I decided to zig with Pluvicto

[Jamesjohn63]

Hi everyone,

I had a bone scan and and CT can yesterday at SDMI in Las Vegas. I had an appointment for a consult for Xofigo but decided to cancel since I have a consult for Pluvicto in SLC wend. (a long ride from St George) The fact I have only two mets identifiable (my L-2 and in my pelvis was part of the decision.... I already had Docatoxel a couple years ago and I am on Orgovyx and Erleada. PSA was negligible but has spiked up to 2.5 in the last few months. I feel fine and walk four miles up and down the hills of Central Utah at sunrise seven days a week. FYI my feet were bothering me so I discovered Injinji toe socks, highly recommended!

[NWLiving]

So glad. I think it is going to be so helpful during earlier stages as well.

[Yadifan]

The agony of having to decide is over for you! This is good news. We went through the same decision battle a couple of months ago.

My husband had his first Pluvicto today. So far so good. The hardest part for him was the CT scan. I wasn't able to be with him during the administration of it. There was a 2 hour wait after and then the CT scan to make sure it was moving through his system. He has bone pain that makes it difficult for him to have these tests. But so far no nausea.

Best of luck to you. Keep us posted. I'll do the same. Seems like there's a lot of us on this journey.

[Jamesjohn63 in reply to Yadifan]

I will, thank you and see the faith!

[Ramp7]

I hike 3 miles each morning the low hills in the Berkshires. Just completed my 6th infusion of Pluvicto at Dana Farber. At the beginning of the trial my PSA was 8.1 with 2 metastasizes, one on L4 the other in left groin. By the second infusion PSA was 0.19. Well tolerated, fatigue is noticeable but dissipates after a few days. My red blood count goes down so complete recovery takes a few weeks, energy wise. Best of luck on your journey.

[Jamesjohn63 in reply to Ramp7]

Hi that is great to hear. Someone in this forum said that if the PSA does not go down, it does not mean it is not working. However your information is encouraging, Thanks for letting me know and best of luck. Jim

[spencoid2]

hearing mainly good about Pluvicta and am trying to qualify myself. I have not had chemo and prefer to not get it but jump right to Pluvicta. Unfortunately there are very few trials for this and currently it is approved only after chemo. The trial I was hoping for has been delayed (hopefully the last time) until Oct 3. My MO thinks Pluvicto is the right thing for me to try next but is it worth the wait? PSA is doubling about every three months currently a little over 10. have about 6 bone mets and two lymph node (biopsy confirmed) mets. One has grown since the last scan and was responsible for a pathological fracture.

[Jamesjohn63 in reply to spencoid2]

good luck to you. I appreciate the sharing of the info.