New to Trelstar : Hi, new to this 1st... - Advanced Prostate...

Advanced Prostate Cancer

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New to Trelstar

preciousbz1 profile image
20 Replies

Hi, new to this 1st time posting..

Dr switched my Lupron 22.5 mg injection to Trelstar 11.25 mg said it was the same as Lupron and Eligard..injection was much less painful than Eliguard..

Does anyone have experience with Trelstar 11.25 mg and how did it work for you ??

Thank you

Bill Z.

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preciousbz1
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20 Replies
GP24 profile image
GP24

Did your doctor check the testosterone level? It could be that this did not get low enough with Eligard and therefore he now tries if Trelstar will work better for you.

preciousbz1 profile image
preciousbz1 in reply toGP24

thank you, my T level is 15 on Eligard..I'm looking for info from people on Treslstar it or was on it. thanks

GP24 profile image
GP24 in reply topreciousbz1

15 ng/dl is perfect. Make sure you get the same result with Trelstar. If not, return to Eligard.

preciousbz1 profile image
preciousbz1 in reply toGP24

Thank you

mcp1941 profile image
mcp1941

My first time on HT urologist used Lupron (8 months). Second time on HT radiologist used Trelstar (3 months) and was switched to Lupron (6 months) by urologist. Third time on HT urologist is using Eligard now in the 23rd month and counting. The only difference that I found was a lower number and less severe hot flashers when on Trelstar. My current urologist only offers Eligard and Lupron.

Mike P.

preciousbz1 profile image
preciousbz1 in reply tomcp1941

thanks Mike...

Beermaker profile image
Beermaker in reply tomcp1941

I was moved from Eligard to Trelstar about 6 years ago. I had taken a short "ADT vacation" and in 6 months my PSA was above anything we had seen before / after RP. The reason the Onc moved me was for fewer side effects. I have no real complaints about Trelstar. I hope to be on it another 20+ years unless something better comes along. I will stay the course. But then I did get put on Xtandi to try and extend the effectiveness of the standard ADT.

preciousbz1 profile image
preciousbz1 in reply toBeermaker

Thanks for the info, I've been on less than a week so far ok, time will tell.

Take care and have a Beer every night, I do.

Fairwind profile image
Fairwind

Sometimes doctors receive "rewards" for administering one drug over another. When there are competitive, expensive, drugs being offered, there can be lots of back-stage wheeling and dealing..

j-o-h-n profile image
j-o-h-n in reply toFairwind

Yep.... no more free pens.... only Vacations in the Bahamas...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 05/09/2019 11:24 AM

Break60 profile image
Break60

I switched from Lupron to trelstar and it worked fine but it was not covered under Medicare part B but Part D so I had a copay. So it cost me $. I think it had fewer side effects.

Mkeman profile image
Mkeman in reply toBreak60

My Medical Center went to Eligard across the Board. I was told they had “injector problems” with Trelstar...

But the Cancer Center pharmacist told me it was because Eligard was half the price.

preciousbz1 profile image
preciousbz1 in reply toBreak60

Thank you

Tommyj2 profile image
Tommyj2 in reply toBreak60

Unclear why the trelstar was covered under part D.... Does it NOT have to be injected in an MD's office ( almost without fail cancer medications that have to be administered by an MD are covered under part B)...

Break60 profile image
Break60 in reply toTommyj2

It does get injected by your doc but for some reason you buy it bring it to your doc and he injects it and it’s considered part D.

Tommyj2 profile image
Tommyj2 in reply toBreak60

THAT really sucks!!!.... These drugs are so damned expensive...you have to stay two steps ahead to not go bankrupt if you are only on part D.

Break60 profile image
Break60 in reply toTommyj2

Agree. Here’s an example. Wife needed eliquis while in France. 60 tablets cost $60. Here in US 60 tablets cost over $500 . We in US pay for research that the rest of the world benefits from but doesn’t pay for.

Tommyj2 profile image
Tommyj2 in reply toBreak60

You are REALLY preaching to the choir when you talk to me about inflated US drug prices..... I"ve been on THAT soapbox for decades!!...... Why, for example, can you get generic Zytiga for 160.00 in India and here it is, at minimum, 2000.00

a 10 fold difference is common...often even more.... AND worse still...IF you buy your meds out of country SO that you can afford them they are not countable against your part D Out of pocket expenses.... I really cannot afford to have this disease AND any quality of life..... Have to hope that Lupron ( which is covered under part B) works for me without too many untoward side effects.....

Break60 profile image
Break60 in reply toTommyj2

Hopefully Trump moves forward as he says he will to reduce prices Medicare pays for drugs. I see ads on tv by pharma imploring us not to approve this legislation. While I believe that pharmaceutical research is necessary, the whole world should pay its share not just Americans.

Tommyj2 profile image
Tommyj2 in reply toBreak60

OR it needs to be made easier to acquire drugs from reliable sources overseas.... Have the distinct impression that whatever legislation is proposed it is NOT going to really address the issue this time around.... and you are quite right... the pharma lobby will spend billions to convince americans that any drop in drug prices will stifle innovation and we will be stuck with the same old drugs...rather than those wonderful new ones that NO one can afford..

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