Insert a catchy title here....

[FulThrotl]

well, i'm new here. first post.

psa went from 0.1 to 26.0 in six months. fooey.

biopsy was gleason 4+4

bone scan showed black spot on scapula. that moves me to stage IV.

i took all animal growth hormones out of my food chain.

if something is making your chickens grow faster, it'll make your

tumor grow faster as well, i was told. figured i had nothing to lose.

no eggs, dairy, cheese, beef, chicken, pork, turkey, or fun.

did i mention i don't like vegetables? i don't like vegetables.

i'm not a willing vegan, i'm a living vegan. no dietary jihadist here.

started meditating two hours a night. i had to quench the fear.

all thought is creative. i will attract what i fear. used emmet fox,

"the golden key" simple, and a bitch to do. try it. you'll see. 7 pages.

took ten days for the PSA to budge. it dropped from 26 to 11 in four days.

it's now 0.06 as of last thursday. it's fluttering between 0.05 and 0.07 for

the last three months. it dropped 26 points in 21 days, before starting other treatments.

started radiation. 28 treatments scheduled, 28 done. oncologist said no side effects. lying bastige. fired oncologist after conclusion of treatments. don't lie to me. pisses me off. suspect i'm not alone in that point of view.

changed urologist to Marks at UCLA. watching, and waiting. good care team there.

six month lupron shot a week and a half ago. gonna do two shots, for a year total, and see if PSA goes up after conclusion.

that black spot on scapula? disappeared. nothing to biopsy. UCLA can't find any evidence of prostate cancer at this time. digital exam unremarkable. no swelling.

i did radiation and lupron 'cause the steve jobs blueberry smoothie cancer strategy didn't work well for steve. hopefully the nuking and lupron will drive a stake thru its heart, and removing growth hormones will starve it.

whole course of treatment was 100 days.

still meditating.

removed the thyroid 12/13/21. i had two different cancers,

one on each lobe. neither was close friends with prostate cancer.

doesn't appear they even knew each other.

thyroid tumor was 3 1/2", and just under half a pound.

go big or go home.

no discomfort, contained.

9 months, two locations, three different cancers.

marked cancer free at this time. dancing on the edge of the volcano.

vegan, lost 50 lbs. insufferably happy to be alive.

none of my doctors will attribute diet choice to mattering at all.

but that is the ONLY thing that changed, unless you believe i removed

it by thinking it away. i don't believe that. you shouldn't either.

YMMV.

Batteries not included.

No salesman will call.

[Magnus1964]

You are a true warrior! You have made all of the changed I did in diet and meditation. I might suggest taking a vitamin D3 supplement. Cancer patients usually have a D3 deficiency.

Keep up the good fight.

[FulThrotl in reply to Magnus1964]

10k of D3 a day, with K. also zinc. also metagenics daily pack. and 4 grams of calcium. and a flomax. and 150 mcg of thyroid replacement. my chiropractor set me up with a megagenics wholesale account. i try to use supplements that work. i was doing programming in a sewage treatment plant, and centrum vitamins.... they go thru you, me, the sewage treatment plant, and the digester tank undissolved, and are hauled away as hazmat. not all vitamins do anything at all.

[mrscruffy]

I am on a different program, intense workouts 5 days a week, red meat once a month, lots of chicken turkey and fish. I have a wife and 3 "girlfriends" and once a month we drink until dawn. Take my meds and supplements. Living my life to the extreme and enjoying every damn minute I have above ground

[FulThrotl in reply to mrscruffy]

as a public service to my community, i don't drink. it doesn't turn out well, and it's hard on the neighbors. so, you will have to drink for both of us. this one works well:

this is a secret formula, but it works. large minutemaid limeaid, 1/3 bottle of 1800, and ice till it won't take any more, in a good industrial strength blender.

pour into glasses. salt is very optional. it's rude to drink from the blender jar. simple, but effective.

as for social commingling, y'all are on your own. Salute!

[mrscruffy in reply to FulThrotl]

Currently our drink of choice is Vodka, Diet Red Bull, diet cranberry and pineapple juice(Red Russian) comingling isn't half of what you might think but fun with like minded females as sex is not the main goal here

[Fightinghard]

IMHO. Get a good MO on your team. Sounds like the beast is knocked down and sleeping from the diet, exercise, radiation and Lupron. Hopefully it will stay asleep for a long long long time. The MO will be your friend if the beast wakes up and roars again

Dont worry. Be happy

Good luck and enjoy each day. ( But maybe not quite as much as Scruffy)

[FulThrotl in reply to Fightinghard]

thank you. what's an MO? i don't do the scruffy dance. i gave him my recipe for margaritas, and he now has to drink for both of us. that is a tall order, i don't know how he's gonna go thru with it. it damn near killed me. last drink i had was leap year day, 1984.

[addicted2cycling in reply to FulThrotl]

FulThrotl wrote --- " thank you. what's an MO?... "

How about --- Medical Oncologist. A doctor who has special training in diagnosing and treating cancer in adults using chemotherapy, hormonal therapy, biological therapy, and targeted therapy. A medical oncologist often is the main health care provider for someone who has cancer.

[Fightinghard]

Medical Oncologist. Dr Marks should be able to connect you with a good one at UCLA to join your care team

[Schwah in reply to Fightinghard]

I really like Dr Drakaki at UCLA. Very smart and super nice. Sticks to SOC tho which is why I moved on.

Schwah

[FulThrotl in reply to Schwah]

you are no longer using her? i looked. impressive credentials. why did you move on, if i may ask.

