Good News fora Change: I have been on... - Advanced Prostate...

Advanced Prostate Cancer

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Good News fora Change

EchoII profile image
29 Replies

I have been on the SOC (standard of care): Eligard and Aberaterone, plus Prednisone and various blood pressure and bone drugs for over two years. My last CT scan more than a year ago showed metatastic cancer all over the place, spine, pelvis, other bones, soft tissue, lymph nodes, etc. I had a new CT scan two days ago.i was ready for the worst. The scan found nothing anywhere. Nada. No cancers anywhere. My oncologist at Georgetown Hospital in DC said, “I can’t explain it, but you should celebrate.”

I bought myself a bottle of Irish whiskey.

There is hope.

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EchoII profile image
EchoII
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29 Replies
6357axbz profile image
6357axbz

Nice 👍

Gratefully Take it and run !

NickJoy profile image
NickJoy

Brilliant news - enjoy yourself.

Scout4answers profile image
Scout4answers

Cheers!Awesome news!

Were both scans done on same machine?

I am just beginning on the drugs that you mentioned. Would you tell me about your diet and exercise and supplement routine. Would like to be buying that bottle of whiskey in two years.

EchoII profile image
EchoII in reply toScout4answers

Different machines, but I am not going in for another scan because I really like the last one. I am going to frame it.

Scout4answers profile image
Scout4answers in reply toEchoII

Reason I ask, is because I had a BoneCT scan and then a Soft tissue CT scan that showed nothing and then a month later had an Axumen F18 scan that showed mets in the lymph nodes.not all scans are equal ;-((

EchoII profile image
EchoII in reply toScout4answers

I hear you, but I like this last scan so much that I am sticking with it until forced to take another kind.

6357axbz profile image
6357axbz in reply toEchoII

😂

Shooter1 profile image
Shooter1 in reply toScout4answers

With rising PSA and clear bone and ct scans, I got an F-18 scan that showed 2 new lessons which we zapped... PSA down for 5 mo. in a row since...

EchoII profile image
EchoII in reply toShooter1

I probably need to do the F18 scan, but first i want to be happy for a while based on the CT scan.

Shooter1 profile image
Shooter1 in reply toEchoII

Agree with you. My scan was done acct quickly rising PSA and clear regular bone and ct scans.

Javelin18 profile image
Javelin18

I’m guessing the photo is after the whiskey.

I think any spontaneous remission has to be driven by the immune system. Can you ask your oncologist if he can test your blood for immunogenic activity against PCa?

I’ve been thinking that there may be a way to transfer immunity from someone with spontaneous remission to someone with active disease. I haven’t figured out how to do the transfer, but want to talk with researchers about it.

EchoII profile image
EchoII in reply toJavelin18

I will ask my oncologist because I never heard of that test. She says she has no idea how this happened but that I should tell people that the reason is that I had a good doctor. (She was laughing when she said that.) My treatment was SOC. Nothing special.

Javelin18 profile image
Javelin18 in reply toEchoII

Always good to take credit for unexplained success.

I don’t know what the test is either, but I’m guessing there’s one. It took me a while to realize that oncologists that see patients are different from those that do research. I think a researcher would know how to test for the effect.

mrscruffy profile image
mrscruffy

Just one? Get a dozen! Congratulations, so happy for you

Yadifan profile image
Yadifan

We need more posts like this! Congratulations!!

Magnus1964 profile image
Magnus1964

Great news. Keep up the good work.

That made me smile! Great news!!

6357axbz profile image
6357axbz in reply toNotAlwaysSunshine

Me too

Tall_Allen profile image
Tall_Allen

Congratulations! I love to hear news like this.

EchoII profile image
EchoII in reply toTall_Allen

The scan may be bad but i am going to believe it anyway. At least for the moment.

Faith1111 profile image
Faith1111

Cheers!! So happy for you!!!

Praise God! Thanks for sharing this. Nada es fantastico ! 👏🏼👏🏼👏🏼👏🏼🥳

westof profile image
westof

Hmm... And I thought I was the master of crazy, bat-shit graphics!

I kneel at your altar!😂😂😂

Celebrate indeed!

About to turn 73 and my summer scans showed the same results (although

no mets at dx (but G9).

You've made it to 79, good run.

KEEP running!! 🏃

Best,

AJ

Jbooml profile image
Jbooml

Such good news. Can there be anything else to explain it.? A vaccine, change in BP meds?

Shooter1 profile image
Shooter1

Just don't sip all that good whiskey in one night or you might have an unexplained head ache the next day... Great scan results.

jfoesq profile image
jfoesq

Fantastic! Thx for sharing.

rogerandme profile image
rogerandme

Wow! Congrats

EchoII profile image
EchoII

The only thing i can think if to explain it is that the scan machine was broken. I am enjoying the moment but eventually i will ask for another kind of scan.

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