Let us share in No Manland betwwen Remission and recurrence

[Karmaji]

Let us share our adaptive therapies after remission, waiting for Recurrence.

It seems medical therapies are nonexistent after Remission,waiting recurrence, , at least in my case. Luckily at 81 years, cancer cells are also pretty old like other cells.

My URO, ONCO,RO just shrug their shoulders on this topic which does not interest them.

Big Pharma are waiting for recurrence to sell expensive molecules. Docs are just propagators of this process.

I see no studies or therapies to keep cancer cells in senescence and kill them....

A must field and there we are the actors as docs have walked away.

There are a lot of supplements, off-label drugs, health style, diet, mental attitude.

Remedies are not only based on Clinical studies which are limited and serve big pharma. Supplementary therapies are as important as clinically verifies therapies.

Using Acupressure My hot flashes are reduced by 50 %....Nobody will do clinical study as it is free for all. Just google menopause hot flashes.

Look for senolytics supplements....etc....

I believe in adaptive approach and personal observation studies....not one fits all.

And I am the witness of my inner self....if I observe well within.

It will be very useful to share how we chose certain personal therapies and supplements to stay in remission.....

Which markers to observe besides PSA Testo

[Karmaji]

We need feedback from our friends on this forum like you. Thanks for all your valuable insights which we need when all protocols leave patient in a desperate state waiting for remission.......

What a medical corps we have !!

So let us take in our hands to keep remission in remission.....

A lot we can do but won't get any help from docs victim of protocols and trapped in ignorance !!

We are not lambs waiting for recurrence....abandoned !

It has to change .....

[pjoshea13]

Quite likely, what is good during active surveillance, standard care & remission, is mostly the same. IMO. My posts over the past 5 years have addressed:

- Inflammation

- Blood Coagulation & Metastasis

- Vitamins

- Minerals

- Supplements

- Hormones

- Dietary associations

- & numerous other topics

None of which is of interest to some unless recommended by their doctors. But there is a vast array of info on Pub Med & many do find it interesting. I have over a thousand posts, so its difficult to quickly point to my top ten, say.

I wonder how many here are in remission? Not a state that I ever expect to be in, & I thought it uncommon for men with mets.

Best, -Patrick

[Karmaji in reply to pjoshea13]

Share what u mean....remission and your stateWhat is remission then ?? Thanks with affecttion

[Karmaji in reply to Karmaji]

you are so invaluable to us all like Nala ji and others

[pjoshea13 in reply to Karmaji]

My state, for about 10 years now has been alternating between high testosterone & no testosterone. PSA goes up & then goes down again - so far.

Remission would be nice - no drugs & no change in PSA.

Dr. Myers mentioned durable remission in a couple of patients that could stand ADT no longer. As testosterone [T] recovered, PSA rose. But by the time T was at 350 ng/dL, the PSAs had stopped rising. So remission doesn't mean PSA must be zero. Myers said that the men were very nervous as the PSA increased (not surprising) - and that he was too. Seemed that he did not encourage patients to do this.

Best, -Patrick

[Karmaji in reply to pjoshea13]

what a journeydifficult to travel with u

Many thanks for all your insights and service to us all

Well ... we are a brotherhood commune

facing PC scorched earth medical world...

In our collective way thru observation trials

as PC is so heterogeneous and needs adaptive mind set...

And our members are image of PC cells... diverse and complementary....

[Spyder54]

Karmaji,At 81, your warrior spirit is alive and well. Your question above so pertinent to survival.

Nalakrats and Patrick and Tall Allen are 3 of the brightest and well researched on this site.

In response to Patricks comment above, I would add my 2cents. Only 2cents. Take it or leave it.

Inflammation: Tumeric + Pomi-T (pomegranite,Green Tea, Broccoli, Tumeric

Blood Coagulation: 81mg St Joseph baby aspirin

Vitamins: B12, D3

Minerals: Zinc to transport and deliver

Supplements: Cranberry for bladder health

Hormones: Firmagon, Zytiga + Prednisone

Dietary Associations: Plant Based (not Vegan) as Cancer thrives in an Acidic environment, and struggles in a Ph/Alkalide environment.

I hope one day soon for a Prostetechtomy, and a Hormone vacation to once again feel my strength and stamina, and other manly feelings return.

Our best to you and yours.

Slainte’,

Mike K

[Karmaji]

Please more on protein messenger and how to kill...not same as killing PC cell

[Karmaji]

thanks...I will

[TwilightZone]

This subject has been on my mind for the last 5 1/2 years, glad I'm not the only one.

[dublin1717]

So glad you guys are posting this info, I’m really trying to take it all in and learn as much as I can for my hubby.

[Karmaji]

It may be some information has been posted earlier. When we go thru the posts

the choice of supplements varies from one person to the other.

From few supplements to a list of 20-30 supplements.

The personality of PC cells is also very heterogeneous.

Still it may be useful to simple readers to have a sort of simplified map of supplements.

Choice of supplements is like an Ali Baba box.....

We have very competent friends on this post who may help us regarding this.

Also, a simplified guideline for Blood test besides standard tests may be useful.

This forum is very therapeutic for mind and body and sure for combatting PC with his many faces and dangers.

[KingNeptune]

I listen.

[Garbonzeaux]

Nal,

I think that you and Patrick have many more listeners than you know.

[Hailwood]

You are 81 and have survived/lived through prostate cancer and again I say you are 81. Be thankful for 81 years. I hope I never live long enough to rant.

[Mikeski]

Everything Nalakrats says, and enjoy and cherish each day you’re in remission!

[Karmaji]

See Nala ji how much you are loved.....What a joy to have you among us....

[Karmaji]

Life is not thru numbers but thru mind set..mind never ages....

One moment well lived is eternity

Long life lived ranting is a waste

[Spyder54]

Beautiful words above Karmaji “mind never ages”, “One moment well lived is eternity”. I embrace Eastern medicine, Western medicine, Hormones, Supplements, Family, Love, Laughter, Excercise, sending blessings, embracing the power of the mind to heal. “It all works, yet nothing works well” is my latest thinking. Perhaps the combination of all of the above will be enough. I believe that cure is close. We simply need to survive long enough to experience. It is probably right before our eyes yet needs to be revisited. This site is so inspirational. Enjoy this journey,

Mike K

St Pete, FL