3 Months on BIRM...15 Days On Concent... - Advanced Prostate...

Advanced Prostate Cancer
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3 Months on BIRM...15 Days On Concentrate BIRM(7X)

greatjohn
greatjohn
57 Replies

hmmm. Whilst on BIRM...PSA has inched up from 1.13 to 1.6~~ however, my latest Axumin pet scan done just a week ago showed much improvement. Spots that appeared in lungs and prostate on previous scan are not showing and abdomen nodes are not showing and ones in pelvic area are mostly shrunk. My oncologist says this is good news! I'm going to keep taking the BIRM as it's made me feel more energy and strength (although within reason...I AM NOT superman anymore...and just accept it....plus I am 62 years old now (as of Jan 24th)

Often take a half-hour nap in the afternoon...but really are having very full days. Just got back from a 5 day road trip to North Florida (from South Florida) to visit with friends in several places.

I'm currently on Lupron, Xtandi (started June 22, 2018), and Xgeva (Started Jan 18th, 2018) ....and BIRM, of course. Also take 30mg of Melatonin at bedtime.

I am advanced & aggressive stage 4, castrate resistant for over a year~~but holding up very well so far. Pic is me in the foreground with partner of 41 years. (I often add a little color to my now "almost non-existent eye brows"....this is au natural. The eyebrows help....LOL.

Life is Beautiful.

57 Replies
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Nalakrats

Looking good, you probably passed me in going from South Florida to North, as I was staying for Jan. and Feb. In Ormond Beach, on the water.

Anyway, BIRM, is not all about PSA. Stable PSA seems to be more normal, and the interference of BIRM, in Protein Signaling seems to have an effect , on the stopping of further Metastasis Spread. The Testing being done at the Univ. Of Miami School of Medicine, that is funded by our Got't on BIRM may provide answers in how things work, as to Pca.

I am IMO leaning towards the interference of Signaling that tells the Pca cells to eat, and to divide. Your Scans are tending to prove that, and your PSA also. Over Time these cells that are giving off a PSA, still, if interfered with long enough, will have to start dying, is the hope.

Good Report.

Nalakrats

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greatjohn
greatjohn
in reply to Nalakrats

Thanks.. I'm at University of Miami Sylvester...so they are onboard with me doing the BIRM.

John

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Nalakrats
Nalakrats
in reply to greatjohn

I bet they are---they--the University got millions to study BIRM--you are paying for it/Taxes.

Nalakrats

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greatjohn
greatjohn
in reply to Nalakrats

I wish they would pay for me ! ! ! that would help.

John

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Jimhoy
Jimhoy
in reply to Nalakrats

Nalakrats

Your name was dropped durring an exchange I had in the past day or so, regarding BiRM!!

I checked around and best I could find was a 2 year old post when you seamed to be just starting your own test!

Briefly, I’m wondering if there is an update as to how that worked out “long term”...... if you don’t mind!!!!

I appoligize if it under my nose, kind of new at navigating the site!!!!

Jc

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Nalakrats
Nalakrats
in reply to Jimhoy

I believe I started about 30+ months ago---still using. I cannot say for 100% that it is a main driver to my success, now working on my 4th year. Last weeks Blood Tests, still Undetectable PSA. I use a combination of drugs and about 30 supplements--some are for bone health, some for Heart Health/Blood Pressure, some for general well being, and quite a number to fight Pca, mess up signaling of RNA to talk to the cancer cells, increase use of the natural Immune system.

So BIRM, is not a single Supplement that I can say I am overly relying on, but it is one I think is important.

Nalakrats

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noirhole

Glad to hear you're doing well. It is a mental and a physical journey.

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greatjohn
greatjohn
in reply to noirhole

Yes it is!

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Lombardi24

John. Do you think it's the Birm that reduced your mets (concentrated Birm)?

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greatjohn

my experiences are "anecdotal" and as to whether it's the BIRM or the Lupron....or the Xtandi or the Melatonin or the combination...OR it's my belief that "miracles are waiting to happen"....I can't say. I do rub my cat almost every day (his name is "Miracle") and truthfully expect the worse...and "anticipate/hope" for the BEST.

I read a book recently whose title caught my eye...(it's an old book) entitled "The Miracle" by Irving Wallace. I really enjoyed it and recommend it for everyone!

~~John

p.s. as a tiny kitten that showed up on a day when I was going insane hoping for a buyer for a condo for investment that was going down in value by the minute. When "he" showed up ...I told a couple friends visiting ....I don't need another CAT...what I need is a "MIRACLE". Sure enough, one of my friends picked him up (he was outside my sliding glass doors at our house). Once he did that, I said...CRAP, I've got a cat...and I named him "Miracle"

SURE ENOUGH, (this was Saturday)...on Monday I got a call from a realtor who said she had a cash buyer for the condo.....the realtor then told me her name was CAT.

