PSMA scan came back with 4 uptakes in upper spine. No spec like SUV but the writings on the scan. I think we found it. Have my quarterly appt tomorrow but MO is sure its the cancer we are looking for that's causing my increasing PSA. So yay? I am guessing if there's a preferential location for recurrence this wouldn't be it. Most recent PSA test result came in this morning at 3.36 so that means my DT is slower by almost .5 months. Additionally my CBC and CMP #'s are the best they have been ever maybe. No lows or high #'s in any category so again, yay? Too little, to late.
Anyway doing some research for my Dr visit tomorrow. Has me asking a new question. What's better Hormone Sensitive Metastatic Disease or Castrate Resistant Non Metastatic Disease. Non metastatic seems like the clear winner but the CR part....?
Went for a bike ride today and started out in the sun and ended under dark clouds. I called it From Under the Blanket. Kind of symbolic of this recent scan process.
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That would be the hope but it's all about the details. I was consider non-metastatic based on conventional imaging but my curative treatment was not a cure. Now I am Hormone Sensitive Metastatic which is a less common disease state I guess as all the advertisements for 2nd gen drugs are focused on CRPC non metastatic. I knew, as did my Dr, from the beginning there was a chance I was metastatic but conventional imaging did find anything and the insurance company refused the Axumin PET. No guarantee that one would have found it either though and Dr kept saying it wouldn't change the treatment but that wasn't exactly true though as I know now.
Yeah mHSPC at dx kind of slipped my mind when reading about the 2nd gens. I am kind of thinking about pushing for Daralutamide as my experience with Zytiga wasn't great and I keep hearing bad things about Xtandi on this forum.Nice profile, thanks for sharing all that info. Thats quite a bit going on in such a short time. Seems like its under control as far as your PSA and T so surprised your getting so much pain. But TA has said PSA matters less once your metastatic so scans take the lead in treatment.I feel discomfort in my neck and shoulders but moved a lot of furniture last weekend and hoping thats it. I am sure every ache and pain I feel in my shoulders going forward will make me think its my mets.
Hopefully, your neck and shoulder discomfort will ease over time. I hear you about thinking every ache is due to a met. I'm sure some of it is the natural ageing process and just our bodies telling us we need to slow down a bit!
Apart from the brief vertigo episode before Xmas, I have tolerated Xtandi very well - just the usual hot flushes and late afternoon fatigue (nap time!). Also, my bone pain has reduced considerably now but I do get discomfort from the pelvic bone met when I sit for long periods (have to take a cushion when I go out) and I have to be very careful using my exercise bike so I'm going to have some palliative RT to that shortly.
Thanks. I doubt it is as it feels muscular. My son was helping me and I assume he is stronger than me by now but it doesn't appear to be the case as I had to do mosyt of the heavy lifting I have a massage appt Monday so I am pretty sure the kinks will get worked out.
I will be back on ADT soon so still keeping the orch in mind now that I am pretty sure there won't be any vacations in my future. But I'll reserve that decision for down the line a bit,
Hey guy! Is that an oil rig or a boat? I’m praying that you can find a fix very soon . Riding the bike and stayin* active is amazing . Stay strong amigo!😔🙏
That's a large tug, used for oil tankers. The clouds felt like a blanket and the sun in the distance was beautiful. This was before the heavy rain drops hit. Yes I plan to step up my exercise again and partially or fully retire this year. Hopefully the ADT kicks it down for a long time to come.
That is a large tug! Wow! .. go Adt! I did it for 8 yrs and six yrs after the orch I was still on the Tak . I quit it 9 months ago. No t no Psa ! ? Nobody knows tomorrow . Live for today . Retire ASAP, if you can? ✌️😎
” Moving on up” reminds me of the Jeffersons theme. Moving on up , to the east side , to that deluxe apartment in the sky! Man i loved that show . We need comedy like that today! Keep the tree up amigo .Hang in there . Love life ! ❤️🙏
No doubt that song was lurking in the back of my mid when I typed it :). And not thinking of the apartment in the sky yet. Maybe the compartment in my pants getting bigger
I m waiting for 1 more dt....been a nice slow crawl..for 4.5 years but doubling now ever 6...numbers on other side of decimel now...the lupron / erleada has about run its course...most of us in here know we are just trying to milk it for all we can....good luck....i went to paris with side trip to le mans....lots of history...
Thatsvwhat it feels like. I am not currently on any drugs as I was hoping for the cure. About six months ago my DT started to increase and hit 1.3 months. So the writing was on the wall but had to wait to hit 2.0 to call it official and get the PSMA and probably the drugs anyway. A little over 3 now but my current nomogram shows DT at 2.2 months so has been slowing down. Nothing relevant but interesting to me.Paris and Lemans sounds awesome.Soembody I know is heading to Paris next year for Olympics. Lucky SOB.
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I have a massage appt Monday so I am pretty sure the kinks will get worked out.
How to pay for Provenge?
Feeling a bit disheartened...
Update on PARP inhibitors
Does having bone mets while on Lupron and Zytiga mean castrate resistance? 
Psa doubling time 
