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AF Association
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Follow up to blood in urine

Had my appointment today and they found cancer in the bladder. As you all can imagine very upset. But the consultant assured me we caught it early. They are going to operate within the next month. And he seemed very confident and reassuring. So I am glad I went to see a doctor promptly. Rienij ๐Ÿ™๐Ÿ™

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Two people I know well have had this diagnosis .Yes. Very upsetting and I hope all goes forward well. A friend is still very much with us after more years than I can remember......probably 10+.My brother was diagnosed a year ago....he is 87.....with stage 1 bladder cancer AND he has had multiple myleoma...in long term remission.Surgeon dealt with the bladder cancer and then said tongue in cheek 'well we' got that' so you many more years in front of you'. That apparently means 5/6 or 7. So I guess if you are a younger person and with fair health you might be in with an even better diagnosis and long term recovery.

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๐Ÿ˜Šthank you

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So sorry to hear your news Rienij, obviously something that nobody wants to hear but the fact that you dealt with it so promptly really does have a massive positive impact on the outcome. Everyone here on the forum will be wishing you well, thatโ€™s for sure..........

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Thank you Flapjack. Can do with lots of positive thoughts. Rienij xx

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๐Ÿ‘

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I'm seven years post radical prostatectomy for cancer during which they took away part of my bladder and some other bits and pieces I no longer use. Life does go on and it sure as heck teaches you what is important in life or not. Be positive. You are what you think.

Bob

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Thank you Bob. I will try to stay positive. Thank you for your support. Rienij x

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So sorry to hear that, but wishing and praying all ends well for you ๐Ÿ’—

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Thank you xx

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Iโ€™m sorry to hear this Rienij - it must be a dreadful shock for you to absorb. Take account of your consultantโ€™s positive view that it was caught early and he is confident.

Sending you a big cyber hug and positive thoughts.

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Thank you just what I needed ๐Ÿ˜˜๐Ÿ˜˜

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Sorry to hear your news - the major positive is that they want to operate. My point being; with everything so stretched these days they would not operate unless there is a very good chance of success..........John

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Thank you the consultant was very positive about that.

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I'm sorry to hear your news Rienij, but thank goodness the cancer had been found in it's early stage. It's good to hear that your consultant is confident and reassuring, as an expert he must see countless of cases like this, so his opinion should be trustworthy. Please let us know when you get your op date. We will be with you every step of the way.

Sending a big healing hug your way.

Jean

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Thank you Jean , are all so kind and supportive is like having a big family. Rienij

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Hi , My brother in law had growths removed from his bladder and then chemotherapy wash to the bladder. The tiny growths re-ocurred ( 70per cent do) and these were excised and he is now fine just having regular scans. If they have caught it early it's very treatable let us know how you get on

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Thank you will do. Rienij

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A couple of good friends of mine have had run-ins with BC this last 10 years and they both came through with flying colours no problem. The odds are excellent that youโ€™ll do the same ๐Ÿ‘

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Bless you thank you.

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Sorry to hear your news Rienij70. Any diagnosis with the โ€œCโ€ word in it is scary but it sounds like your doctor is positive which is a great start. Look after yourself. Sending you a big hug from down under ๐Ÿค— ๐Ÿ‡ฆ๐Ÿ‡บ

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Thank you , much appreciated. ๐Ÿ˜˜

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So sorry to hear your news. Itโ€™s good that you went to the doctor quickly. I hope the surgery goes well x

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Thank you. Xx

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It must have been an awful shock to get that news but a friend of mine had a similar diagnosis and was told that having found it early and having regular future investigations it would not be life threatening. It means the hospital will keep a close watch and treat anything before it becomes a big problem. Best wishes for a similar outcome for you.

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Thank you for your kind words of encouragement. Rienij

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My friend also had the same diagnosis, she is fine and that was 7 years ago. She is checked regularly and apart from that she lives a very normal life. Good luck Rieni...you were diagnosed early and you have a treatment plan in place, get through the surgery and look forward to many years ahead of you. Roy

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Thank you ๐Ÿ™

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Sorry to hear this Rienij, what a shock for you.

If it's any comfort, my father was diagnosed with bladder cancer in his 70s, had a small operation followed by regular check ups ... it never got the better of him. He lived until he was nearly 90 and didn't die of cancer.

Thinking of you and sending you my warmest wishes H x

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That sounds good to me. Thank you xx

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Good you went to have it checked early,stay positive,wishing you well.

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Thank you xx

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So sorry such a shock and that was the same with my mum we thought it was an infection but turned out to be cancer.....having sajd that she was treated and after a few years of goung back for check ups was clear....they seem to have great results with bladder cancer.....if they say chemo after dont worry itโ€™s put in bladder and does not affect the rest of the body, no side effects at all.

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Thank you Morzine, it is a whole new ballgame. Unknown is the word I think.xx

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My husband was diagnosed with an aggressive form of bladder cancer over four years ago. He is now free of the disease.