Life is Beautiful.

16 likes
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Currumpaw
Currumpaw
in reply to greatjohn

A cat is a perfect companion for those of us with "our" problem.

Where are you getting your BIRM? Amazon sells BIRM. Dosage and frequency?

Something I believe after so much reading is that small amounts of the right things taken together, working synergistically beats a large amount of any one supplement or medication.

You know about Dr. Klotz and his patient whose PSA was hormone resistant? The drugs stopped working. The patient whose family manufactures hot sauce? Klotz spoke of him at a urologist's conference. The patient's PSA stopped rising when he started dosing 3X daily with hot sauce. Dr. Klotz presented a chart of the patient's PSA, which when he "got off the sauce" started to rise at the same rate as before he got "on the sauce"!

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savingdaddy

That’s wonderful news John! Thank you for sharing your progress! I have tried the ph. number in Cali. to order BIRM, left message but it’s been 2 weeks and no call back. I want it for my Dad.

I pray you continue to get great results from your regimen. May God bless you.

Kimberly

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greatjohn

Kimberly,

is this the number you have ??? 408-612-4508 ??

I got a response back within 24 hour both times I called and left a message.

I'd try again or try this number if you had a different one.

Good Luck & I hope your father does well!

~~John

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savingdaddy

Yes, that is the number I called and left a message. Still no reply. I will try again. Thanks!

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SuppWife

Email them. I got a prompt reply. Do you have their email address?

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savingdaddy

No I don’t have their email. Thanks

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SuppWife

admin@BIRMproducts.com

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savingdaddy

I will try the email. Thank you!!

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Trecento

ventas@birm.com.ec

Kimberlt, I emailed the above in Ecuador to obtain ours - they were very helpful.

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savingdaddy

Which email should I use? This one or the one given above by Suppwife??

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SuppWife

Either one probably works. I’m certain the one I gave you works. :)

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Captain_Dave

I just saw this:

The andean anticancer herbal product BIRM causes destabilization of androgen receptor and induces caspase-8 mediated-apoptosis in prostate cancer

LINK: ncbi.nlm.nih.gov/pmc/articl...

I have seen the BIRM product on Amazon. How much is the typical dose?

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greatjohn

I think that's a good thing? LOL. I can't take the time to focus too hard on those kind of articles, but it's also being studied by the University Of Miami (Sylvester Cancer Center) where I am going. My experiences are all "anecdotal" ~~I give them so people can see what's going on "with me". One thing I have learned is that every BODY is different...

~~John

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SuppWife

What’s available on Amazon I believe is not the concentrate. Email is admin@BIRMproducts.com

They’re responsive and will help you with appropriate dosages based on your condition.

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greatjohn
greatjohn
in reply to SuppWife

Yes, the lady there just had them email me and give all my "stats" and I got an email from Dr. Cevallos with a "prescription". 2.5 mg of Concentrate 3 times daily with meals.

John

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ctarleton

I like the Pic, John. They say those hugs have their own type of healing powers, too.

Charles

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greatjohn
greatjohn
in reply to ctarleton

I think they DO have a healing power!

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softwaremom00

regarding BIRM.. I always email them. I include my paypal invoice email.. so they can invoice me via paypal.. as well as a shipping address. My husband has been taking it for over a year.

greatjohn - glad you are hanging in there! Hugs and prayers for you!

softwaremom

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greatjohn

Tee hee.. and I'm very allergic. Miracle is an out door kitty.

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Sherpa111

Interesting. Glad you’re doing well and I may need to look into this BIRM a little further. Peace.

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greatjohn
greatjohn
in reply to Sherpa111

I'm sticking with the basics...but I figured a few "voodoo" concoctions might help....LOL.

I have also just ordered a mushroom supplement(today) as a friend just sent me information about how beneficial they are for shrinking prostate cancer tumors. I've done almost everything from the radiation/chemo/lupron/xtandi/HIFU/Provenge (standard of care)...all in just a little over 3 years...I want to make sure I get as much mileage out of Lupron & Xtandi as possible!

Good Luck with your journey.

~~John

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gusgold

GJ,

How much BIRM do yo take a day

Gus

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greatjohn
greatjohn
in reply to gusgold

Gus...

I'm doing appx 2.5 ml three times a day.

After breakfast, lunch and dinner.

This is the concentrated version (7x) and this is the "prescription" that Dr. Cevallos recommended after me give him my "stats".

John

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RalphieJr64

You look great John.

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greatjohn

Thanks Ralph....I'll put on eyebrows next time...lol. i feel like a space alien without them.

John

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RalphieJr64

I shoulda added your partner looks great too John haha. 68? Wow. A good relationship with someone that cares and loves you really makes that journey a little more easier.

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RalphieJr64

Hi John again. I went back to your bio and you mentioned you would be starting chemo in a month. Would this be your first?

