Low ef cardiomyopathy & afib

[Biglad1]

Been on entresto nearly 8 months last couple of months on highest dose. Bubble echo had ef at 37% 3months ago mri says its now 29% with no scarring just cardiomyopathy and persistantatrial fibrillation. Had very little symptoms (none) before I started taking it and now get pins n needles and dizziness standing up & fell hard once & knocked myself out, none of wich I did before I started taking it. Asked cardiologist if I could stop as I wasn't having symptoms b4 I started it and he said no but if it's not working then what's the point. Or try other medications. 1st time i had afib and heartfailure I was on spironolactone furosemide digoxin bisoprolol. Fed up now and gunna loose my job because of the low ef

[mjames1]

Don't know much about heart failure and ef, except that it may be reversible if normal rhythm is restored.

Have you considered treatment options for your persistent afib? Catheter ablation? Or, if they say catheter ablation has a low chance, then surgical ablation like mini maze or hybrid/convergent?

Jim

[Biglad1 in reply to mjames1]

Trying to loose weight at the minute as my bmi's 47 but its going slowly. Was 220kg at my heaviest down to 159kg at the min

[Buffafly in reply to Biglad1]

Well done for that, that’s fantastic progress. I am sorry you are having such a hard time but can’t offer anything but sympathy. I suggest you post on the British Heart Foundation forum because they are more experienced in heart failure. Also you can speak to a BHF nurse if you go to their website.

Have you been in contact with your HR department at work?They should work with you to help you keep your job or maybe there’s an option to move to a different job or part time.

Best wishes ❤️‍🩹

[Biglad1 in reply to Buffafly]

I was a hgv driver so no licence no job & ef need to be above 40% 😪

[Buffafly in reply to Biglad1]

😢

[Bubum]

I don’t normally post on here however….

I’ve had 2 heart attacks and two cardiac arrests (both out of hospital), my cardiologist put me on Entresto 49/51 in 2020, well, pins and needles, dizziness and mobility issues ensued, my cardiologist told me to keep taking them (EF 31 at the time. My GP however did blood tests and found that Entresto was affecting my liver severely and told me to stop taking them immediately as it was more serious than my heart condition.

I’ve been off them for 2 years now, I take bisoprolol, dapafliglozin, apixaban, atorvastatin and have an ICD fitted, my EF is now 46 and life is good, no mobility issues at all. Entresto is not for me….just saying