hmmm. Whilst on BIRM...PSA has inched up from 1.13 to 1.6~~ however, my latest Axumin pet scan done just a week ago showed much improvement. Spots that appeared in lungs and prostate on previous scan are not showing and abdomen nodes are not showing and ones in pelvic area are mostly shrunk. My oncologist says this is good news! I'm going to keep taking the BIRM as it's made me feel more energy and strength (although within reason...I AM NOT superman anymore...and just accept it....plus I am 62 years old now (as of Jan 24th)
Often take a half-hour nap in the afternoon...but really are having very full days. Just got back from a 5 day road trip to North Florida (from South Florida) to visit with friends in several places.
I'm currently on Lupron, Xtandi (started June 22, 2018), and Xgeva (Started Jan 18th, 2018) ....and BIRM, of course. Also take 30mg of Melatonin at bedtime.
I am advanced & aggressive stage 4, castrate resistant for over a year~~but holding up very well so far. Pic is me in the foreground with partner of 41 years. (I often add a little color to my now "almost non-existent eye brows"....this is au natural. The eyebrows help....LOL.
Life is Beautiful.
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greatjohn
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my experiences are "anecdotal" and as to whether it's the BIRM or the Lupron....or the Xtandi or the Melatonin or the combination...OR it's my belief that "miracles are waiting to happen"....I can't say. I do rub my cat almost every day (his name is "Miracle") and truthfully expect the worse...and "anticipate/hope" for the BEST.
I read a book recently whose title caught my eye...(it's an old book) entitled "The Miracle" by Irving Wallace. I really enjoyed it and recommend it for everyone!
~~John
p.s. as a tiny kitten that showed up on a day when I was going insane hoping for a buyer for a condo for investment that was going down in value by the minute. When "he" showed up ...I told a couple friends visiting ....I don't need another CAT...what I need is a "MIRACLE". Sure enough, one of my friends picked him up (he was outside my sliding glass doors at our house). Once he did that, I said...CRAP, I've got a cat...and I named him "Miracle"
SURE ENOUGH, (this was Saturday)...on Monday I got a call from a realtor who said she had a cash buyer for the condo.....the realtor then told me her name was CAT.
A cat is a perfect companion for those of us with "our" problem.
Where are you getting your BIRM? Amazon sells BIRM. Dosage and frequency?
Something I believe after so much reading is that small amounts of the right things taken together, working synergistically beats a large amount of any one supplement or medication.
You know about Dr. Klotz and his patient whose PSA was hormone resistant? The drugs stopped working. The patient whose family manufactures hot sauce? Klotz spoke of him at a urologist's conference. The patient's PSA stopped rising when he started dosing 3X daily with hot sauce. Dr. Klotz presented a chart of the patient's PSA, which when he "got off the sauce" started to rise at the same rate as before he got "on the sauce"!
That’s wonderful news John! Thank you for sharing your progress! I have tried the ph. number in Cali. to order BIRM, left message but it’s been 2 weeks and no call back. I want it for my Dad.
I pray you continue to get great results from your regimen. May God bless you.
I think that's a good thing? LOL. I can't take the time to focus too hard on those kind of articles, but it's also being studied by the University Of Miami (Sylvester Cancer Center) where I am going. My experiences are all "anecdotal" ~~I give them so people can see what's going on "with me". One thing I have learned is that every BODY is different...
Yes, the lady there just had them email me and give all my "stats" and I got an email from Dr. Cevallos with a "prescription". 2.5 mg of Concentrate 3 times daily with meals.
My ex lives in Ecuadore and takes Birm. the prevailing view there is that Dr Cevallos recommends too much. He told me the same amount but I only take once a day. My ex's doctor in Ecuadore says 2.5 mg a week is enough, but who reallyknows. I take Luporn and Zytiga also, and it's hard to sort out what is working, but my blood work always looks great. I love my oncologist and she is a very beautiful young woman. that's the best part.
regarding BIRM.. I always email them. I include my paypal invoice email.. so they can invoice me via paypal.. as well as a shipping address. My husband has been taking it for over a year.
greatjohn - glad you are hanging in there! Hugs and prayers for you!
