Does anyone have Hpertrophic Cardiomyopathy (HOCM)

[Likethecolorblue]

Do you have HOCM; if so, how are you being treated? The doctor has diagnosed me with having this. Thank you!

[Zeinmassri]

hello I’m sorry to hear about your diagnosis. I also have been diagnosed with HCM it’s just mine in non obstruction. I am not under any treatments for the disease but I’m under treatment for the arrhythmia I devoloped because of it. I take blood thinner and beta blocker and Amiodrone (rhythmic drug). They are keeping my heart controlled until I receive an ablation.

[Likethecolorblue in reply to Zeinmassri]

thank you for your reply! Good luck to you!

[BobD Volunteer]

Try asking on BHF side of HUL.

[Nannysue1]

I was diagnosed with HCM aged 59yrs. Mine isnt bad and in the last 9yrs hasnt got any worse.

It did however, lead on to AF and an 8yrs journey with that.

I have a yearly ECO for the HCM.

I was on amioderone for 6yrs to control the AF, before that stopped working and consequently have ended up in permanent AF for the last 2.5yrs.

Due to the HCM, success rate for an ablation for me, was only 30-40% and I opted not to have it done as personally, the odds werent high enough.

Ive recently been fitted with a pacemaker.

We're all different but my reply to your question is that personally the HCM itself wasnt causing me the trouuble but the knock on from that, the AF was.

Hope you find a solution soon.

[Likethecolorblue in reply to Nannysue1]

I am female 82 yrs old. I have afib and getting a pacemaker tomorrow. Four weeks later I will be put on Tikosyn to keep my HR from going too high. I have questioned my doctor about getting an ablation vs. the Tikosyn. My HR stays around 55 and have dizziness all the time. Hopefully, the pacemaker will help. When I go into AFIB my HR spikes up to 130-150 with chest pains which sends me the ER. Hopefully, I can get this corrected. Thank you so much for your reply and God bless you!

[Zeinmassri in reply to Nannysue1]

is your HCM with obstruction?

[Nannysue1 in reply to Zeinmassri]

No, I have thickening of the walls but not very much.

[BlueMonday67]

Hi, have just seen your post. I have HCM, diagnosed in 1974 and for most of that time had an annual review with echo and ecg - no other treatment. PAF stated in 2010, so then had to start taking anti arrythmia medication. A good source of info is the charity Cardiomyopathy UK. They have help lines and peer support as well as good info - just tpye their name into the web.

Hope that helps and good luck