Tikosyn safe? Anyone on it? - Atrial Fibrillati...

Atrial Fibrillation Support

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Tikosyn safe? Anyone on it?

jsanta profile image
8 Replies

I have had three ablations one cardioversion and have been permanent a flutter. Also enlarged heart and thick wall. My heart races to 160 on top out of sync with bottom after minimal exercise.

No more ablations.Dr wants to put me on Tikyson 3 days in hospital then cardiovert me. If doesn’t work do pacemaker and av node..

Any thoughts?

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jsanta
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8 Replies

Sorry jsanta but I don't think Tikosyn is used this side of the pond. Hopefully some of your fellow countrymen will be able to help. There are a few members who are familiar with pacemakers so hopefully they will help too......

jsanta profile image
jsanta

Thank you brotha!!!

etheral profile image
etheral

I have been on Tikosyn for a year. Iconverted from AFib ti NSR while getting the loading dose during the mandatory 3 days in the hospital being monitored. I have had no perceivable side eff acts and no relapses.

jsanta profile image
jsanta in reply toetheral

Wow thank you so much! I’ve read so many bad things about it. I go in onAugust 6 for my loading. I’m really happy it’s worked out for you I hope I’m as lucky. Thank you so much for getting back to me!

Spoiler profile image
Spoiler

It cardioverted me on the first pill, then the next pill caused a cardiac arrest. They resusitated me and I ended up in emergency surgery for a pacemaker. I already had a really slow heart rate and I look back and think that was the problem, my rate was 33 in NSR after it cardioverted me. My normal had been around 48. I was told by the cleveland clinic when the first dose converted me, it was a indication to reduce the dose. None the less I was really excited that it converted me, I always require DC cardioversion, I have had 14 in 4 years. I personally know several people that does quite well on it. I am no longer a candidate.

jsanta profile image
jsanta in reply toSpoiler

Oh boy hope you are ok! I am going in on Monday..Petrified of side effects but I can’t continue to walk 50 yards and be out of breath. I’ll keep you posted what happens. God bless I hope you’re doing better

jsanta profile image
jsanta

Oh boy hope you are ok! I am going in on Monday..Petrified of side effects but I can’t continue to walk 50 yards and be out of breath. I’ll keep you posted what happens. God bless I hope you’re doing better

Beemer11 profile image
Beemer11 in reply tojsanta

How are you doing on tikosyn been about 10 days since you went in

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