I'm sticking with the basics...but I figured a few "voodoo" concoctions might help....LOL.
I have also just ordered a mushroom supplement(today) as a friend just sent me information about how beneficial they are for shrinking prostate cancer tumors. I've done almost everything from the radiation/chemo/lupron/xtandi/HIFU/Provenge (standard of care)...all in just a little over 3 years...I want to make sure I get as much mileage out of Lupron & Xtandi as possible!
I shoulda added your partner looks great too John haha. 68? Wow. A good relationship with someone that cares and loves you really makes that journey a little more easier.
Good news! Very pleased for you. Our BIRM should arrive this week so looking forward to starting Norm on it, as he does cope with high levels of fatigue some days.
Looking good for 62 - exquisite skin (both of you).
It’s nice to have someone who loves you to help walk thru this ordeal ya? I don’t know how I would do it with out my wife if 39 years!
Glad you are doing so well! I too have been on Lupron a while and Xtandi for 2 years. I believe it has been a miracle chem mix for me, Gleason 9, aggressive disease.
Question, I’m to start Xgeva soon. How has that been for you? Do notice another med on board?
my dentist is more worried about long term issues with jawbone and teeth...after just two months all I have noticed is occasional (moderately bad) bone pain ....that has not lasted but a few minutes. I suppose that might get more often/more severe with time...but still looking for adjuncts to my standard care...and hoping to drop some of these things. (Hope springs Eternal).
all the best with the "journey"...(as I prefer it to be a journey rather than a battle)
just looked and saw how young you are. This is truly not an "old man's" disease. It seems like the younger one gets it...the worse it is. I was diagnosed at 57. Shot from Gleason 6 to "advanced, aggressive, castrate resistant stage 4" REALLY quickly. Or as I say I seem to be in the "fast lane". Definitely trying(and succeeding right now) to pull into the slow lane! LOL
Yes I was 46 Gleason 9, radical Pros with disease in seminal vesicles, nerve bundles, lymph’s. It was hairy. 21 chemos, 8 surgeries, and the nasty shit, ADT.
They told me I would be gone by now. Must be divine intervention me thinks.
I’m so glad to hear this progress. Every time I read updates I think we are another step closer to saving others from this nightmare so many have suffered.
Warning to anybody taking herbal remedies. Dont take any herbal remedies with Zytiga. It is a serious drug conflict that will destroy your liver in 2 weeks.
Hope the xtandi hangs in there for you. I'm 18 months in, Psa 0.2 Several here 2 and 3 years plus. If cats are a miracle I've got it made. Got those annoying critters running around everywhere.
"Great" Deal.... Keep on Keeping on... Somehow when I viewed your picture "honeydos" came to mind. Coincidentally I have a cat named "Miracle", I found her on the day my ex-wife left me.
Looking great 'greatjohn' been following your posts since day one. Got a great life much different than at start , but well worth living.... No eye brows, but nice white thin hair all over normal head area. Side burns mustache gone. No full beard down on my chest and long thick hair foot long pony tail just a distant memory. Saving on deodorant and shampoo.
I miss eyebrows...LOL. May look into tattoos! For now I use (when I think I need them) a mascara like product made for hair roots to color (temporarily) between dye jobs for women. It looks super natural...as I have a few hairs...they are just short and white.....
I figure the "better I look" ....the more my oncologist will try to keep me above ground. It's a theory, anyway.
I bought that stuff and started 4 days ago. I had expected -maybe- a little help with sluggishness after a couple of weeks, but yesterday morning, I got a smooth, adrenalin-esque buzz of go-juice...and kept it through supper. No midday slouch. I'm talkin' about the regular dosage; not the x7.
A pleasant realization that it was the BIRM, and I'm (of course) ordering more.
that is exactly how quickly I FELT MUCH BETTER and people were asking me "what happened?". I'm talking about casual acquaintances at the gym. My energy level and strength were so improved...almost overnight!
I am 100 percent certain there's no placebo effect as per the vitality increase. I definitely feel lighter and hold energy longer due to BIRM. Re: cancer, I won't be testing this strength, but will change to industrial.
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Question for BIRM users...any effect on platelet count?
May 1, BIRM-day
After 15 months or adt what's next.