[Schwah in reply to FulThrotl]

I’m still a patient but I use her as a second opinion. Dr Scholz is my primary MO.. Scholz has advised a few things out of the box like chemo/Taxotere/Lupron at my first sign of mets. She was opposed because there was no clinical trial at the time. Recently however, (5 years later) the Peace trial priced the efficacy of using all 3 at the first sign of metastasis. So Scholz was ahead of the curve by 5 years. But like I say I still see her to get her perspective. She’s smart and nice and responsive. But like most of the biggest Institutions, she follows SOC pretty stringently. For some that’s a good thing.

Schwah

[MateoBeach]

You very funny guy. You write well. Welcome!

[noahware]

"took ten days for the PSA to budge. it dropped from 26 to 11 in four days"

I started a pretty extreme diet after my biopsy (3+4=7), and without any other treatment PSA dropped from 26 to 13... but in four MONTHS, not in four days!

But of course, that was because I waited a full four months to do labs again... so I really have no idea what the day-to-day or week-to-week variations might have been. It sounds like you were doing PSA testing almost on a daily basis. Do you get a deal on blood work somewhere? Because I sure couldn't get a doc to prescribe tests that often, let alone get an insurer to pay for them!

[FulThrotl in reply to noahware]

neither could i. you can get tested at quest for $75 a test. i'm doing once a month now. right after the biopsy, i was doing twice a week. doctor said it was a waste. poor thing, he didn't understand a feedback loop, and that you need to see what is going on. thanks for taking the time to reply. when your experience is the only data point you have, doubt can creep in. i will bet you a cheeseburger in paradise your number dropped faster, but there is no way to know for sure. and probably neither of us can afford to bet with cheeseburgers. how is the number now? now is really the only aspect of time that matters.

i am infinitely grateful i spent the money on the tests. that morning i opened the test results and saw 11, i looked at my wife and started crying..... "fuck, it worked." was the only thing i could say. i knew i had it at that point. doubt and fear disappeared. i went in the next week for the biopsy on the scapula, and they couldn't find the black spot. i and my wife had seen it on the bone scan. i have the data files on my laptop, and when we looked at the full body image, the black spot was "wtf is that?" she was more concerned than i was.

this is the twilight zone part. after the biopsy was cancelled, we went back and looked at the same data file, and there isn't a black spot. i unzipped a fresh copy, and viewed that one. still no black spot. i saw it before. my wife saw it before. it's gone now. true story.

the other thing was the meditation. two hours a night is a lot of time to focus. i feel it was crucial. the focus needs to be maintained long enough to get the message into the subconscious, where it will be implemented.

"it is done unto you as you believe" is simple and straightforward. there is no good or bad.

i have seen my beliefs reflected in my experience over and over, throughout my life. my rule of thumb is that if i don't see the start of a coincidence or series of coincidences leading me to what i was focusing on show up within three days or so, i have a fear blocking it. there is a process to remove fear that i use that is simple and effective.

there is no order of difficulty in miracles. one is not harder or more difficult.

miracles are natural. if they don't occur, something has gone wrong.

gratitude is the only appropriate response to what we are experiencing,

irregardless of how it appears. that one is a bitch to wrap my head around.

it's taken 40 years to fully appreciate it. and a lot of crap to demonstrate it.

i'm grateful for everything i've experienced to bring me to this point, right here, right now.

i'm grateful to have a moment to rest before i continue. last year was a bitch.

three tumors, two locations, 28 radiations, one surgery, nine months.

rock on.

[noahware in reply to FulThrotl]

Yeah, gratitude is the key... and as you know, you don't get it just by snapping your fingers and saying I WANT IT.

My meditation practices and diet habits wax and wane, and when I am "working a program" I find that gratitude will pop up more and more. Yet I still manage to fall back into my old ungrateful self!

Unfortunately, both "eating wrong" (junk foods and simple carbs) and "thinking wrong" (junk thoughts and fear/drama) are highly addictive. Addictions just don't "go away" without any effort, and they easily return if the effort is not sustained.

So that original diet I was on was NOT sustained. (Weight went from 190 to 150 over four months, then took a year off/on/off to get back up there, plus some.) As for my current PSA, I am a few months into Zytiga, so after PSA got as high as 185 it is now back down to 4, and falling.

[FulThrotl in reply to noahware]

there are a lot of fellows in this ship, and from time to time, many of us don't put both oars in the water. i've had one oar in the water since leap year day, '84.

but, your magic number is 4 now, and if you can drive it lower with diet, you don't have to do it with whoop-ass chemicals or photon torpedos. some merit there.

there are only three legs on this stool:

what i put in my body

what thoughts i think

who i decide to let help me go where i want to go.

i got a missing piece of the crew i need to survive here. a MO.

i've got a good endocrinologist, and a good urologist.

now, i need a good project manager to conduct this, with his little baton thingie.

i've got one name from here of someone at UCLA.

i'll see if my endo or uro can recommend someone. i need a band leader, as right now, i'm the band leader, and i need a pro from dover.

the guy who gave me the book on diet choices, is someone i sponsor in texas.

he does step 11 better than i do, and i taught him. he does 10 day silent meditations in monasteries, for gods sake.

it's important to teach the people you work with to the best of your ability, so they can remind you of what you forgot when you lose your way, and save your life.

[j-o-h-n]

This is what I would have titled your first post "Guys, next time details".........

As far as that black spot is concerned that was probably fly shit on your test result....

Greetings and remember, pedal to the metal.......

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/10/2022 5:16 PM EST