Does anyone have flutter?: I have yet... - Atrial Fibrillati...

Atrial Fibrillation Support

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Does anyone have flutter?

29 Replies

I have yet to find someone who's experience is similar to mine. What was happening me is my heart was not beating. No pulse. And instead there was a purring noise. Like a cat. Or like an old telephone ...brr brrrrrrr brr brrrrrr brr br brrr brrrrr irregular rings but the purring itself was regular. No heart beat no pulse. Could feel the pulse vibrate barely. In my neck and in my wrist... Like a phone on vibrste but very feint. Anyone else have had this ...I normally have an erratic heart beat and have always had odd drops and thuds and whatnot which never bothered me. But I'm still unclear as to what exactly that was. It doesn't seem to be afib which seems to be either fast beats all of a sudden or erratic beats I'm not even sure about that. the more i learn the less I know. Thankfully its not happening since taking megmeisum but I do still get the thuds and wallops and bubble and flobs. Which feel odd but uve always had them so they don't seem disturbing in any way. But I'd just really like to know wtf was it I experienced. I've listened to all of Gupta's vids about palpitations and it didn't sound like any of those. Some of the other blibbles might be though. But have yet to come across this no heart beat just heart vibrating thing. There was no pain. But did feeble xhuasted and brain dead. And achey legs. But that could be unrelated.

29 Replies
Palpman profile image
Palpman

Its scary but very common. I suspect its AFib as it normally goes faster than AFlutter. At 240 bpm it will be 4 beats per second and will feel like the ventricles are vibrating. It can go higher.AFlutter is normally slower at 130 to 180 bpm.

in reply to Palpman

Ah OK when I first came on here someone told me the exact opposite that you just said... Because it was a very fast vibration ..I mean how many beats a second yoi couldn't count it like a pulse. When I read about afib it sounded a lot slower than that but somone said I must have flutter then. and are the ventrical vibrating at that point? So is it no longer afib and whole heart is fibbrilating? Thankfully mines gone for now but yes it was scary. I was more confused than scared. I thought how in the heck am I alive and can't hear a heart beat or feel a pulse and I dead? Once I realised it was at least thrumming I just took lots of deep breaths before bed so at least I moght have enough oxegen. Lol. It is indeed a strange sensation.

Ah cool i didn't know younhad both. Yes very much like a buzzing.... Definitely not beating thank god I don't think it would be possible for my heart to beat that fast. Like I have tried tapping it out here on the drum and its not possible. And yes about six per second if I go brrrr... I saw a video after you told me that (which I then lost) that seemed to fit but nobody has mentioned the lack of heart beating except yourself.... It must be more uncommon.... But that must mean the whole heart is doing the buzzing right? Not just the atrium? Did you lose pulse as well and just have a vibration? Thanks so much I also for got your name or I'd have asked you again about it. John6 john6 john6. I might remember if I write it out. 🤣

Palpman profile image
Palpman

Many fibers here have said that their HB was over 200 bpm while flutteres consistently had much lower.

When in AFib, the Atrials beat so fast that they tend to quiver. The chaotic signals come from different areas around the sinus node.

There are no prominent P waves due to the chaotic signals and most of them attempt to go through the AV Node to the ventricles but cannot due to the refractory period. This causes the irregular heartbeat.

The most common AFlutter is a fast and regular P wave that follows through to the AV Node but is then diverted back to the Atrium as a re entry pulse. It is common to have a 2:1 Atrials to Ventricles ratio at 150 bpm v rate.

This explanation may be wrong but it explains why AFib is a faster rate than AFlutter.

in reply to Palpman

Hmmm... Yoir saying one thing and then another. If the rstio is two to one a to v and v is 150 that makes a 300 which is greater than 200. Which would make it both faster and slower at the same time. and if there was a 300 in a and a 150 in v that would make 450 beats if they weren't coordinated. I'm confused by your maths.

Palpman profile image
Palpman in reply to

Oh dear me. You totally do not understand the workings of the Atrials and Ventricles at all. I cannot explain to you because you do not even have a basic understanding.Have a good day.

in reply to Palpman

No I don't. Why would you think I would have a clue what yoire talking about when it isn't explained and just flippently thrown out there .... The literal post and question is I dont know does any have something like this. You don't so I dont even know why you're here if you don't. You have explained nothing in words that make no sense to me ... Not in layman's terms at all... I'm not a veteran heart disease patient who's got all the lingo here... Thank god... Anyway since you dont even have the baaic ability to explain concepts without jargon and then get pissed off that you're not understood. Ya best go. I think john6 who has the damn thing knows what I'm talking about... You're not very helpful at all.

Palpman profile image
Palpman in reply to

Thank you.

