Diagnosed 2008 and had robotic surgery. Prostate bed irradiation 5 years later when PSA started to rise, then was undetectable for 4 years. Then had spread into 4-5 retroperitoneal lymph modes. Been on Lupron 3 years, and recently PSA started to go up again. 3 weeks after starting Daralutamide PSA is undetectable again.
Pretty happy with where I am after 12 years. Keep on fighting guys!
Hugh
Great news, keep up the good fight.
Gotta pay the cost....to be the boss...
Keep under the radar Hugh! 💪
Happy for you
Best of luck!!
You dont have to sing the blues...Grand Funk Railroad!!!
What about Grateful Dead?
Many Blues Songs....Cumberland Blues one of my favorites
Love them too
You know who were a great blues band...Fleetwood Mac in late 60's early 70's....with Peter Green!
Sure
Used to see Mayall weekly in London for months - with Clapton and Green. Left UK in 68
Wow was going to mention Bluesbreakers...My collection started with The Blues👍
Was in college 62 to 68 in London
Must have been some experience I am tried and true NY...went to college in city 1968...Saw Many concerts!!!...Special Times
A day on the green, Oakland, 1976. Fleetwood Mac, Peter Frampton, Gary Wright and more. I'll never forget what I can't remember.
That must have been special!!!
I am grateful, and I love them!
Great 👍🏼 Success . Keep going with gratitude 🙏
Kudos 👏👍
Yes Hugh!
Great news brother 💪💪💪👍👍👍
Great news!
Great news, keep fighting the good fight!
Did they discuss the benefits of daralutamide vs say Xtandi?
Got approved for it even though have some nodal mets. Was told fewer side effects, and specs are better than other secondary drugs
Thanks, good luck
How high did PSA get after RP?
Was undetectable for 4+ years after RP. When rose, had prostate bed irradiation after which was undetectable again for 3-4 years
Hugh
I was wondering how high you allowed PSA to get before having next treatments?
It was around 5 before starting the Daralutamide
How high did it get after RP and before radiation?
Not certain. Pretty much as soon as it was obvious that it was going up it was decided to do prostate bed irradiation, after which it became undetectable for 4 years.
I had one dirty margin at surgery fyi
Thanks. That's useful info. I had a 7.5 year remission after salvage radiation a year after RP. 3+ years ago I had more radiation (lymph nodes outside the local area) plus Taxotere plus 9 months of Lupron, and I'm in remission again. Each time, I started treatments when PSA was very low but doubling every 6 months.
Sounds good Ron.
Good luck for the future
Hugh
You too!
I hate the word remission, for in fact for advanced prostate cancer, it does not exist. Once the bastards have spread, you buying time, PC cells just go to sleep while on hormone treatment until the smart buggers figure it out and eat you alive.
I love the word “remission”. To me it means more time!
Hugh, you are an inspiration!
Sail on, one handed sailor. I admit, I'm afraid of the water. Jaws didn't help.
Lawrence Welk.....and the bubble machine...
Good Luck, Good Health and Good Humor.
j-o-h-n Thursday 10/01/2020 6:26 PM DST
good stuff, wish you had gone on intermittent HT initially instead of staying on lupron the entire time, keep at it
Not something that was suggested to me. Have read about it. Dr a mostly SOC guy at a good hospital, although I add a couple of snake oil meds of my own.
Great news!
Hugh, sounds like you are doing all the right things, keep it up. Hope you will get back to sailing this winter. wish I was down there with you. JJ
Thanks JJ. Yes, planning to leave by end of October - have been off the boat for almost 2 years now. Think there's one last trip left in me!
Your post describes my husband's PC journey to a T. Best wishes to you!
Thanks. To him also
Officially Undetectable 
BCR after 14 mos of undetectable PSA
Post prostatectomy/ PSA remains undetectable
Undetectable PSA with bone lesions? 
