CRT - D Pacemaker Part 4: My journey... - Atrial Fibrillati...

Atrial Fibrillation Support

31,229 members36,873 posts

CRT - D Pacemaker Part 4

14 Replies

My journey towards being fully CRT dependant continues.

My previous posts tell how I was opened up twice to get the CRT-D pacemaker into my body and wired up. Unfortunately, the left ventricle wire was touching the Phrenic nerve and I jump everytime the pacemaker kicked in a bit like the dead frogs leg attached to a battery. In the end they switched it off.

10 weeks latter I'm back in to be opened up for a third time. My EP wasn't taking any chances took along all the full pacemaker tool kit, two other EP's and an expert from the makers of the pacemaker. This was in addition to the other theatre staff.

The procedure should have taken an hour but took three hours and they finally got the wire in place. The next day I had the pacemaker configured and now, as I type this, the world is a far better place - even though my shoulder is on fire and I am doped up with pain killers.

I hope to have the CRT-D pacemaker fully switch on and working by Christmas. I had hoped to get some celebrity to do the actual turning on (like they do with Christmas lights) but this attempt at humour fell flat.

For those considering the CRT Option I would say go for it. It offers the best chance of getting back to normality there is.

Read more about...
14 Replies
Beehive1 profile image
Beehive1

Glad it went as planned this time. Hopefully the shoulder pain will ease off. Your reference to the frog transported me back to an incident involving a very naughty boy at school...

CDreamer profile image
CDreamer

Pleased to see you have retained your SOH, best wishes for a great recovery. x

pottypete1 profile image
pottypete1

It all sounds a great ordeal from start to finish.

I an glad you feel a lot better and I hope things continue to progress for you.

Sounds like you had a good team.

Best wishes

Pete

jeanjeannie50 profile image
jeanjeannie50

I have to admit I don't really understand anything about CRT-D pacemakers. Do they differ to a normal pacemaker? It sounds as though everything went well this time and I hope your painful shoulder soon eases. Why is there a wait before the pacemaker is fully switched on?

Best wishes for a healthy life ahead.

Jean

in reply to jeanjeannie50

Hi Jean,

I think I have got my head around this one.

My heart has dodgy spark plug and this means that it beats erratically. A CRT Pacemaker will essentially synchronise the beating of both ventricles, reducing the pressure within my heart and making it more efficient.

For this to work a CRT pacemaker is implanted in my chest and leads are placed into the right and left ventricles. After it’s all in place they will burn out my hearts natural pacemaker leaving me dependant on the electronic pacemaker for the rest of my life. (this is the bit that freaks people out).

The D bit stands for Defibrillator – it just sits there monitoring my heart waiting for a lethal heart rhythm to develop. If I do develop one of these rhythms it will shock my heart back to normality.

A normal pacemaker has one lead into the right ventricle (?). It works in conjunction with your own natural pacemaker. Kicking in when the heart beats drops down to a dangerous level.

Regards

Ogilvie

in reply to

I have a regular pacemaker 99% dependent on it. Got used to idea now

jeanjeannie50 profile image
jeanjeannie50 in reply to

Thanks for your clear explanation Ogilvie. It's absolutely amazing what can be carried out to the heart in order for us to feel better. I hope this will improve your life greatly and I'll be interested to hear you report back on how successful it is. Jean

Wesman90 profile image
Wesman90

I had a similar problem where they couldn’t get the wire in but by going through the groin and wrist two surgeons managed it

in reply to Wesman90

Hi Wesman,

Glad it all worked out for you. It sounds like you are a bit ahead of me. Can I ask, have you found the CRT pacemaker a benifit ?

Regards

Ogilvie

Wesman90 profile image
Wesman90 in reply to

I have for the best part of two years but now this node is interfering with it. Pace maker is running at 46% at the minute but will run me at 100% after node ablation

in reply to Wesman90

Hi Wesman,

Everything I read suggests that you will feel the benifit of being "more machine than man"!!

Just remeber to tell the wife that irons, hoovers, cookers are all out as they interfere with the pacemaker. TV remotes, beer fridges are all OK.

Cheers

Ogilvie

Wesman90 profile image
Wesman90 in reply to

Ha ha sounds about right. I am in on the 17 for ablation hope to be a lot better after that

Dodie117 profile image
Dodie117

Maybe Mick Jagger would do it and sing - Jumping Jack Flash.🙏

nickibmobile profile image
nickibmobile

I've got one too and it's been great, it was scary thinking it was reliant on a little box to make my heart beat but as my body wasn't doing it properly any more I soon got over that fear!! Unfortunately I still take lots of medication but overall I am happy, and I felt better immediately. Merry Christmas to one and all x

You may also like...

CRT - D Pacemaker Part 3

Right Ventricle. The lead to the right Ventricle is also the ‘shocker’ lead as well as the...

Pace and Ablate (CRT-d) Implantation Part II

beat too fast for the pacemaker to do it's job. They will leave the Pacemaker in place and turned...

Pace and Ablate (CRT-D implementation)

September) ? If they do switch it on wont my heart get confused as it will have two pacemakers...

CRT-D fall and Recovery.

I have had my CRT-D device fitted almost 4 weeks now. Everything is going well, no issues with the...

CRT-D Benefits Realisation

and Bisoprolol and this may take a few months to fully kick in. Ogilvie