Grateful: Just feeling very grateful... - Advanced Prostate...

Advanced Prostate Cancer

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Grateful

Blueslover profile image
17 Replies

Just feeling very grateful this Christmas time that after 12 years I have an undetectable PSA.

Surgery 2008, radiation 2012, Lupron for 5 years, Daralutamide for 4-5 months and a few snake-oil supplements. Do a good deal of exercise and feel very well.

Good luck and Happy New Year to all you brothers and never give up fighting the beast!

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Blueslover
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17 Replies

Great to hear about your success. I hope to walk in your footsteps and have a long term remission.

Blueslover profile image
Blueslover in reply to HopingForTheBest1

Read your history. Had some Gleason 9 also.Best to you

Hugh

Whoohoo! Fantastic 🥳🏋🏽‍♂️

Blueslover profile image
Blueslover

Bless you Nal

I love to read these success stories! They give me a positive outlook. My cancer has already defeated Xtandi...I’ll probably start Jevtana in January. But I’m hopeful for a long happy life!

Blueslover profile image
Blueslover in reply to

Sure. When I had my first urologist appointment in 2008 he told me I needed to get my affairs in order!

Blueslover profile image
Blueslover in reply to

Also, there's so much new stuff coming out all the time. My MO says we may do some genetic testing, but not needed now and in a year or two there will be new and improved ways of doing it

in reply to Blueslover

All I can say is prayers are as powerful as medicine...but unfortunately neither are going to cure me (at least not so far). I’m told that Jevtana is the last line of defense...then we get to the targeted stuff that’s more palliative instead of driving it into remission. I’ve only been fighting this for three years now...56 years old...I pray I make it to 90...by some miracle, I will!!!

Nous profile image
Nous in reply to

hi CRK2 ... have you considered checking-out envita.com ?

RonnyBaby profile image
RonnyBaby

It is encouraging to read and hear about success stories like yours.

Success ?

That's a strange way to express it ?

BUT, it shows that predictions aren't set in stone and that there is hope - as opposed to it's 1, 2, 3 and you're outta here !

Congrats and thanks for sharing !

You've pointed to something that offers hope for many of us ......

JPnSD profile image
JPnSD

Thank you for sharing your experience. It gives those of us who heard "I got your results and they are really bad" from our Urologist when our GL 9 results came back..... some hope. I would embrace 12 years...bring me to 78....much longer than I picture things at present. (BTW - That idiot URO was the same one who had refused me a biopsy 18 months earlier!)

All the best to all the APC warriors for a better 2021 and...beyond!

Nous profile image
Nous

that's wonderful and inspiring and motivating news Blueslover ... thanks for sharing it and the tip about exercise ... all the best to you ! ... Nous :)

Blueslover profile image
Blueslover in reply to Nous

Thanks

MateoBeach profile image
MateoBeach

You are rockin’ it Blueslover. Keep on in 2021. BTW is the darolutamide very expensive? Such an excellent medicine.

Blueslover profile image
Blueslover in reply to MateoBeach

Bayer provides it free of charge for 2 months. After that, with insurance and the patient advocate foundations that exist my co-pay is zero

bluesnjazz profile image
bluesnjazz

Blueslover, I immediately feel a kinship to you--aside from also having PSA C-cells in my body--as my Yahoo email address is bluesnjazz-lover@!

Glad to hear of your success, and as a fellow long-term survivor (discovered in 2005, brachy in 2006, discovered rising PSA again in 2004, started hormone treatment off and on 5 years ago this month after discovering a tumor in a lymph gland, now completely tumor free, according to the most recent scan late last summer), but I'm impressed by the fact that you exercise. I, too, always have, vigorous exercise such as jogging and weight-lifting, and believe that and my somewhat restrictive diet are part of the "treatment" that has kept me mostly healthy and the cancer under control.

I'd like to hear more about your adventure. I wonder if there's a way to private message on this site.

Blueslover profile image
Blueslover

Good to hear from you, and keep up the good fight!My name is Hugh and I'm 76. Don't know if there's a way to private message, but my email is hugh.otterburn@gmail. Feel free to write.

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