Anyone with Xofigo?: If you have got... - Advanced Prostate...

Advanced Prostate Cancer

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Anyone with Xofigo?

petrig profile image
6 Replies

If you have got Xofigo(Radium 223) what is your opinion about it.Did it work and how did the sideeffects effected your life?

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petrig
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6 Replies
MarylandGuy profile image
MarylandGuy

I won’t have much info for you but watching thread. I had my first injection seven days ago. The side effects have been nausea, vomiting and heavy fatigue. But I already had that from the cancer. The nausea and upset stomach are probably worse now though.

My prostate cancer is in many bone meta and apparently no where else. My pain has changed but I can’t say it is better or worse.

petrig profile image
petrig in reply toMarylandGuy

Hope it(Xofigo) will help you feel better later.🙏

Skoda1 profile image
Skoda1 in reply toMarylandGuy

I've had 3 injections. A massive increase in night pain which is getting better (I'm on zomorph and paracetamol). Some diarhoea, but generally no stomach problems. Hope these SEs soon disappear for you.

petrig profile image
petrig in reply toSkoda1

And for you.Hope so.🙏

DaveKY profile image
DaveKY

I am like several of your other replies, new to Xofigo. I am one dose in and get my next one tomorrow. I am 5+ years into prostate cancer with bone mets everywhere. Not much pain or fractures thank God, but high PSA, low blood counts and very fatigued. I have high hopes for Xofigo. Also on monthly Zometa for bone support.

I will stay on this thread and update best I can.

jedgar1 profile image
jedgar1

I am on Xofigo Extandi and Orgovix 1st treatment a week ago bone and muscle pain and just exausted. I have been taking 12 mg adderral and was fine until Xofigo it is like I never took it. Going to double dose see if it helps

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