I am just starting Xtandi, was on Bicalutamide for a month, Had my first Lupron Infusion and Reclast shot... Was DX about 8 weeks ago with stage 4 Prostate cancer so am just starting the fight. I Am 78 and in ok shape so let's see where this leads. My PSA was 538 now 49. so that I feel progress.
So far no adverse reaction but from what I read it doesn't start at once. If someone has advise let me know.
Results to xtandi with me were cumulative. Just keep track of how you are doing and if you get to weak or unbalanced cut dosage and see how you do... I stayed on full dose until I was a complete invalid and have lasting neuropathy from xtandi/ docetaxel combination followed by xtandi alone.... No T acct orchiectomy instead of lupron..
Hello, I have been on Xtandi (enzalutamide) since September 2017 (three years eight months). So far no serious side effects although some neuropathy in right foot. Take the pills just before bed time to reduce the fatigue. Hope that helps!
I’ve been on Xtandi for over five years. For me side effects have been cumulative, fatigue, cognitive issues, headaches, BP issues etc. Two years ago my MO recommended that I reduce the dose to 80mg to reduce SE’s since my PSA has been undetectable for a few years now. That has seemed to help however SE’s are still significant but tolerable. It remains effective at that lower dose.As mentioned above, take in the evening.
Ed
I am surprised that you haven’t done Docetaxel, 6 doses to start, every 3 weeks, that attacks the Mets quickly and lowers the PSA. The side effects are too bad except for baldness. I was told that I had a pretty head!
Why only one month on casodex? Did you fail it? I have been on xtandi for 4+ years some side effects have dissipated, i.e. tiring. I am experiencing some brain fog, but that could be old age.
Greetings Ski,
Please tell us your bio. Age 78. Location? When diagnosed? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)?
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THANK YOU AND KEEP POSTING!!!
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 01/17/2021 2:21 PM EST
Correct me if I am wrong, but this could be John's first post without being a wise a$$...
You're correct, it's the first of many.........
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 01/17/2021 5:25 PM EST
I’ll defend you j-o-h-n . Absolutely no one contributes more hours on this group looking to interject his sharp one liners to break up the doom - gloom - and Debbie Downer atmosphere than you do John. A lot of people here deeply admire your contribution and effort to lift the spirits of the needy. Your wise a$$ is a more a good heart dedicated to a positive humorous benefit for all of us. You are the master big guy .... I appreciate what you do immensely.
There, I said that 💪💪💪👍👍👍😂😂😂❤️❤️❤️
Btw: if people were more familiar with your posts, they would see the many heartfelt serious posts you make as well.
Sorry to hear of your diagnosis. But welcome to this brotherhood and fight. 💪🙏🏻
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