Xtandi progress: I just discovered this... - Advanced Prostate...

Advanced Prostate Cancer

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Xtandi progress

Presby profile image
6 Replies

I just discovered this site and I hope to gain much from it.

My husband was diagnosed with prostrate cancer in July 2019 and finished chemo in October of that year. Xtandi was prescribed in July 2020. Since then his PSAs have been 9.1, 5.4 and yesterday’s 7. We have a phone visit with his oncologist next week. What questions should we be asking?

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Presby
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Darryl profile image
DarrylPartner

Welcome. You might also find value from our video, youtu.be/RiFnusSsaBc

Darryl profile image
DarrylPartner

And this video youtu.be/2EDbn7i60Pc

Add Firmagon?

monte1111 profile image
monte1111

I'm guessing Lupron is already being used. Treatment between Oct of 2019 and July of 2020? Xtandi has worked for me for 3 and a half years. What has the lowest psa been? It took over a year for my psa to drop to 0.1 Blood tests can give you clues. Alkaline Phosphatase can help monitor bone activity if he has bone mets. Darryl's videos should help a lot.

Presby profile image
Presby in reply to monte1111

Thanks for the reply. Lupron is not being used. The treatment was Xgeva and Trelstar injections in Fall 2019 and again in February 2020. One, I’m not sure which, was given at that time due to dental work having to be done. Then COVID hit along with our oncologist leaving. The last visit with him was a telehealth visit in April. No tests or injections were given. By July, we were assigned a new oncologist who prescribed the Xtandi due to the 9.1. Lowest PSA was 3.7 after chemo in October 2019. The videos were worth the watch, I agree.

j-o-h-n profile image
j-o-h-n

Greetings Presby,

Some of these questions you've already answered.

Please tell us his bio. Age? Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?

All info is voluntary, but it helps us help im/you and helps us too. When you respond, copy and paste it in his/your home page for his/your use and for other members’ reference.

THANK YOU AND KEEP POSTING!!!

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 03/06/2021 9:38 PM EST

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