Prostate cancer and other cancers - Advanced Prostate...

Advanced Prostate Cancer

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Prostate cancer and other cancers

lewicki profile image
31 Replies

A cancer doctor at Karmanos cancer center Detroit said my cancer looks close to Melanoma. I have had Melanoma removed from a few spots over the las 15 years along with several basil and squamous from the nose and chest. Genetic origin is north east Poland and the Ukraine. Blond reddish hair and blue eyed.

I have overlooked telling other Oncologist this and wonder if I should be treated for melanoma somehow . Could this be help in my battle?

Is there any data about this?

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lewicki profile image
lewicki
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31 Replies
Tall_Allen profile image
Tall_Allen

It depends on why he said that- was it based on genomic or IHC analysis, or did he just mean it was virulent (spread quickly).

lewicki profile image
lewicki in reply toTall_Allen

Not to much further discussion to me on either IHC or Immunotherapy. My cancer has not spread fast. I have requested the doctors research results of three biopsies of lymph nodes during my trial ESK981 that failed and resulted with blood clots stroke , edema , loss of eyesight. I have been refused all requests for the results records. Only offered progression after chemo and refused LU-177. Further went to University of Heidelberg for AC-225 and LU-177.

Who are you seeing at Karmanos cancer center? I'm seeing Dr. Heath.

lewicki profile image
lewicki in reply to

Same. Not seeing her or going to Karmanos.

EdBar profile image
EdBar

You probably need him to clarify his statement. My genetic origin is also from that area. I too have had melanoma which was treated with surgery and found to be in situ or early stage, non metastatic. I had genetic testing through a blood sample done by my PCa MO and was found to have two germline genetic mutations, one of which is more prevalent in people from that area and makes me somewhat prone to certain types of cancers, melanoma being one of them.

Ed

lewicki profile image
lewicki in reply toEdBar

Very interesting. Thanks for your response. Does this mean a targeted treatment of some kind? My oncologist is from the same area, I see her Wednesday. This will give her something to think about. I do not see that oncologist anymore. Not to ??

EdBar profile image
EdBar in reply tolewicki

For one of the mutations that I have, possibly, but for me that treatment has some harsh side effects so it would be something I would consider down the line. I mentioned it because it is a simple blood test or spit test and the knowledge is useful because your children and siblings may carry that mutation as well which would alert them to get PSA testing at an early age, see a dermatologist regularly, etc. it can also be the cause of colorectal cancer so getting a colonoscopy is very important.

Ed

lewicki profile image
lewicki in reply toEdBar

Good advise. My 47 year old son has a PSA of 2.4 and a grand son who is a red head . His mothers parents are from the same geographic area. What should I tell them is the name of the test?

EdBar profile image
EdBar in reply tolewicki

The one I had is done by Invitae, when I had it it was a blood test, when my kids had it done a short time later they did it via spit test.

invitae.com/en/?msclkid=c8a...

lewicki profile image
lewicki in reply toEdBar

Thanks. I will pass this on to all.Doing PSA Wednesday. No ADT for 14 weeks. PSA is 0.1 after LU-177 and AC-225. Onco and Uur advised going off ADT. Not to sure its a good idea although feeling close to myself. Yeoow ADT is awful. Thinking should do Casodex just to be cautious.

EdBar profile image
EdBar in reply tolewicki

I hear ya, I’ve been on ADT for almost 7 years now, PSA is undetectable. Last year I was given the option to stop Xtandi due to side effects but after about 3 months my PSA became detectable again so I quickly restarted. I don’t want any sleeping mets to come around and start mutating. That’s me, you may have different results.BTW if your kids decide to get genetic testing done probably best to do it out of pocket rather than have it in a doctors records in case they apply for life insurance etc. there are supposed to be laws against being denied for genetic reasons but it’s still a grey area. If you decide to get it though that’s another story, and if you don’t have mutations obviously you couldn’t pass them along, just FYI.

lewicki profile image
lewicki in reply toEdBar

My onco knows previous doctor . They may have a talk on this.

lewicki profile image
lewicki

My present onco knows her and they may have a talk on this.

j-o-h-n profile image
j-o-h-n

I had a melanoma on my neck which metastasized to my lung and it is being treated with Keytruda and so far it's working.

I have to be careful. Since you're part Polish I had to restrain myself from telling a Polish joke(s)... You know us New Yorkers make fun of everyone.....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 3:19 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

What is your ethnic background ? I know some good Irish jokes.

lewicki profile image
lewicki in reply tolewicki

Just read an article from seminars in Nuclear medicine. Use of AC-225 for Melanoma and Pca.

j-o-h-n profile image
j-o-h-n

I'll trade you some "Greek" ones for some Irish ones....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 4:52 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

Good old Greek soap jokes.

timotur profile image
timotur in reply toj-o-h-n

One-half Greek here, grandfather from Karpathos. 23&me though says 70% Italian.

j-o-h-n profile image
j-o-h-n in reply totimotur

Beautiful Island but i was never there. I have a hobby of researching immigrants who came to the US through Ellis Island. I can research your Grandfather(s) on either side if you wish.... It's a hobby (no fee involved) it's like being a detective. Anyway I'm available.

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 7:42 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

Some came threw Detroit

j-o-h-n profile image
j-o-h-n in reply tolewicki

That's unusual..... unless they came in from Canada..... Hmmm??? Never saw that before..... BTW did your Greek Grandfather's surname end in "S" or "OU"......?

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 9:49 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

Missing the surname question. Also, illegal entrance to the US via Windsor Canada. The joke was they were called Nickle immigrants because it cost a Nickle to come over on the tunnel.

j-o-h-n profile image
j-o-h-n in reply tolewicki

I figured he was a sick bird (old joke - ill eagle).... There's a city in Michigan full of Greeks and Macedonians (who say they belong to Greece). "Ypsilanti".

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 01/05/2021 6:49 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

Downtown Detroit there still is a Greek town . No more Belly Dancers . bah.

j-o-h-n profile image
j-o-h-n in reply tolewicki

Been there once...... One block only..... had some Greek food.... Business seminar in Dearborn.... (I qualify for a big belly dancer now)...

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 01/05/2021 8:58 PM EST

timotur profile image
timotur in reply toj-o-h-n

Thanks j-o-h-n, I pm'd you

j-o-h-n profile image
j-o-h-n

That's one..........Most dangerous job on a Helenic football team? (tight end)....

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 6:21 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

What are the tree shortest words in the English language? Is it in?

j-o-h-n profile image
j-o-h-n in reply tolewicki

Yes sweets, it's in....

OMG Harold it hurts.........

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 01/04/2021 9:44 PM EST

lewicki profile image
lewicki in reply toj-o-h-n

Belly laugh

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