Hi everyone,My dad ,57, has metastatic prostate cancer .He has been diagnosed on May 10th. He doesn’t really respond to treatment well.
His initial psa was 62.4 he went on treatment with Docetaxcel and Hormone he did well till 5th cycles after that his psa began to rise and it reached to 29 at his 9th cycle of treatment with Docetaxcel after that his regime changed to cabazitaxel and Abiraterone at the same time but heyyy his psa decreased to 14.3 but in this cycle his psa rised again to 19.8.
Cabazitaxel and Abiraterone has made him so weak he can’t eat at all for 2 weeks and he has weight loss ,His oncologist said disappointing things and I all I can do is crying
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Annie1373
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I'm so sorry. It may be due to drugs, but there is a condition associated with cancer called cachexia. There are lots of medicines for it, including medical marijuana, progestins, glutamine, branched chain amino acids, HMB, etc. A nutritionist may have some good advice about how to pack his meals with calories.
Such a sad tale...God bless you, young lady....Follow Nalakrats advice....find a center of excellence and get another opinion...there are quite a number of clinical trials listed here:
If he has his prostate, then you need to find someone to discuss whether he would be a candidate for a number of treatments--HIFU, Radiation, surgery, etc--and trials----an MD specializing in urological cancers and issues...
Praying for an improved outlook for your father.....
Fish
I would get a biopsy and have genetic testing done to try to find out what's going on. Where is he getting treatment?
Hello Annie. Listen to Nal and Allen. They are both wise and very informed as are many others in this forum. Remain positive. There are many treatments in development and some will work for your Dad - you just have to find the way to them. Standard of Care is not that way - you have to use all the help you can find to identify the path that works for your Dad. Your Dad will need you not to give up. I wish you and your Dad the very best, Harry.
Don’t give up hope, let him eat anything he can, I was down to potatoes and gravy, and pink lemonade, then discovered I could get pie and ice cream down. Fight the monster anyway you can 🙏🙏🙏🙏
Hi Charlean. What a lovely name. And Annie1373 also. And Annie I ate all sorts of bizarre food during chemo. I wouldn't worry about nutrition right now. Give him what he likes to eat. A bite of his favorite junk food hamburger? I get up several times a night, and one of those times is a trip to fridge. Fruit pies, cut off a chunk of cheese to eat with crackers. (There is an issue about dairy and pc), during chemo pickle spears for sore throat. I always keep something by bedside to eat. Right now is Ritz Crackers. Wishing you well Annie1373. And also wishing you well Charlean.
Get him checked for typical mutations (P53, BRCA etc.). If one found there are targeted treatments that can help. Also, new radio pharmaceuticals like Lu-177 may be an options. Most important look for the best doctors. And don't ever loose hope. All the best to you.
Have you considered talking to a different oncologist?
Or perhaps without changing oncologists you can talk to a prostate cancer specialist at your nearest research hospital. They are not always near but I think they are always worth the effort to get there. Although he's feeling kind of bad so it might be hard to go if it's too far. But you might be able to talk to someone who can review his case and perhaps make some different suggestions.
I think trusting and being comfortable with the doctor is soooo important. We changed oncologists within a couple of months because we just didn't think the first one was aggressive or thoughtful enough -- just following the "advanced prostate cancer protocol" -- and the best thing we did was travel to UCSF in California (from Hawai`i) and meet with a prostate specialist, Dr. Eric Small. He gave us such perspective on what we were dealing with, and now we have this expert on our team. When things are at a turning point, the onco here works with him, we work with him to figure out the next best step. I hope you can find a research place closer. If you post where you live, people will have suggestions.
If he is having such a hard time, the first thing to try might be a break, or at least a longer break between chemo sessions. There's no big deal going to 4 weeks in between. Six times is the standard, although I guess they extended because he stopped responding.
There are other options to consider. I hope you can find out more about them.
Best wishes and hugs to your dad. My husband is the same age -- no kids, but 57, not fair.
All the info given to you on this one post are excellent, I woulld save it and tesearch every item of tteatment options and dealing with side effectsn. Wishing you the best. Rocco
I am so sorry to hear that, how is your dad now? I have been in the same as your situation. My husband 57 years old he has stage 4 advance postate cancer in may 2016. His treatments and medications works for 3 years. On jan 16, 2019 his test result showed that his cancer spreads , the medication won't contorl the cancer cells any more. His oncologist said :" sorry to tell you the bad news". Our hearts stoped beating. Everythings seemed to fall down. But until now he has a miracle. He doesn't have to take pain killer . He has 2 times for chemotherapy. He feels very good. He Doesn't has change in his taste. He doesn't worry about the immune systems goes down during the 21days circle. All we have to do is: use our own energy. we all have energy in our body but we don't use it. If you belive me, i can give you more details on how to do it. His oncology wants to have his bone scan again in may 9, 2019. By the way because of his postate cancer spread he has to have ureteric sten for three years but when his cancer growing back his body couldn't adapted to it any more. His urologist planing to put the nephrostomy for him but now his ureters open and he is free of stents. Energy in our body it is free. It is medicine. It is every powerfull.
Please know that I am thinking of you and your father. Lots of suggestions here. Will your oncologist help your Dad look for an appropriate clinical trial?
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