AussieHeart profile image
AussieHeart in reply to

A newbie like you. Thank you for raising this issue as I hit a wall on this too as I didn’t have the words to describe what was going on. Like you it was and still is frightening at times. I came up with Orthostatic tremor to replace vibration in discussions with medical professionals as grinding/ whirring/gnawing wasn’t understood. Sadly mentioning internal tremor meant they wanted to label me anxious! Arrrrg. It took me to faint twice before I was taken seriously. A loop monitor was inserted and aFIB dx made but I still don’t know what I am experiencing as you don’t. I read a post here where a woman visiting Krakow said she thought the public square she was standing on had an underground railway station below. No one but her felt it. It came on suddenly. This happens to me. It could be a mild whirring or full-on vibration sensation. I was put on the beta blocker Sotalol 40mg twice a day as a start but it causes head fog and fatigue. I’ve dropped it to 40mg nightly and feel less fatigued but vibration is back. Doh! Sending you virtual hugs from Australia. You are not alone and we will eventually get up to speed or on top of this heinous condition.

AussieHeart profile image
AussieHeart in reply to Palpman

As a newbie to aFIB it is frustrating and stressful to not understand this condition especially when EPs, GPs and cardiology don’t take the time to educate the newly dx. I am 58 and had symptoms for two years before it got labelled correctly. I was treated poorly. I don’t know how old gonnamakeit is but I think the younger you are the more you’re dismissed. Case in point my GP said at your age this dx isn’t anything to be concerned about. Worry in another 10 years! I was feeling really unwell hence the appointment but after that statement went home embarrassed I’d bothered him. That afternoon after 5 hours of irregular heartbeat I passed out. I was told I should have gone to emergency on just 15 mins to half an hour of wild heart swings! Too confusing. I needed to be given an action plan.

Heartfelt46 profile image
Heartfelt46

Sorry can’t help with your problem but I love all the new words you use which I shall add to my own dictionary! It made me smile. I hope you get sorted.

AussieHeart profile image
AussieHeart in reply to Heartfelt46

Me too. I am going to try whirring to explain my symptoms from now on!

Ppiman profile image
Ppiman

I had both and they created a similar really bad physical effect on me. Flutter is a regular atrial beat (which can’t be counted or felt) of about 300bpm, with the heart’s sinus node reducing this to create a slower but regular pulse rate (which can be felt and counted). Flutter is distinct because the pulse changes in a step-wise manner to a fixed ratio, e.g. 150 / 100 / 75. etc.. Fibrillation is an irregular "quivering" of the atria that the sinus node cannot regulate properly and so produces an irregular pulse with "skipped" beats or palpitations.

What you felt must have been worrying and could have been some kind of "by-product" of the flutter or fibrillation that caused nearby sensory nerves to react oddly, allowing you to feel it in the ways you describe. Once the nervous system is activated by the anxiety produced by arrhythmias, many weird effects can be felt, including "zizzing" and "vibrating", tingling, pins and needles and numbness.

Steve

in reply to Ppiman

When you say rhythm do you mean the heart contracting in a beat or the vibration is irregular. The frewuncy of the beat of the vibration or the ...ya know what never mind I have decided to srop giving a crap nobody on here knows its all a mystery to everyone I will just have to be the same. Thanks but none of this is making sense soery its just giving me a headache at this point. Lol. I'll wait till I'm having a heart attack and the coversarion will be more strisght forward.

Ppiman profile image
Ppiman in reply to

It’s a frustrating and worrying life having unexplained health issues, that’s for sure. I’m in the middle of tests myself as are many others here.

Most people find the replies here helpful and comforting but it’s true that no one can know you except your own doctor. He or she is the best source for information and answers. Heart issues are complex so there are no simple explanations.

Steve

AussieHeart profile image
AussieHeart in reply to Ppiman

Great explanation ... wish more cardiologists/GPs understood vibration as a term to describe symptoms because their ignorance forced me to mention orthorstatic tremor to best describe what I was experiencing pre-aFIB dx and my GP wanted me to get counselling instead! Thankfully a referral to an EP intervened with a dx!

wilsond profile image
wilsond

Exactly the same as meI could have written that post!

I'd call it whirring . I think it may even be a combo of afib and flutter going on at same time sometimes.

Confuses the hell of out on Kardia

goldey profile image
goldey

My cardiologist told me that you can generally use your oximeter to tell you when you are in AFib. Normally your pulse will fluctuate within 5 bpm, this is perfectly normal. But when you see it bopping around, like 55, then 71, then 62, then 88, then 56, then 90 -- etc -- that is a fast AFib that cannot be registered on the oximeter. Try it when you have that rrrr going on and see what it shows.

