Optimistic progress: I had a telephone... - Advanced Prostate...

Advanced Prostate Cancer

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Optimistic progress

Ianrs profile image
10 Replies

I had a telephone meeting with the oncologist. Basically, extremely happy with the outcome of the process so far with PSA not measurable. For those like me that respond so postively to treatment, the next few years will be based on 3 - monthly blood tests and continuation of zolodox and xtandi. I asked about the mets and he said that wherever the PC cells are in the body they act in the same way, so any increase in PSA would be the signal for investigation. I asked about treatment holidays and he said no as the current practise is to maintain prescriptions.

I feel better by the day after my final fraction 16 days ago, although ropey for the first 11. Yesterday at the behest of my brother I walked 7 km (after 3.5 km on each of the previous 2 days) and struggled greatly for the final km. I did however recover quicky so did not curse him too much and managed 2.5 km today. Now to get into the weights to build upper body and stamina.

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Ianrs profile image
Ianrs
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Shooter1 profile image
Shooter1

Keep at it and you should be fine. Muscle mass is hard to keep, but being in great shape should help with any treatments you have in the future.... Full dose Xtandi and I didn't get along. 1/2 dose for the last 4 years.... Life Is Good, a little huff and puff won't hurt you!!

mrscruffy profile image
mrscruffy

Way to get after it

Tall_Allen profile image
Tall_Allen

Did you have radiation? To what?

So far so good. Your positive attitude will serve you well. 👏🏼👏🏼👍

Ianrs profile image
Ianrs

Hi. Radiation 6 * 6 gys to prostate.

Ol19 profile image
Ol19

How long after beginning xtandi did your psa fall? My husband just started on it 3 weeks ago no side effects so far ( fatigue etc) last blood test after two weeks showed liver function etc all good but doctor wouldn't disclose psa result saying it was too early to call. We are assuming it has gone up so we are worried if it is working of not. Congratulations on your great results.

Ianrs profile image
Ianrs

Ol19. Here you go.In UK patient has right to see all results

20 Jan PSA blood test PSA 64

11 March Start 28 days on bicalutamide.

25 March Zolodox implant.

22 April. Enzalutamide started

25 June 2nd Zolodox implant.

21 May PSA 0.33

17 June 2nd. Zolodox injection. PSA 0.19

12 July PSA 0.11

11 August PSA 0.07

07 Sept PSA 0.04

9 Sept Zoladox 3.

21 Sept. I st RT of 6 at 6 GY

05 Oct PSA 0.03

2 Nov Final 6 th radiation of 6 gye

4 November PSA undetectable

j-o-h-n profile image
j-o-h-n

Ok the Brits like suspense.... us Yanks don't. What fracture?

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/13/2021 1:26 PM EST

Ianrs profile image
Ianrs in reply to j-o-h-n

Fraction..round of radiation

j-o-h-n profile image
j-o-h-n

O I C thank you............. akin to flat = apartment, vs shape of the earth,,,.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/13/2021 1:57 PM EST

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