Abiraterone / Zytiga stopping after 5 years

[nobaday]

Drug no longer working for me after nearly 5 years of good success… I was given 2 years! Not too shabby. Onto Lu177 now.

[Mw921000000]

what’s your next plan of treatment? My Dad’s liver enzymes shot up within two months of Zytiga so we are switching to Xtandi. I read your bio and noticed you haven’t done chemo, my dad refuses until it’s the last possible option. I’m hoping we can remain on hormone treatment for as long as you have

[nobaday]

thanks for the heads up.

[nobaday]

How do I edit my post?

[CAMPSOUPS in reply to nobaday]

Use the "More" button under your post. Click on delete.

Make a new post: "left over abiraterone-zytiga free for anyone who needs it"

[Darryl Partner]

lower right, under your post, click the word “more” for a drop down menu then click “edit”

[nobaday]

yes correct, I thought someone might really appreciate some Zytiga at way reduced cost not realizing no selling allowed on Health Unlocked. All the best.

[Seasid in reply to nobaday]

I agree with the low cost sale rather than free. That is me, my experience.

[nobaday in reply to Seasid]

I can understand the policy. Don’t want everyone and their dog trying to sell drugs on an advice forum. But appreciates your comment.

[Seasid in reply to nobaday]

I understand that.

My problem with Free is different.

If something is 10% of the real price I would consider it is free. But actually it is not free.

I don't want to go deep into this, but If you have to pay some money that would hopefully prevent you to get your hands on some medicine which you don't need.

How can we know who is in real need? If I need something I could pay a 10% price. Free is a nightmare for me. That is my approach. It is like a filter.

Ok, If I know the person and his situation I would give it to free.

Ironically it happened to me yesterday. I gave all my pain medication to my neighbor who has pain.

I don't have any pain now.

[Irun]

I am where you are I think, Abbi for 6 years but last bloods saw psa go from 0.11 to 0.22 in 2 months (could be less of course). MRI scan booked and bloods in 2 weeks. we shall see what happens next. I will follow your journey, hope its a good one for time to come.

[nobaday in reply to Irun]

wow. Nice video. I was born in Hastings England but moved to Canada in 1984. I value QOL and have continued to play football, hike ski and run as I am able. Currently with T9 and neck surgery in the last 2 months, I am currently only able to hobble around the house and go out with a walker. But Lu177 at end of month and recovery from surgeries over the next 6 months and who knows…maybe back to skiing and soccer by Spring!!??

[Ramp7]

Lupron and Zytiga lasted only 18 months for me. PSA doubling time 3 months. Was accepted into LuPSMA177 trial at Dana Farber. After second infusion PSA lowered to .19. Fatigue was the noticeable effect but after a few weeks blood count recovered. I did not have Chemo. Six infusions completed. I too was told that I had 10 years. That was 15 years ago.

[nobaday in reply to Ramp7]

fantastic! . Keep me updated. How many Mets do you have? If the PSMA Mets are zapped it does leave room for non avid PC cells to grow so not yet the ‘magic bullet. But hey that could give us both another 5 years by which time I believe other better RLT eg Ac225, Pb212 etc will be avaiibleto the masses along with new treatments for non PSMA avid tumours. I am very excited and happy with the R and D currently happening along with clinical trials to give us real data we can run with!

[Ramp7 in reply to nobaday]

I had Mets in L4 and 5, along with lymph node mets in groin. Yes to your comment, the Mets to the spine were hit with therapy before starting the trial.

[meowlicious99 in reply to Ramp7]

My father got only 14 months out of that combo. I was really shocked to see such fast progression. Ramp7 did you have any genomic therapy like parp before lu?

[Ramp7 in reply to meowlicious99]

I did have genetic test done. Nothing was conclusive. No genomic therapy.

[SeosamhM]

Great attitude, N! After 4 months of PSA rise, I think I am right behind you this fall…chemo for Christmas. What is the backstory? Did you have PSMA scan and was Lu177 offered up right away, or….? Thanks! - Joe M

[nobaday in reply to SeosamhM]

Getting Lu177 on a randomised clinical trial. Got very lucky! With avid PSMA Mets at C3 and T8 to T12 I believe I am a great candidate for Lu177.

I had a backup plan to go to India to get Lu177 or combo RLT. This would have been expensive/ time consuming but at least an option while RLT expands into North America.

[CAMPSOUPS]

Modern version of dialing for dollars.

[SeosamhM]

Indeed, your case seems to be ideal for Lu177! Continued luck, brother!

[dmt1121]

Well, just keep on moving forward with the next best step. That is all any of us can do.

Good luck to you!

[Mbnm]

abi…pred…lupron stilll working for me after 1.5 years curious where in Canada did you do the Lu 177 treatment ?

Thanks