Had my fifth AC appointment yesterday. Which was timed well as I had had my 24 hour halter and they had the results. The last twice we went to AC it had been moved a very long way from it's original place. so I plodded and rested my way there. Once we turned in to the ward it was empty! This is in the back and beyond of the old hospital so deep breath and we make our way back. Luckily there was a nurse walking towards us and we asked has AC been moved back to it's original base? "Yes" was the reply. Arrived on time and between gasps reported in, expected the usual long wait. but we had not long sat down and was called into the room.
I was asked how I have been feeling since the changes and I have felt better plus the swelling is not anywhere as bad as it was on the previous tablets. But my breathing does not seem any better? I added that I have now started my Vit D3 tablets on Monday. Once I got the cc'd letter from my 3rd visit stating my Vit D deficiency? "So your GP has not responded to the results from over 6 weeks ago?" It was obvious that he was not happy with that at all and scribbled on a separate note paper. "So you would not of known unless you got the letter from us to the GP?" I explained how I was summoned in to discuss why I had had so many tests but they did not say I needed anything as a result of them.
He then went on to talk over the 24 hour heart test and was happy that I am now in a better place with heart rate, it does show it having a flutter though the day but he does not think it now justifies a Pace and ablate. But a regular 6 monthly check up to keep it under control if needed.
I explained that the breathing has not improved, will it once the Vit D gets into my system? He did say that I may feel overall better as a result of the Vit D but the lungs will not improve. The combination of RLD, PH, Fibrosis and Paralysed Diaphragm can only go one way but it has to be kept in check as long as it can.
I am now discharged from Ambulatory Care. They have done everything they could to get me sorted out. It is just such a shame that my GP Practice does not seem to have the same commitment. This is not the first time they have not responded to test results. I called about a chest Xray to be told by reception I had a mild chest infection but had in fact double pneumonia!