It is with sadness that one of the tests for the ORIC-944 trail came out with a cancer in bladder. That kicked me out of the trial.
I don't know what is next but this complicates future treatments. Above all else, I have survived this disease for 31 years. For the most part it's been good quality life. I'll keep up the good fight.
Magnus
Sorry to hear that, hopefully your able to hold it at bay as well as you have with PC.
more power to u .
So sorry to hear this bad news. Fight on!
You handle the BC the way you do PC Magnus, and I see another 31 years !!!
i know two people who removed their bladder cancer. One was in CA Andy the order was at Georgetown university medical. Let me know if you want me to try and track down their names.
Hello George , can you please provide me more details ..
One was at Georgetown University system and he used a technique that put chemo into the bladder and then he and other nurses shook his body for several minutes, to ensure that the entire bladder had been saturated with the chemo. The chemo was a certain temperature, around 109 degrees, as well. I don't know the name of the doctor there and I don't know where my former colleague is. We used to sit near each other in the Pentagon.
The other doctor was in the San Diego area. I just texted my friend who had that bladder cancer treatment. I'll let you know when I find out the info on their doctor or hospital.
thank you
Thanks for the info!
Yes, you're an inspiration, keep on fighting.
Keep after it brother
you will find something-just do what you do!
I'll keep up the good fight. My son and I are big fans of yours. In some of our darkest moments, we have found encouragement in your replies. So, when I read of your determination to fight on in spite of being knocked off the trial, I was reminded of what someone said: " If you want to change the world, you must be the very best in your darkest moment". --William Harry McRaven. Let's change the World.
Hopefully this is just one more bump in the road for you, to be treated like all the other bumps.
My man ... I'm saddened to read this! But I know you'll just treat it as a side step, and will Keep on Truckin'
All the Best!
Keeping fighting and beating those little Bass Turds with all you’ve got. You’re such an inspiration and my prayers are with you.
Sorry to hear this news, keep up the fight!
Magnus,
I am so sorry to hear the news. But, you are a proven warrior and I absolutely believe you will fight this successfully.
Darn Magnus, that is some tough luck. I sure hope you find something else.
Sorry to hear this. Hopefully you will have a good outcome. Best Wishes
I'm really sorry Magnus, another kicking, after 31 years of pc, you are an amazing fighter, I pray that you've got enough left to do battle with this one too.
I wish you well.
Phil
I'm so sorry to hear that, Magnus...sending prayers and good energy your way!
In solidarity,
Sunlight
Magnus, I'll pray you find another horse to ride that's just as promising.
You Got This Magnus!!! You are one tough WARRIOR!!! You've fought 31 years!! That's AMAZING!! I'm s0o proud you've lived mostly all good quality years. I know you can get many more quality years. I'm routing for you all the way🤗 🌻Jackie
Magnus, after 7 years of pc, I was diagnosed with colon cancer. Having 2 cancers is bad luck, but they're treated quite separately and one doesn't affect the prognosis of the other (as far as I know)You will remain an inspiration!
Sorry about this. My prayers are with you and am confident you will overcome. Remain positive and hopeful for a successful outcome please.
you can beat this Magnus! You are a legend!
Hey, Magnus! It's been a long time since last I wrote you. I've had Gleason 9 stage IV de novo metastatic prostate cancer since 2015. A few years back I thought I had added bladder cancer to my mix, but it turned out that it was metastatic prostate cancer in my bladder. They cut and cauterized all the growths in there and, so far, they haven't grown back. I'm guessing your cancer there is in the urothelial cells. You are a model for all of us men on this site. You'll deal with this just like you've dealt with your prostate cancer: victoriously! Nobody can keep down the "Canberra Kid"!
Hello Scoofer,
Was a TURB procedure done to remove the growths?
TransUrethralResectionoftheBladder, or TURB seems like that would be the correct name for what my Surgical Urologist did for me. Last time they looked in there, via Cystoscopy, there were no growths reoccurring! I'm supposed to notify them if I ever begin peeing blood as, I guess, that's the sign that they're back. But... so far so good! Thanks for your interest, Naples2021!
What was mystery drug in 2017 on your profileThat sounds good
I have forgotten, it was a complimentary drug to extend the efficacy of xtandi. I don't think J&J had much success with it.
You've got this Magnus. Sending you positive vibes.
Sending you whatever you need most- strength, calmness, light, hugs... Your posts and replies have been of such light to so many here. Hoping we can all be that for you in these replies💙
Hello Magnus
I think you have to push them all the time to allowed you to this trial ,do not give up just call them and write all the time in a good manner.
31 years!! That is so great!!
Keep going mate. Hopefully some of the above posts help 🙏
Thanks for sharing, praying for wisdom for your next steps.
You will rise above this! I have all the confidence in your ability to fight this.
It's been a long and winding road for you. You are an inspiration and a great example of someone who never gives up.
Kay 🙏🙏🙏
Oh Magnus that is a disappointing development. Surely you will carefully explore options and navigate the best path forward. Paul
Oh no! I'm sorry to hear that bastard has spread. You are my ray of hope in all this, so you just go kick it there too!!
Spirit is something that nothing destroys.
Very sorry to read this sir.
obviously you don’t give up. 31 plus years with PC has to be a record.
You've been a bright light of hope here Mag... You're indeed a living legend... You'll pull through this, I have no doubt... 🙂🙏
31 years......... that's a hell of a lot of bananas (one every day)....Let's hope and pray that your bladder issue is not Magnus but Anti-Magnus........
Good Luck, Good Health and Good Humor.
j-o-h-n Friday 07/07/2023 7:00 PM DST
Damn! I'm still betting on you! Remember how far you've come, not just how far you have to go. 🦊
Sorry to hear they found cancer in your bladder. The cancer in my prostate entered my bladder too. Chemo and ADT had no effect on the cancer in my bladder but a TURBT and VMAT radiation worked. I hope you have success in getting on top of this latest challenge, cheers 😎DD.
"I'll keep up the good fight".... I am sure you will, you have been an inspiration and source of solace for so many of us hear...you have put up a great fight so far and are destined to do so going ahead.
very sorry to hear this but you have courageously shown how to cope with PC so I have no doubts you will do the same with BC. Best wishes and best of luck
Best of luck, Magnus! You've come this far, don't let this discourage you.
Magnus, be strong no matter what! My prayer to you. From Taiwan Mark
Magnus, I'm sorry to hear this, but I know you can handle this after all your other battles, and I'll pray for you to do so.
Bummer. You and the docs will figure out a way to overcome and keep marching on.
correction "actinium-225"
Hi Magnus. Look up 'bladder cancer' + ' hyperthermia' + 'Professor John Kelly'. Seems to be a good solution and should cost as much as a can of beans... Or two....
Thanks for the heads up. This is interesting.
Hyperthermia - absolutely!... Sit in the hottest bath (with Epsom salts) you can tolerate until the water cools... Do it as often as possible... Your bladder region is submerged and may prove beneficial... I do this 4-5x a week...
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