After the diagnosis it was a very worrying time for our family, but life is back to normal, and he is enjoying all the things he enjoyed before the diagnosis.

Feel free to pm me if there is anything either he or I can help you with.

There are also some very supportive groups on Facebook if you have an account on there.

The urostomyassociation.org.uk is another website that might interest you, they organise meet-ups over the country. (Assuming you are in the UK) If you plan to have a stoma, you will be allocated a stoma nurse before the op.

Hope all goes well for you.

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Thank you, just trying to digest it all. Starting to feel numb. Probably due to lack of sleep last night. Xx

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So sorry to hear this. Stay positive and wishing you all best and a speedy recovery.

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So sorry to hear this - big cyber hugs from me too...

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Thank you xx

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So sorry you are going through this worry in addition to all the other issues in your life. No wonder you feel numb. In my experience (although not with bladder cancer) consultants are very careful in what they say, it is not in the patient's best interest nor the consultant's if the truth is clouded. Your consultant sounds confident and positive and you don't have long to wait. Please let us know how you get on. With very best wishes.

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I keep telling myself that too. And it is going to be dealt with quickly. Xxthank you.

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Hi Rienij, how awful to get that news, but well done for going to the doctor. The period until your procedure will hopefully be short and then you can start to feel better about things. The anxiety is not easy to cope with. Wishing you all the very best x

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Thank you xx

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Hello Rienij70

Life has thrown you a curved ball! - I speak from 100% personal experience

Exactly 5 years ago i was in the place you find yourself now - Frightened

At the same time I was enjoying the inconvenience of AF.

I was told if you a male and diagnosed with cancer the "Best" two to have are Prostate or Bladder so, things could be worse!

I decided, after much thought and professional and family advice, to accept major surgery and had a Radical Cystectomy - meaning the removal of my bladder,prostate and appendix and all surrounding lymph glands.

The rationale was that cancer can not return and attack my plastic replacements!

My doctors/surgeon, also reassured me that AF would not impede the procedure in any way.

My AF was also treated with 2 ablations within this same period.

I am now 5 years down the road, free of cancer and very much enjoying life with only a slightly altered lifestyle and I provide counselling to patients at a major South of England hospital.

I have seen 10 patients this year so far, so you are not alone.

If you would like further information/advice/support, please do not hesitate to mail me.

My very best wishes for a speedy, successful treatment and recovery.

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Wow I am overwhelmed by all the support I am getting thank you so much. Canโ€™t take it all in so will probably read all your replies again. And yes I am at the moment in AF since night before last but not to fast at the moment. Xx

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Glad you were prompt in checking it out, thoughts are with you

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Thank you. Xx

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Me and my wife has been diagnosed with blood in urine seen under microscopic for the last 5 years

Are we infection each other ?

Did ultrasound 5 and 1 years ago

Dr says nothing wrong with me and is due to kidney stones

I hope the best for you and there's big advanced in curing this now from all people sharing here stories

Hope we all come together in times like this... Big hug for u brother

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Thank you xx

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So sorry to hear your news, sending you love, healing and hugs xx

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Thank you. Xx

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My battle with bladder cancer ongoing no surgery but 6BCG treatments which is live tuberculosis injected into the bladder to kill cells with cancer. An excellent Website BCAN is all about treatments and people who have faced bladder cancer. Good Luck R prayers are with you

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Thank you ๐Ÿ™ Rienij

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Best wishes and I hope that things are brighter in the future xx

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Thank you xx

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A lesson in quick action. Well done for getting on top of things quickly ensuring a good outcome. Best wishes.

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Thank you ๐Ÿ™

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Good that it was caught early. Scary but it is re-assuring that it is manageable. One of those things life throws at you and you are going to get to throw it right smack back! Best wishes your way!

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Thank you xx

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Thank goodness you acted so quickly and will now an excellent chance of a good result. We will all be with you every step of the way. X

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Thank you. Xx

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So sorry to hear. I wish you the best

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Thank you xx

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Hope all goes well for you. Stay positive

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Thank you xx

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Lots of positive posts to support you. I have a friend with the same diagnosis & after treatment has been fine

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Thank you xx

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Just to reassure you. My mum was diagnosed with aggressive bladder cancer many years ago. She had about 3 ops then chemo treatment which was liquid into the bladder. Anyway she is 92 now and although she has to have checks every year (was 6 monthly) she is absolutely fine. So keep positive as it can definitely be beaten!!!

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Thank you xx

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Hi Rienji. That's difficult news to hear. I have had 2 bouts with cancer. Larynx in 1984 and uterine in 1999. I am still here and doing well. I do know from years of working with patients many more of us survive cancer than not. And you got on top of yours right away . I wish you a smooth journey through your treatment and I believe pretty soon you will be reassuring someone else who is newly diagnosed that you are a survivor and their odds are also very good. Take care. irina

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Thank you ๐Ÿ™๐Ÿ’•

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You are in my thoughts and prayers xx

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Thank you xx

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