I have kidney stones and recurrent UTI

[rogerwegner]

I have had a series of UTI with several multidrug resistant bacteria. They also found some kidney stones which I am starting to pass. The stone that I saved was tested and found to be Calcium Oxalate. This is a very painful chapter in my 13 year journey with Prostate cancer.

[Tall_Allen]

Yikes! It sounds painful and annoying. I guess you already know to avoid supplements with calcium and Vitamin D.

[rogerwegner in reply to Tall_Allen]

Yes ,thanks. I am meeting with my urologist on Wednesday after a stat KUB xray

[Jbooml in reply to rogerwegner]

I recently passed one....I took it upon myself to begin regular lemon squeezes in a spritzer...no sugar. I think it’s helping. One other thing...I was introduced to toridol (keterolac) when hospitalized which has worked out as wonder drug as it happens. I use it very sparingly but it controls my bladder and Urethral flow like nothing else. I have absolutely no problem going the whole night without a pit stop and no stiffness after long walks or other exertions. Just my ever evolving survival experience.

[rogerwegner in reply to Jbooml]

I will ask if he will prescribe that drug for me

[Ahk1 in reply to Tall_Allen]

TA, when my MO started me on ADT, he suggested taking calcium. I took a low dose for a couple of months then I was concern with heart calcification so I stopped it. I also had a kidney stone 7 years ago. Was it a good decision to stop the calcium supplement?

[Tall_Allen]

One should only supplement calcium if the serum levels are low. If you are prone to kidney stones, supplemental calcium and Vitamin D, which increase serum calcium levels but not bone calcium levels, can cause problems if serum levels are already adequate.

[Cooolone]

Oxalates are and can be a problem. But the stone being tested for it doesn't necessarily prescribe any dietary changes unless the urine has been tested. A 24 hour urine test will reveal the amount of oxalate present and then you can look at diet.

Let me tell you that dieting to introduce low oxalates is umpteen times more difficult than dealing with sugars for diabetes! I can attest to it.

Docetaxel therapy drove my sugars higher than normal, (Dexamethasone) being the culprit. And I was already edging into diabetes from prediabetes prior, so was already on a low sugar diet. Weird is that I didn't eat much of the bad stuff to begin with as I don't have a sweet tooth. But I had some pain in my abdomen that wouldn't abate and wasn't associated with the PCa or treatment. Suspect was calculus in the right kidney that had shown in the scans for the PCa. So I did a 24 hour urine test after visiting a nephrologist. And it showed slight elevation of oxalates and he recommended a low oxalate diet.

Oh boy... Everything I was eating for low sugars, is now no good for oxalates, such as: whole grains, brown rice, many nuts, bagels, green leafy vegetables and more! Making it worse is the fact that if you venture to explore websites to try and find what is good, not good, you'll get different information on the same foods! Crazy stuff... If you dig, you'll find that different parts of the same plant can contain different levels of oxalate, etc.

Also, it is important to consume calcium as it binds with the oxalates to excrete it efficiently. Excess vitamin C is a big No No... Vitamin D isn't a problem unless you're taking too much. Of course Vitamin K2 should be taken along side But D3.

Citric acid from Lemon and Limes is great stuff for the stones, I'm doing the same and I think it has helped. Problem is if you like to leave some slices of lemon in the water (pitcher) in the fridge... Lemon peel is a big no no for oxalates! Lolz... See the problems...?

Univ of Pitt noted a substance being effective vs Oxalates (HPC) (hydroxycitrate) but that was a few years ago and haven't read anything more about it, a few studies (favorable) but nothing concrete yet...

Here's some links:

upmc.com/-/media/upmc/patie...

oxalate.org

kidneycop.com/oxalate-value...

Good luck!

[rogerwegner in reply to Cooolone]

Thank you it does seem that there is a lot of confusion about diet and oxalate kidney stones. The pain from the stones has moved me from prediabetic to full blown diabetes I will look at the websites and adjust what I eat Roger Wegner

[Cooolone in reply to rogerwegner]

It's hard to figure out, and the more you look the more it's gets confusing at times. But I think limiting and not completely cutting out the oxalates is what's effective as many of the foods with oxalates are healthy on other levels. The "high" oxalate foods of course get the big NO, but moderates can be consumed. Just be mindful of the oxalates levels and amounts measured. Only follow ups and additional tests will tell if it's been effective. But I think becoming aware and making adjustments will work to bring my levels down. For instance...

At least 3 times per week I would have a morning Whole Wheat Bagel with PBJ... Now, as luck would have it, the whole wheat is a no go, bagels are a no go, and peanuts are a big no go! Add them all together and who knows, that alone could be the kicker. But no, because of blood sugars I had switched a lot of stuff to almond flour for baking, like waffles and cookies along with Monk Fruit as a sweetener. No more almonds at all, due to oxalates love spinach too, arrrrrgh, no good! It's crazy!

Hahaha, just some examples, good luck on your journey!

[rogerwegner in reply to Cooolone]

Hi, It seems that there is very little that is left to eat. I think that I will lose some weight if I follow all the recommendations. Yikes, Roger

[Cooolone in reply to rogerwegner]

Oh but you can eat all the meat, poultry or fish you want

[rogerwegner in reply to Cooolone]

That is good news. At first I thought that I would have to cut out meat and fish

[barrybayarea]

Thank for the post, Roger, I was wondering if others had the stone issues too, like. me. I too had an extremely painful stone, went to the ER thrice back in Nov, my recent CT scan showed that the stone was still inside so they did a procedure to remove it last week. My doc also stopped my calcium supplement, I am still taking vitamin D3 but maybe I should reduce that too, although my reading for D3 is 25 ng/ml (still below the standard range of 30-100).

[rogerwegner in reply to barrybayarea]

Hi, you have been through the wringer on this issue. So far I have avoided the ER. The pain does bring you to you knees. Good luck on your battle with the stones. Roger

[dadzone43]

Ouch and sorry. That is the most common type of kidney stone and often runs in families.

[rogerwegner in reply to dadzone43]

I did have an uncle who passed a lot of stones. Now it is my turn. Roger

[dadzone43]

Can be treated with low dose hydrochlorothiazide to reduce recurrence. Usually evaluated by a 24 hour urine collection to measure calcium output. Talk to your primary care physician

[rogerwegner in reply to dadzone43]

Thank you, I will check on that

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🙏 stop the pain 😣