The past two weeks have been the hardest of my dads whole cancer journey. Since his diagnosis 4+ years ago, he has often expressed his worst fear is cord compression and paralysis, and here we are. His worst fear has come true.
He has lost all power and control from mid-belly down. He has lost control of his legs, hips, bowels and bladder.
I have never seen him so distraught and unhinged. We don’t know how to support him bc nothing seems good enough anymore. He is beside himself. He can no longer live on his own so we’re finalizing arrangements for a nursing facility as he needs full-time nursing care.
Looking for other stories of cord compression and advice on how to deal, or how you adapted to your new body.. there are so many layers to this it’s so hard to navigate.
Thank you 💜
Stefanie
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Related to spinal cord / disk compression ( I think that’s what you are saying ) …… my friend Mark fought aPCa for well over 22 years and in that time had several spinal cord issues caused by collapse - compression of disks that were eaten away from PCa . In all cases he had implanted stainless steel spinal metal rods ( in 3 different places ) that fixed the problem and allowed him to regain normal life again. One set of rods , implanted in his neck , kept his head upright.
Of course only your medical team knows , for sure, what will help your father … just saying that in similar sounding issues with spinal aPCa attacks, there have been successful remedies to allow return to regular daily activities. Your medical crew will have the best answers because they are the most familiar with his particulars.
I hope your father’s doctors can quickly find a way a way to help your father to return to normal activities.
❤️❤️❤️
So sorry to hear this. Also one of my greatest fears, and as I lie awake in bed most nights with severe leg and pelvic discomfort, I pray that it's only neuropathy and will subside.
I'm living with the same issues, but my leg muscles work, so i can move my legs. Other than my leg numbness, I too lost bowels and bladder control. I have a catheter and my lovely wife has extract the bowel manually. It is miserable.
Lupron for 90 days now and Xtaldi for 30 days. Theres is a freaking knife in my upper back that radiates to the chest. Instant anxiety attack with that feeling, went to the ER. They said the heart was ok. The feeling was of spinal stenosis x5. UGH
I thank you all for your replies. I was naive to think that it was only a cord compression. My dad passed away yesterday. He expressed within the last week he was ready to go, he was not himself. It was too much. He passed peacefully yesterday surrounded by family and in a special place that was near and dear to him, exactly how he wanted. So grateful we were able to give him his wish.
I am so sorry to hear this. It seems you and your family did all you could and were by his side thru the struggle. I hope you all can regain some peace of mind knowing he is no longer dealing with the struggle of PC.
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Compression fracture or something worse?
