Let us share our adaptive therapies after remission, waiting for Recurrence.
It seems medical therapies are nonexistent after Remission,waiting recurrence, , at least in my case. Luckily at 81 years, cancer cells are also pretty old like other cells.
My URO, ONCO,RO just shrug their shoulders on this topic which does not interest them.
Big Pharma are waiting for recurrence to sell expensive molecules. Docs are just propagators of this process.
I see no studies or therapies to keep cancer cells in senescence and kill them....
A must field and there we are the actors as docs have walked away.
There are a lot of supplements, off-label drugs, health style, diet, mental attitude.
Remedies are not only based on Clinical studies which are limited and serve big pharma. Supplementary therapies are as important as clinically verifies therapies.
Using Acupressure My hot flashes are reduced by 50 %....Nobody will do clinical study as it is free for all. Just google menopause hot flashes.
Look for senolytics supplements....etc....
I believe in adaptive approach and personal observation studies....not one fits all.
And I am the witness of my inner self....if I observe well within.
It will be very useful to share how we chose certain personal therapies and supplements to stay in remission.....
Which markers to observe besides PSA Testo
Written by
Karmaji
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We need feedback from our friends on this forum like you. Thanks for all your valuable insights which we need when all protocols leave patient in a desperate state waiting for remission.......
What a medical corps we have !!
So let us take in our hands to keep remission in remission.....
A lot we can do but won't get any help from docs victim of protocols and trapped in ignorance !!
We are not lambs waiting for recurrence....abandoned !
Quite likely, what is good during active surveillance, standard care & remission, is mostly the same. IMO. My posts over the past 5 years have addressed:
- Inflammation
- Blood Coagulation & Metastasis
- Vitamins
- Minerals
- Supplements
- Hormones
- Dietary associations
- & numerous other topics
None of which is of interest to some unless recommended by their doctors. But there is a vast array of info on Pub Med & many do find it interesting. I have over a thousand posts, so its difficult to quickly point to my top ten, say.
I wonder how many here are in remission? Not a state that I ever expect to be in, & I thought it uncommon for men with mets.
My state, for about 10 years now has been alternating between high testosterone & no testosterone. PSA goes up & then goes down again - so far.
Remission would be nice - no drugs & no change in PSA.
Dr. Myers mentioned durable remission in a couple of patients that could stand ADT no longer. As testosterone [T] recovered, PSA rose. But by the time T was at 350 ng/dL, the PSAs had stopped rising. So remission doesn't mean PSA must be zero. Myers said that the men were very nervous as the PSA increased (not surprising) - and that he was too. Seemed that he did not encourage patients to do this.
You are 81 and have survived/lived through prostate cancer and again I say you are 81. Be thankful for 81 years. I hope I never live long enough to rant.
Beautiful words above Karmaji “mind never ages”, “One moment well lived is eternity”. I embrace Eastern medicine, Western medicine, Hormones, Supplements, Family, Love, Laughter, Excercise, sending blessings, embracing the power of the mind to heal. “It all works, yet nothing works well” is my latest thinking. Perhaps the combination of all of the above will be enough. I believe that cure is close. We simply need to survive long enough to experience. It is probably right before our eyes yet needs to be revisited. This site is so inspirational. Enjoy this journey,
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