Had my third appointment today at Ambulatory Care Unit. Went to the the first floor and into the unit ward to see it full of ladies in beds? I asked where is the Ambulatory Care unit ? To be given the name of the ward and how to get there. Well it seemed an age before I got to the named ward to look in and the place looked empty? Tried the door and it did not want to move so looked for someone to help me. Saw another room that looked like it had some life in there and asked to be told they are not part of the hospital but will ring though and ask for me. I was puffing hard by all the walking I had done so far so I think they felt sorry for me The Reception called the ward and got an answer so I went back and it was filled with 4 nurses and the door opened? Nice smile and named asked at the desk and told to sit further down the ward and wait. There were 2 men next to me who all said morning and they asked why I was there to find that they had both got clots on their lungs.
Called though to the Doctor who started to go though all the data she had and I explained that I have not been better at all and my legs have swollen badly since upping my diliazem to 240. Then to explain my GP has dropped me back to 120 as he is not happy with the swelling which is a side affect of the drug. Now I was expecting "He should not of done that!" to say I would of said the Sotalol was the best for your heart conditions but if the Lung specialist has said it must be the Dilitzem for the lung medicine to be absorbed, I think we should be looking at what is the key factor to your SOB Is the AF or PH the factor or is it the RLD and fibrosis and Paralysed Diaphragm or a combination of both?
She told me that I need to see another Heart specialist that knows more about the condition combinations I have. When she asked why I was not put into PR I explained they deemed me exercise intolerant and cancelled it. She then went on to explain that we have to find what is causing you the problem of the SOB. Is it you need conditioning (Overweight) Is it the Heart or Lung so I would like you to do a fixed Cycle Test. But before we do that I want the cardiologist to make sure you are on medicine that will control your heart? I do not always know I am in AF even when it shows on the ECG as a right wobble?
She went on to ask if I did have the Pace and Ablate to tell her that once they found PH it was cancelled. She said that sort of makes sense? I just have to wait for the cardiologist to sort my tablets out and then do the Tour de Midlands on the fixed cycle, I hope the seat is comfy