Well after 2 months of being on this clinical trial it is safe to say it was a failure for me. My PSA continued to rise throughout (starting at 80 and now at 311). My scans show new bony mets in several places with progression of lymphadenopathy everywhere. My anatomy on the left side of my neck and clavicle is now obviously distorted with enlarging lymph nodes taking over.
Discouraging yes but I think I was expecting it. I’ve felt so unwell over these last 2 months. Was not sure whether it was the treatment side effects or the cancer itself. Hopefully more so the prior. Should be able to know in a month or so I would think.
So I will give it 1 more go with the CarT clinical trial at the City of Hope in Duarte, CA but if that does not slow this disease down I think I will hang up my cancer fighting boxing gloves and focus on embracing what is coming for me. I truly believe it is ok to do this and is not giving up. We all die in the end. We just take different paths on getting there. I am always amazed when I go to the Mayo Clinic to the oncology center and look around. So many sick and very elderly people still getting chemo. I respect their decisions to continue but I can barely do this at 47 years old. I would never want to struggle like this later on in life.
It was my birthday yesterday. I had a nice day and as sleep overtook me last night I wondered how many more birthdays will I have.
Written by
Cleodman
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I wish you better luck with the CAR-T trial. I've met Tanya Dorff at COH and think highly of her. They are also doing some BiTE trials that are promising.
Thank you so much for sharing this, Cleodman. And a belated Happy Birthday. I'm sure that for every word on the page there are thousands of emotions that have been swirling around for the past year or two.
I admire your empathy for the older cancer patients you saw who are still getting difficult treatments. I feel humbled just to be able to read your Post. I wish you continued relative peacefulness and calm acceptance in the months ahead.
This sounds somewhat similar to my condition. There is the Olaparib / Keytruda trial which might be an option for you as well. Thank you for sharing your heart and your courage. I pray you are blessed.
The reality is that few if any of us will benefit from the current regime of test drugs. However, our sacrifice to going on trials is to benefit future generations to come, i.e. our sons, or grandsons among them.
Thus, I encourage all men who can, to go on at least one trial while they are able, one never knows, but at the least, you are moving the goalposts forward to assist others to come!!!!!
Not the best of news, but this is a war and we all have to do our part.
Shit.... you wanna make me cry.... 47 years old (my standard line is that I have dandruff older than you) and it was your birthday. Hey God "give this guy a break".... We need you.... so stick around and fight those tiny bastards. And don't move those goalposts forward, move them backward cause that way it's easier to score a touchdown....God Bless.....
I’m sorry I’ve not been on here lately.. but I want to wish you a Happy Belated Birthday.. I am so humbled by your comments regarding people in their 80’s and 90’s still taking chemo..
but please don’t give up please keep fighting!!
Are you a candidate for the LU 177?
I see your in California have you looked into seeing Dr. Mark Scholz? He’s head of the Prostate Cancer Research Institute I believe he’s affiliated with UCLA..
He worked with Dr. Snuffy Myers ..Just a thought ..
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