Prosecco, it’s only 11% and if I have AF I won’t know.

Very best wishes to you all.

Singing Tx

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SingingT
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31 Replies
BobD profile image
BobDVolunteer

Good news is always welcome here.

SingingT profile image
SingingT in reply to BobD

Thanks Bob…

Finvola profile image
Finvola

Wonderful - enjoy your new life!

SingingT profile image
SingingT in reply to Finvola

Thank you 🥰

jeanjeannie50 profile image
jeanjeannie50

Great news, so pleased for you.

SingingT profile image
SingingT in reply to jeanjeannie50

Thank you 🥰

opal11uk profile image
opal11uk

Lovely to hear, enjoy every day!

SingingT profile image
SingingT in reply to opal11uk

Many thanks

Desanthony profile image
Desanthony

Brilliant news!

SingingT profile image
SingingT in reply to Desanthony

Many thanks😁

Fullofheart profile image
Fullofheart

What a great story....and a great outcome for you.It's obvious what a difference this has made to your quality of life. Wonderful to hear!

SingingT profile image
SingingT in reply to Fullofheart

Thank you 🥰

4chickens profile image
4chickens

great news, enjoy your new lease of life

SingingT profile image
SingingT in reply to 4chickens

Thank you 🥰

wilsond profile image
wilsond

Excellent news and am pleased for you. Enjoy!

SingingT profile image
SingingT in reply to wilsond

Thank you 🥰

Tapanac profile image
Tapanac

brilliant news so pleased for you

SingingT profile image
SingingT in reply to Tapanac

Thank you 🥰

OzJames profile image
OzJames

great news thanks for sharing. When you say you were intolerant to drugs how were you able to take the Biso and Flecainide over that 3 or 4 years before ablation?

Alicant profile image
Alicant

it’s a bit of a B having to go private ..but if you can …do it !You're right about locums and opinions! I had dreadful experience with someone who appeared semi literate at best and probably didn’t even have wolf cub first aid certificate!

SingingT profile image
SingingT in reply to Alicant

Oh dear….it was never that bad but it was very frustrating particularly since I worked, most of my working life, within the NHS when it was better resourced.

TillyBoss profile image
TillyBoss

Congratulations and stay well

SingingT profile image
SingingT in reply to TillyBoss

Many thanks 🥰

LadyLawson profile image
LadyLawson

I’m delighted to hear this. Great news 😀

SingingT profile image
SingingT in reply to LadyLawson

Many thanks 🥰

Snowgirl65 profile image
Snowgirl65

Wow -- what a great story! It makes many of us very symptomatic a-fibbers have hope!

SingingT profile image
SingingT in reply to Snowgirl65

Thanks, that’s what I hoped to achieve…..🥰

KootenayTrails profile image
KootenayTrails

Great to hear you clearly have a new lease on life - enjoy!. Also encouraging for those of us who were also very symptomatic, should ablations stop working.

SingingT profile image
SingingT in reply to KootenayTrails

Indeed! Thanks for your reply…🥰

dedeottie profile image
dedeottie

Great to hear this. Thank you for posting. X

SingingT profile image
SingingT in reply to dedeottie

Glad to contribute……🥰

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