It was written with Covid-19 in mind, but it is good advice for any kind of illness support.
Darryl does a good job in screening out disinformation (intentionally misinforming patients for commercial gain). But misinformation on this and other forums can be a problem. We are all trying to be helpful to others, and in our enthusiasm, some are not as careful as they could be in what they say. I like the advice the Surgeon General gives: "If you're not sure, don't share!"
There was a very important study on this topic recently. The authors scanned cancer advice on social media on the internet and invited cancer experts to evaluate that advice. They found that about a third were factually incorrect, and almost 80% of those would lead to known harm if followed. Caveat emptor!
Quite right. Only our doctors give us information that is linked to someone's commercial gain and a very high one at that going by the prices that currently the insurance is thankfully bearing for us. Most other information that I have come across in my research is actually useful bits of advice that should have been given by the doctors but never was.
You are precisely the target for the Surgeon General's report - patients who are desperate and are willing to believe anything, even from bad sources. I hope you will take his advice seriously.
Thank you for your concern. We are not naive. We check our sources well. Simply because something is conventional medicine, the greed motive is not absent. For example, Aspen was made to reduce the price of 6 cancer drugs by 73% and hold the cap on prices for ten years. The company had simply acquired the drugs from another company. If it were not for EU competition law, the prices would be unaffordable for drug out of their patents. AstraZeneca was fined by the competition commissioner for deliberately providing misleading information in order to acquire extensions on patents of some of its medicines nearing the entry of generics. Information and medication for gain is everywhere. Business would lose interest in medical research if it were not for the potentially lucrative reward of money. Someone giving free advice on what may or may not work in terms of exercise or food has nothing like the same incentives. Even when the advice is beyond doubt, one's doctor does not mention it. The advice for a man on ADT to keep up with exercise should be as standard as giving ADT. Certainly our urologist never mentioned it.
I very much agree about exercise. I also very much agree that drug prices are hyperinflated in the US. But that doesn't mean that the drugs aren't excellent and well-tested.
Thanks, TA for posting this. I can say for sure that I was a victim of this situation. I followed the wrong advice because I thought the information I was lead to believe was a fact. What a shame and a wasted energy and time.
Sorry to hear that. I like their advice that when providing info, one should "point to credible sources." I just interviewed one of the US top researchers for a Malecare video (that Darryl will post next month). We had a quick, easily understood, discussion of "levels of evidence," which is a key part of evaluating the credibility of sources. The bottom line is at minimum there should be a prospective clinical trial published in a peer-reviewed journal. If it is randomized against standard-of-care and confirmed by at least another randomized clinical trial, that is the highest level of evidence. So much of what is posted as "evidence" are mouse studies or just someone's opinions.
According to Dr. Google, I died 3 1/2 years ago??? He must have forgotten I don't believe all that he said and HU info discussed with my own Dr. or researched to the source have kept me around. Life Is Good, research can be fun....
With due all respect to all insight intellectuals on this forum when fda approves drugs or other productsand in injunction with doctors and then causes serious harm and have to take it off the market it’s too late already damage is done what is that called?That’s my opinion
Never said it was specifically prostate drug in general I was leaning towards the cause of misdiagnosis is cancer and that could lead wrong medical treatment etc.I apologize for any misunderstanding
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