Ralph

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greatjohn

It was my first...and it was late 2017...ending in February of 2018.

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Trecento

Good news! Very pleased for you. Our BIRM should arrive this week so looking forward to starting Norm on it, as he does cope with high levels of fatigue some days.

Looking good for 62 - exquisite skin (both of you).

Best wishes, and thanks for keeping us posted.

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greatjohn
greatjohn
in reply to Trecento

Thanks...it took holding the camera From the right angles to get the best light...LOL.

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Survivor1965

Hey John, John here (my friends call me Johnny)

It’s nice to have someone who loves you to help walk thru this ordeal ya? I don’t know how I would do it with out my wife if 39 years!

Glad you are doing so well! I too have been on Lupron a while and Xtandi for 2 years. I believe it has been a miracle chem mix for me, Gleason 9, aggressive disease.

Question, I’m to start Xgeva soon. How has that been for you? Do notice another med on board?

Thanks, John

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greatjohn

Hi John (I like that name)

my dentist is more worried about long term issues with jawbone and teeth...after just two months all I have noticed is occasional (moderately bad) bone pain ....that has not lasted but a few minutes. I suppose that might get more often/more severe with time...but still looking for adjuncts to my standard care...and hoping to drop some of these things. (Hope springs Eternal).

all the best with the "journey"...(as I prefer it to be a journey rather than a battle)

John (aka John Thomas, aka J.T. and aka Johnny)

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greatjohn
greatjohn
in reply to greatjohn

just looked and saw how young you are. This is truly not an "old man's" disease. It seems like the younger one gets it...the worse it is. I was diagnosed at 57. Shot from Gleason 6 to "advanced, aggressive, castrate resistant stage 4" REALLY quickly. Or as I say I seem to be in the "fast lane". Definitely trying(and succeeding right now) to pull into the slow lane! LOL

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Survivor1965

Yes I was 46 Gleason 9, radical Pros with disease in seminal vesicles, nerve bundles, lymph’s. It was hairy. 21 chemos, 8 surgeries, and the nasty shit, ADT.

They told me I would be gone by now. Must be divine intervention me thinks.

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Je1234

I’m so glad to hear this progress. Every time I read updates I think we are another step closer to saving others from this nightmare so many have suffered.

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greatjohn
greatjohn
in reply to Je1234

I've been trying to be honest about good and bad results...on here AND even on Facebook. Figure people should know reality.

All the best,

John

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abmicro

Warning to anybody taking herbal remedies. Dont take any herbal remedies with Zytiga. It is a serious drug conflict that will destroy your liver in 2 weeks.

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greatjohn
greatjohn
in reply to abmicro

I checked with my oncologist and got a "nod(ISH)" of approval...LOL.

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monte1111

Hope the xtandi hangs in there for you. I'm 18 months in, Psa 0.2 Several here 2 and 3 years plus. If cats are a miracle I've got it made. Got those annoying critters running around everywhere.

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j-o-h-n

"Great" Deal.... Keep on Keeping on... Somehow when I viewed your picture "honeydos" came to mind. Coincidentally I have a cat named "Miracle", I found her on the day my ex-wife left me.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 02/24/2019 12:34 PM EST

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Shooter1

Looking great 'greatjohn' been following your posts since day one. Got a great life much different than at start , but well worth living.... No eye brows, but nice white thin hair all over normal head area. Side burns mustache gone. No full beard down on my chest and long thick hair foot long pony tail just a distant memory. Saving on deodorant and shampoo.

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greatjohn
greatjohn
in reply to Shooter1

I miss eyebrows...LOL. May look into tattoos! For now I use (when I think I need them) a mascara like product made for hair roots to color (temporarily) between dye jobs for women. It looks super natural...as I have a few hairs...they are just short and white.....

I figure the "better I look" ....the more my oncologist will try to keep me above ground. It's a theory, anyway.

John

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Crabcrushe

I bought that stuff and started 4 days ago. I had expected -maybe- a little help with sluggishness after a couple of weeks, but yesterday morning, I got a smooth, adrenalin-esque buzz of go-juice...and kept it through supper. No midday slouch. I'm talkin' about the regular dosage; not the x7.

A pleasant realization that it was the BIRM, and I'm (of course) ordering more.

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greatjohn

that is exactly how quickly I FELT MUCH BETTER and people were asking me "what happened?". I'm talking about casual acquaintances at the gym. My energy level and strength were so improved...almost overnight!

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Crabcrushe

I am 100 percent certain there's no placebo effect as per the vitality increase. I definitely feel lighter and hold energy longer due to BIRM. Re: cancer, I won't be testing this strength, but will change to industrial.

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greatjohn

I'm a believer ! ! ! I am Doing the "industrial strength" now and hoping for miracles!

John

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