Undetectable again!

[Blueslover]

Diagnosed 2008 and had robotic surgery. Prostate bed irradiation 5 years later when PSA started to rise, then was undetectable for 4 years. Then had spread into 4-5 retroperitoneal lymph modes. Been on Lupron 3 years, and recently PSA started to go up again. 3 weeks after starting Daralutamide PSA is undetectable again.

Pretty happy with where I am after 12 years. Keep on fighting guys!

Hugh

[Magnus1964]

Great news, keep up the good fight.

[Boywonder56]

Gotta pay the cost....to be the boss...

[Hidden]

Keep under the radar Hugh! 💪

[JNunes]

Happy for you

[tango65]

Best of luck!!

[SPEEDYX]

You dont have to sing the blues...Grand Funk Railroad!!!

[DarkEnergy in reply to SPEEDYX]

What about Grateful Dead?

[SPEEDYX in reply to DarkEnergy]

Many Blues Songs....Cumberland Blues one of my favorites

[Blueslover in reply to SPEEDYX]

Love them too

[SPEEDYX in reply to Blueslover]

You know who were a great blues band...Fleetwood Mac in late 60's early 70's....with Peter Green!

[Blueslover in reply to SPEEDYX]

Sure

Used to see Mayall weekly in London for months - with Clapton and Green. Left UK in 68

[SPEEDYX in reply to Blueslover]

Wow was going to mention Bluesbreakers...My collection started with The Blues👍

[Blueslover in reply to SPEEDYX]

Was in college 62 to 68 in London

[SPEEDYX in reply to Blueslover]

Must have been some experience I am tried and true NY...went to college in city 1968...Saw Many concerts!!!...Special Times

[monte1111 in reply to SPEEDYX]

A day on the green, Oakland, 1976. Fleetwood Mac, Peter Frampton, Gary Wright and more. I'll never forget what I can't remember.

[SPEEDYX in reply to monte1111]

That must have been special!!!

[monte1111 in reply to SPEEDYX]

Told my wife years later that I wished I had seen Fleetwood Mac in concert. She looked at me and said "You did, you dumb ass." Those were the days. You never get a hangover, if you don't stop drinking.

[SPEEDYX in reply to monte1111]

😂...they remember everything

[Blueslover in reply to DarkEnergy]

I am grateful, and I love them!

[Hidden]

Great 👍🏼 Success . Keep going with gratitude 🙏

[Haniff]

Kudos 👏👍

[StayPositive1]

Yes Hugh!

[Kaliber]

Great news brother 💪💪💪👍👍👍

[GreenStreet]

Great news!

[harryb48]

Great news, keep fighting the good fight!

[podsart]

Did they discuss the benefits of daralutamide vs say Xtandi?

[Blueslover in reply to podsart]

Got approved for it even though have some nodal mets. Was told fewer side effects, and specs are better than other secondary drugs

[podsart in reply to Blueslover]

Thanks, good luck

[ron_bucher]

How high did PSA get after RP?

[Blueslover in reply to ron_bucher]

Was undetectable for 4+ years after RP. When rose, had prostate bed irradiation after which was undetectable again for 3-4 years

Hugh

[ron_bucher in reply to Blueslover]

I was wondering how high you allowed PSA to get before having next treatments?

[Blueslover in reply to ron_bucher]

It was around 5 before starting the Daralutamide

[ron_bucher in reply to Blueslover]

How high did it get after RP and before radiation?

[Blueslover in reply to ron_bucher]

Not certain. Pretty much as soon as it was obvious that it was going up it was decided to do prostate bed irradiation, after which it became undetectable for 4 years.

I had one dirty margin at surgery fyi

[ron_bucher in reply to Blueslover]

Thanks. That's useful info. I had a 7.5 year remission after salvage radiation a year after RP. 3+ years ago I had more radiation (lymph nodes outside the local area) plus Taxotere plus 9 months of Lupron, and I'm in remission again. Each time, I started treatments when PSA was very low but doubling every 6 months.

[Blueslover in reply to ron_bucher]

Sounds good Ron.

Good luck for the future

Hugh

[ron_bucher in reply to Blueslover]

You too!

[billyboy3 in reply to ron_bucher]

I hate the word remission, for in fact for advanced prostate cancer, it does not exist. Once the bastards have spread, you buying time, PC cells just go to sleep while on hormone treatment until the smart buggers figure it out and eat you alive.

[ron_bucher in reply to billyboy3]

I love the word “remission”. To me it means more time!

[CalBear74]

Hugh, you are an inspiration!

[Blueslover in reply to CalBear74]

Thanks guy. We're all in this together.

Good luck

[monte1111]

Sail on, one handed sailor. I admit, I'm afraid of the water. Jaws didn't help.

[j-o-h-n]

Lawrence Welk.....and the bubble machine...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 10/01/2020 6:26 PM DST

[billyboy3]

good stuff, wish you had gone on intermittent HT initially instead of staying on lupron the entire time, keep at it

[Blueslover in reply to billyboy3]

Not something that was suggested to me. Have read about it. Dr a mostly SOC guy at a good hospital, although I add a couple of snake oil meds of my own.

[samahieb]

Great news!

[Hobierat]

Hugh, sounds like you are doing all the right things, keep it up. Hope you will get back to sailing this winter. wish I was down there with you. JJ

[Blueslover in reply to Hobierat]

Thanks JJ. Yes, planning to leave by end of October - have been off the boat for almost 2 years now. Think there's one last trip left in me!

[User2008]

Your post describes my husband's PC journey to a T. Best wishes to you!

[Blueslover in reply to User2008]

Thanks. To him also