Mets shrinking

[mrscruffy]

Went in for yearly bone scan. Mets on tail bone was not detectable and those on my spine have noticeably shrunk. I am on Lupron, Zytiga and workout 5 days a week. I have the BRCA2 disorder. While I will never be cured I find this very encouraging. My question is has anyone else had this kind of success and if so how long did it last

[CSHobie]

In April 2020 I started treatment with Eligard, Zytiga and Pred. Did another CT and Bone scan after 6 months of treatment. I also used Fenbendazole.

Initially I had several Lymph nodes involved, as well as dozens in my bones, pelvis, spine, ribs, legs etc.

The 6 months scans showed complete resolution of my lymph nodes. Bone scans showed some improvement in some of my bones, and worsening in my Sternum and ribs.

So, the Dr said, it was about the same. Unfortunately the pain went up by 10x.

mrscruffy, Congratulations, just be glad and enjoy your good days. This beast is not predictable and its unique to each victim, lol.

[dhccpa in reply to CSHobie]

Are you still using fenben? What is your daily and w weekly dosing?

[Shooter1]

My lymph nodes disappeared on scans and bone mets in lower spine and pelvic area cleared within first year. Bones continued to lessen in activity for another year to point where bone scans missed them but CT showed them as scarring. 6 mo ago both scans clear. Psa on possible slow climb (PSA testing stepped up to every month) and new scans to be scheduled for Dec. Now 3 1/2 years and counting.

[Hidden in reply to Shooter1]

Bravo shooter ! 🏋🏽‍♂️👏👏👏

[Hidden]

Yahoo! We take good news to heart . I went from stage #4 t-4 to no visible signs after double adt and imrt . I’ve stayed here over four years now . Still on adt myself . Keep rolling . Keep working out 🏋🏽‍♂️🥳

[Hidden in reply to Hidden]

Good News .

Just started the Lupron - Zytiga war

[j-o-h-n]

Greetings Mr. Scruffy,

Please tell us your bio. Age? Location? Treatment(s)? Treatment center(s)? Scores Psa/Gleason? Medications? Doctor's name(s)? Thank You!!!

All info is voluntary, but it helps us help you and helps us too. If you do respond copy and paste it in your home page for your use and for other members’ reference.

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 11/16/2020 9:47 PM EST

[dhccpa]

I'm on Lupron since 11/2018. Recently had an Aximin Pet scan (August vs. previous one in January) that showed markedly less uptake across the board. RO sounded encouraging. I also take THC, Fennendazole, and a number of supplements. WFPB diet, walk 3 miles 4-5 days a week, moderate strength exercise.

[winkoliu]

Most people take Zytiga everyday. Why did you take it 5 days a week? Was that your doctor recommended?

[mrscruffy]

Sorry for confusion only working out five days a week. All meds every day

[NecessarilySo]

In Dec. 2011 and 2012 I had a sore spot on the very tip of my tailbone, also in my rectum, (coincidentally, same spot as biopsy, three years prior). It coincided with a rise in PSA. which led my RO to conclude MPCA. I went on Lupron and Casodex. I discovered that the sore spot was most noticeable when I sat on a hard seat, and interestingly, it did not happen when I had a high lycopene meal. The two spots vanished after a month of Lupron/Casodex. It never showed on scans. I never knew if it disappeared due to the meds or due to my constant use of lycopenes. I have to attribute it to both., intense lycopene consumption (like every six hours) Since then I have had numerous lymph nodes on my back that have come and gone in similar fashion. They also never showed on scans. One was significant; A rib lesion appeared in 2016 and it is still there today. Scans did not show it then or now. I learned that scans generally do not show mets under 3/8" in diameter or smaller. Also, they probably go away if you treat them early. I have had over a dozen such sore spots come and go. In following years I discovered two other means to "assist" their removal: first, heat; second, refrigerator magnets. Keep in mind that these are not crmpc but apparently the type affected by hormone treatment. So it seems like the cancer is like a three-legged stool in that it survives hormone treatment but the more legs you can cut off, the more likely it is to disappear. Heat kills all cancer cells at 106 degrees F. That is a fact. Lycopenes slow growth of PCA cells, which may be a fact but it depends on frequency. It seems that when they are accompanied with vegetable oils in a particular portion of the lower intestine, they get into the bloodstream and do some work, temporarily. Magnets work but you have to be careful to use the South or negative field side, (which faces North, confusingly), against the lymph node or tumor. for many days, on small tumors. So, with that "arsenal" I am attacking my mets when they get sore (grow) I am currently on Lupron and there are three spots I am working on. I have not taken scans since earlier this year but I can tell by the feel that they are subsiding, not gone, but apparently shrinking.

[MyWifeMyLife in reply to NecessarilySo]

Very Interesting Approach! You obviously have a great biofeedback mechanism to really “know” your body. Good for you man! 👍

[larry_dammit]

Last checkup in July showed mine had decreased in size as well. On Xtandi now for 4 years. Next set of test will be in January hoping for the same. Diagnosed August of 16. Mets in spine ,ribs, hip, and lymph nodes. Good luck warrior 🙏🙏🙏🙏

[leo2634]

I've been on Zytiga, Eligard, for almost three years now. I get my blood work done every four to six weeks PSA 0.1 since first month treatment. I went for my CT scan yesterday and bone scan I'm waiting on results. The last scans six months ago showed no progression and mets stayed the same. I also had Provenge immunotherapy you might want to look into that as an added weapon in your arsenal .Leo

[monte1111]

Extensive bone mets stable now after 3 years 9 months. 8 cycles chemo and then Xtandi for about 3 years 3 months. Chemo "took care" of abdominal lymph nodes. Sounds like you are doing really, really good.