Have you ever been told by your oncologist that there’s nothing he can do for you? Dad psa is 845 and he’s not willing to give up this fight. We are on a search for a new doctor in Florida who is not willing to give up on us. Also, any recommendations?
The fight: Have you ever been told by... - Advanced Prostate...
The fight
Where in fla?
Central Florida , South Florida, Tampa region
Try dattoli.com/
He will treat aggressively.
Beyond standard of care.
Good luck
What stage is he, how much has it spread, how old is he?
Normally Doctors say this kind of thing if the patient is too old and frail and they think the treatments might cause more harm than good.
Certainly worth a second opinion but Doctors normally have a good reason for what they do and say.
He’s 67 stage 4 Gleason 9. Has not spread to any major organs. He’s tried Casodex, Zytiga, Xofigo, Xtandi, Taxotere, Lupron, Jevtana, and 4 rounds of radiation. He walks with a cane because it’s painful without it.
Sounds like your Dad has had lots of relevant treatment. Good job there. My dad was the same age when diagnosed. After his radical prostatectomy & radiation, unfortunately it came back as bone Mets 13 years later. We got 4 more years with him, but sadly he passed at age 85, just this past August. The only thing we didn’t try is chemo d/t his age then (81) and QOL that that would entail. How long has he been battling this beast?
I’m sorry for your lost. What is QOL? He was diagnosed 2.5 years ago but by then it was already in his bones
I wish to offer my sincerest condolences on the passing of your dear Dad. May he rest in peace with the angels.... God Bless to all.....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 10/17/2020 9:13 PM DST
Thank you J-o-h-n, very much. I had been reluctant to post his passing here, I don’t know why.😢 I guess I didn’t want to pass any sad news while so many are fighting. My dad was a trooper, never complained and wasn’t in too terrible of pain. He also used cannabis for the last 3-4 years, which hospice told me helped with his bone Mets pain. He only had the hard pain killers (morphine) on his last 3 days of life, amazingly. Thank you all for the few years of wisdom I got here. I really found this group super helpful and grateful for that .
Moffitt in Tampa is ranked quite high for cancer centers. I remember some members here have recommended doctors there. Put Moffitt in the search window and you’ll probably find those doc rrcomendstions
Thank you so much
Currently, searching right now and will set an appointment
Several here have recommended Dr. Jingsong Zhang. I met once with Dr Jain. Not so impressed.
What is his current diagnosis, and what treatments has he had already? Does he have any significant comorbidities that might preclude some treatments?
He only has Hypertension.
Metastatic prostate cancer stage 4 Gleason 9. It did not hit any major organs. Previous treatments include casodex, zytiga, Xtandi, jevtana, taxotere, xofigo, lupron, and 4 rounds of radiation. He is not obese. Actually lost a lot of weight due to the previous treatments.
No Provenge? Have any of his metastases been biopsied? There are many clinical trials at Sylvester in Miami or Moffitt in Tampa Bay. If he can travel, he can get Lu-177-PSMA in Germany, India or Australia (Xofigo rules him out of US trials). There are also several BiTE or CAR-T trials in the US mentioned at the end of this article:
Tell that so called oncologist to take a long walk on a short pier.... What a crude man.... Take your Dad to see a good oncologist asap. God Speed....
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 10/17/2020 9:16 PM DST
Thank you 💕 That means a lot to hear you say that. I believe when a doctor is unmotivated to step outside of his box or consult another oncologist and just say “palliative care”, it just break my heart. Especially if the patient is not willing to give up.
Please consider for your dad a medical oncologist Mark Robbins Of the Florida cancer institute, in Brandon and Sun city Center. Also for a radiation oncologist Randy Kahn of the Tampa Bay radiation oncology clinic which shares space with the Institute. The Florida Cancer Institute is the largest private cancer institute in the state of Florida. Both Men have Great credentials too extensive to cite here. Neither is the sort of Doctor who gives up on patients.
I am a Gleason 8, 79 years old and have been living with my wife in Lithia since 2016, Formally of Scottsdale, AZ. I should add that I interviewed several physicians at Moffitt including Dr. Zhang and decided to go with Florida Cancer Institute. Dr. Angelo Paola of Riverview is my urologist and I’m very pleased with him. Full disclosure: I spent 30 years in healthcare, half the time in hospital management and half the time in medical software, clinical triage.
Don’t know where you are in Florida? You might look in to Moffitt in Tampa. Don’t think they would give up on you!