AussieHeart profile image
AussieHeart in reply to goldey

Apparently Apple Watch is introducing an aFIB feature. It was tested against ECG and was spot-on for identifying when in aFIB! Despite having an inserted loop monitor I still will be buying one as I don’t know when I am in aFIB ... as a rookie to this dx, I have much to learn what my symptoms mean :-)

in reply to goldey

Oh OK I have a pulse oxometer. Thankfully it hasn't happened ..it east happening for two months maybe but thr day after my ecg I realized my magnesium was a two s day one and I took four and within hours it went...it only came back when I forgot my tabs on a trip..so I don't fsncy stopping taking it to see if it comes back and I catch it again..I eish I'd come here when it was hspoening but I suppose its just too late to tell what it was in the past. And at the time my oxometer and bp cuff were 75k away with lockdown happening I couldn't have even gone to my moms house to use them. So I will forget it until it comes back and hopefully it judt won't. Fingers crossed.

Sue444 profile image
Sue444

Get a medical appointment and put your mind at rest!

in reply to Sue444

Yeah I have thought of that and seen many many times. They don't out my mind at rest at all they induce anxiety with the random things they orescribed me without any evidence. They didn't see anything on my ECG because it only happened at night. And not within the three minutes they had the sensors on me. I've been trying doctors for years. they're not going to be of any help as I can read from people experiences here they only seem to get help when they're pretty far gone and already the damage is done and they get no help to figure out a cause. Very glad to not have a doctor look into it and try to endicate the symptoms away without any curiosity as to causation. thankfully with the help of random strangers I've managed to get a lot further than I ever did with doctors. But nice idea. And I'm sure if I had doctor house it would be ideal. But a doctor assuring me I'm fine would not assure me when if my heart isn't happy its going to inform me I'm not fine. and I'd rather listen to my heart than a doctor who wants to shut it up by burning it before even Investigating what its trying to say.

SuziElley profile image
SuziElley

I think you should speak to either your GP or cardiologist. They'll be able to put your mind at rest. At the end of the day, we all experience AFib and Flutter in different ways. You need proper medical input. all the best :)

in reply to SuziElley

I've been going to a gp for years. That has helped in no way and harmed me too. And from what I read here they only do two things. Put on anticoagulants and burn part of your heart to make it stop complaining about whatever it is thats causing it to malfunction without any investigation into anything. From what I'm reading on here people can have it for years without a doctor even investigating the most simple of causes. And even establishing that it is happening and isn't all in your head in the last 8 years my doctor has hooked me to an ECG machine first three minutes and done a basic blood work she's not even listened to my heart with a stethoscope or asked me any question about it ..she's given me a blood work print out with numbers and no units of measurement to indicate what it might mean. She's prescribed medication for asthma which I don't have. Allergic rhinitis which I don't have. One Dr gave me a banned antibiotic for an ear infection I don't have. Another told me the inner ear doesn't exist. (I had ringing in the ear which I've learned can be a b 12 deficiency which can also cause hesrt arythmias and the other symptoms like fatuge etc) she's handed me antidepressants for anxiety which I don't have either except when I have to go see her which makes me very anxious... And has done zero to help me bar bandage a finger a cut very well indeed. Credit where its due. Thankfully my symptoms getting worse and worse I have managed to figure out without their help that magnesium was needed and that I may need b12 and iron. And certainly suffer from never drinking enough water or electrolytes ... And so far that's worked. Within hours that worked. I'm taking cayenne pepper for its 60% risk reduction of stroke and the protective effect on hearts which I can see from looking at my own veins has made my blood flow better in my wrists... And is comparable with blood thinning medication without the risks. so all told I'm very glad my doctor didn't diagnose me as if she had I'd be on meds right now and still suffering from needing magnesium and god knows how many years and surgeries I would endure before anyone ever looked into that. So no thanks. It was a total stranger in a chemist to told me about magnesium and I owe her a lot for having the balls to butt in on my conversations with the chemist... And I've managed to improve things a lot more just from asking google and using my brain than I've achieved from banging my head on the brick wall of the GPS clinic. When everyone perception is so vastly different that presenting the sane symptoms to different doctors get a wildly different diagnosis from ear infection to depression to ashthma then only empirical evidence seems useful. And since I don't have a lab or an ECG the most basic empirical evidence i have access to ismy own senses. Which sure unreliable but less unreliable than my doctors sense perceptions. Since I have access to all the sense data and she sees me for two minutes. And doesn't bother with the empiracle evidence she has access to. Thankfully more and more labs are opening up to the public and more and more tech is available to people. A few people on here have caught their issues with a kardia machine... When their doctors didnt. So that might be something I could do. But asking my doctor or any of them down there has proven to be utterly useless and occasionally harmful. thankfully I didn't take any of the random medication they handed me for no good reason with zero evidence for their scripts. So no for my health it seems best to steer well clear of those people unless absolutely nessisry ...I'm sure they'd do fantasticly well if I had a major injury or event but as far as preventing that eventuality goes they seem to be Ill equipped in the extreme.

