Nothing in what I write should be taken as a criticism of Rivaroxaban. It just doesn't work for me. Or rather I may be well anti-coagulated but it comes at an unacceptable cost, not the £2.10p a tablet cost to the NHS, but the excruciating aches and pains. Aches and pains whether I'm in bed, sitting, standing or walking. 3 weeks ago I could run, of a fashion, for the bus, and was generally active,. My AF was well controlled, thanks to Flecainide and not eating or drinking 2 foods which I consider to be triggers - coffee and soya. I've only had 2 thirty minute episodes in the last 19 months, both just before I was going to bed, and I was back in NSR when I woke up.
Now, to use a non-politically correct word, I feel crippled. The pains are related to pressure, like bed sores, but they never go off. When I'm out of bed I still have them. Sat in a chair by my PC I've pains in my head, neck, lower back, thighs, and legs. Paracetamol helps so I can get some sleep, but it only dulls the pain. Tonight I will take my last tablet. I'm seeing the doctor tomorrow. There's no way I'm keeping on it.
I fancy going back to warfarin. My INR didn't stabilise in 16 weeks. I'm thinking of buying my own Coaguchek machine, so I can test the effects of different foods, and find a diet suited to getting in the 2-3 INR range. Being single I eat when I want to, and what I want to. The only regular thing about my diet is that it's irregular, but if I can find foods which would keep me in range, I'd be happy to have a regular diet.