I'm writing this help others that may be considering going down the CRT Route. Obviously, everything I write relates to my own experience and as we all know, 'everyone is different'.
My CRT-D consists of a pacemaker / Defibrillator unit with leads leading to my Left and Right Ventricle. The lead to the right Ventricle is also the ‘shocker’ lead as well as the pacemaker lead. (this is only relevant if you have a CRT – D.
I also have a box that sits next to my bed and allows the CRT-D to communicate with the hospital. Make sure you get this when you leave hospital and makes sure you plug it in and get it working. I didn’t and at 10:15 on Sunday morning my chest emitted an alarm and scared the bejesus out of me. I really thought I was about to be shocked. Turns out, it just wanted to download data to the hospital and I hadn’t set the box up.
I have had my CRT-D implanted for a week now. It was switched on but I was told it wouldn’t have much impact until after my ablation. I now must wait 5 weeks for a ‘Wound Check’ and then I go on the list for AV Node Ablation.
I suspect I may have an issue relating to my Left Ventricle lead. It starting to look like it has been placed too close to my Phrenic nerve and every time it is switched on my diaphragm starts twitching and my nausea increases. I’m told this is fairly common and there are options for treatment and if necessary, have the lead relocated.
I have no medical training whatsoever and would never dream of giving and advise but I’m happy to answer any questions….. if I can.