Daddyrabbit profile image
Daddyrabbit in reply to

I feel your frustration as I deal with it myself. I have the same symptoms that you Have described. I run a small business and I have several clients/Friends who are doctors specializing in Different fields. I have been told on a personal level from all of them that there isn’t a damn thing they can do about it accept prescribe toxic medications or procedures like ablations that are not guaranteed as a cure. Although some patients get years of relief from such procedures but still no guarantee of a cure. It can be very discouraging when one gets the feeling that doctors are only interested in covering up the problem rather than solving it. At this point in my life I do the best I can with natural supplements and the rest of it I leave it in the Lords hands. May God give us all the wisdom we need to overcome this problem.

in reply to Daddyrabbit

Thanks that's what I'm gonna do too. Just wing it and hope for the best. So far so good at least. Thanks for the empathy!! Gotta take my supplements and stop my waffling now!

AussieHeart profile image
AussieHeart

OMG! Reading these posts is simultaneously informative and scary. As newly dx aFIB, it’s a confusing world to enter. For two years post-rare cancer surgery I complained of weird symptoms and was told as a cancer survivor I’d not always get closure. Months later they discovered I had “mild” mitral valve stenosis. Then a murmur, then regurgitation, then irregular heart beat but only after fainting twice and me saying could it be PoTs? For six months until aFIB was identified by loop monitor chip inserted over my heart I mentioned a vibration sensation and was offered anxiety counselling. I didn’t have the words and still don’t as many of you here to describe this gnawing/grinding sensation. Even on Sotalol it’s still there and like many here causes fatigue, flu-like symptoms and worse sound sensitivity. My ears ring, click, whoosh even sound like metal scraping or symbols crashing. I feel like I am sitting on a tractor or generator sometimes as this grinding moves up and down my left side. Oncology and cardiology kept saying I’m complex, so was glad finally an EP (with help from my GP) took me seriously. It hasn’t helped totally yet re: continuing symptoms but at least I can educate myself on aFIB and go to emergency if needed :-)

in reply to AussieHeart

Ah shoot that's a roller coaster. I keep asking this to people and rarely get a reply. Have you been tested for everything. B12 iron magnesium all the common things that cause arythmias? Do you get enough nourishment from your diet? I'm realising how much of an impact missing out on a small bit of one vital element is over time. I mean I never get enough iron even though I eat meat at the end of a week when I have tracked everything I don't get enough. Hissing in my ears I'm starting b12 started yesterday hissing is less but it always goes up and down anyway... Do you take magnesium? Like all the simplest things first and even if people come to a doctor with some palpitations be it anxiety or an arythmia recomeding they get some extra magnesium wouldn't be a bad idea for both anxiety and heart things. Like I feel as if we are all malnourished ...we used to spend out entire day doing nothing but putting a meal on the table it was the center of our lives... Now we grab something quick and go go go... And we lack nourishment we lack social gatherings human intimate connections that a re also scientifically known to be good for hearts and anxiety... And then we go looking for care and we get no nourishment from the carers for our health. they don't even mention anything they don't have a drug for. My heart goes out to you love. They have their uses. They did help your cancer so they obviously have some amazing skills. But when it comes to the little chronic things that build up over time they seem really to act very much only when things are so bad that there's a drastic action to be taken. All I can say is take the best care of yourself that you can and that's all any of us can do. If random things befall us after that its just the roll of the dice and we have to roll with it. You might want to look over in pernicious anemia for the ears ringing. I learned a lot about it over there. (I wonder if I've had some form of suggestion happen me because my ears are clicking now and they never did that before. Am I just absorbing peoples symptoms now empathicly?) I'm gonna go now cos its time for my magnesium and I mustnt forget. But message me if you ever want to moan about your doctors I won't argue with you lol! Thanks for sharing your story and I hope you feel loads better soon ..

AussieHeart profile image
AussieHeart in reply to

You too. I answered a few posts including many of your replies in this thread. Interesting being an Aussie, we just can't take B12 without a GP signing off on it. I get my bloods checked every three months as also have Haemochromatosis (iron ferritin overload) and thanks to cancer get B12 checked annually. My Gp won't test B12 more often than annually! I'm not sure whether magnesium has been tested but I'm told my bloods are near perfect! I have a great diet, don't drink alcohol but probably should give up my two morning coffees. Love veggies and fruit. I've been following FODMAP since cancer dx. My oncologist said to get EUC tested again, sodium/potassium after I said shakes/tremor/whirring/vibration sensation! I said it was probably from aFIB but specialist hadn't confirmed that to me except to say Sotalol may reduce my "tremors". It hasn't only morphed them into whirrings. Having atypical health issues isn't ideal. Keep the confidence up that things will look up for us both!

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