Three years since surgery

[estoud]

My PSA three years post surgery is still undetectable. I am staying the course with my regimen and have added fenbendazole and doxycycline.

[SPEEDYX]

Why add anything if what you are taking is working?

[estoud in reply to SPEEDYX]

True, just fear of cancer gaining resistance.

[SPEEDYX in reply to estoud]

My MO always says dont mess with what is working...first thing he says when he sees any change in PSA...did I take anything or do anything different...All the best in what you choose to do!

[Tall_Allen]

That's pretty serious medication to take for no reason.

[estoud in reply to Tall_Allen]

Yes, why change anything if current regimen is not hurting anything.

[Tall_Allen in reply to estoud]

Because you don't know the long-term effects of fenbendazole and doxycycline.

[estoud in reply to Tall_Allen]

True, thanks for the input.

[RonnyBaby]

Be careful about 'toxicity' from some forms of supplementation. Drug interactions should be checked.

If it ain't broke, don't fix it.

To be fair, I take supplements, but I'm not sitting where you are - looking good - congrats !

[pjoshea13]

I understand the advice to not fix what appears to not be broken, but one must consider the 5-year failure rate of RP for a Gleason 4+3. It is wonderful news that you have survived 3 years without biochemical recurrence, but the past does not predict the future. I have known men who were told to not worry because they were cured, and those men did nothing & later discovered that they were not cured. It seems to me that it is prudent to hedge your bets.

I'm not saying that you should be on fenbendazole and doxycycline, necessarily, but I think you are quite correct in being proactive.

Best for the next two - and the five after that (LOL), -Patrick

[estoud in reply to pjoshea13]

Thanks, My thoughts precisely! My pathology after surgery was gleason 4+4 tertiary 5 stage T3a. Considering the poor prognosis of high gleason prostate cancer I am hedging my bets.

[Jimbo59 in reply to estoud]

Am in a similar position and like you hedging my bets. 'only a 3+4' with tertiary 5, established EPE and established extracapsular PNI as well.

5 1/2 years recurrance free😊, but did opt for ART as belt and braces.

Have dipped in and out of a range of supplements as well as med(ish) diet.

Also lots of hard road and mountain biking. I would do this anyway however supposed to be beneficial for recurrance risk reduction.

Fresh turmeric root with Indian long pepper is a favourite added to many dishes along with olive oil.

[Shepard in reply to Jimbo59]

I have been cautioned about consuming Turmeric out of interaction concerns. My game is to stay true to the assigned regimen provided it is adequately proven to me. Supplements may have a place, but I would use them only after discussion with my provider. Some times the seemingly benign substance can be toxic in combination with other elements. We pay the money so trust the science until there is contrary evidence.

[estoud in reply to Jimbo59]

Look at my supplement list under my post "two years since surgery". I also do a lot of exercise on my concept 2 rowing machine. I do two forty five minute sessions daily and I do a 80-100 mile ride on my recumbent bike on the week ends. Congrats on over five years BCR free!

[goldenfoot in reply to estoud]

I am 3+4 also. No surgery, nothing. I have been taking Fenbendazole for over 8 months. After 3 months PSA went from 12 down to 5 and in the last 4 months has risen by .5 per month. I decided to discontinue use for 2 months and see. In your case I sure wouldn't take it.

[goldenfoot in reply to goldenfoot]

Sorry, I see that you were 4+4.

[Hidden in reply to Jimbo59]

I have eaten fresh organic tumeric each day and take a tumeric supplement “Meriva’too.Five years of this . Over four in remission. Will it last forever? Nothing does. It’s all about the living in the present ..

[Hidden in reply to pjoshea13]

Great advice !

[j-o-h-n]

Make sure you're always breathing oxygen....

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 09/01/2020 4:45 PM DST

[monte1111]

My neighbor has some kind of cyclonic leaf blower. EVERY DAY he blows dried cat and dog poop into the air. And who knows what else. I am breathing unknown supplements every day. My car is covered in a layer of fine crap and my solar system is struggling. But I seem to be doing okay. So everyone may want to consider an oil essence diffuser of dried cat and dog poop. Who knows.

[j-o-h-n in reply to monte1111]

Good Tip....Thanks I'm on my way to buy a "cyclonic" leaf blower, a couple of dogs, a few cats, a car, a solar system and a diffuser.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 09/02/2020 6:24 PM DST

[SPEEDYX in reply to j-o-h-n]

You need the reef blower from sponge bob....does it all!!!

[j-o-h-n in reply to SPEEDYX]

Attention change in order:

----------------------------------

Minus 1 "cyclonic" leaf blower.

Plus 1 Sponge Bob the reefer blower (who does it all) .

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 09/02/2020 7:05 PM DST

[monte1111 in reply to j-o-h-n]

Good decision. Try Amazon.

[j-o-h-n in reply to monte1111]

They're all out..... next I'll try Walmarts....(thanks)

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 09/02/2020 8:34PM DST

[SPEEDYX in reply to j-o-h-n]

I check West Marine Store has it!!!

[j-o-h-n in reply to SPEEDYX]

Unfortunately they're under water.........

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 09/02/2020 9:59 PM DST

[SPEEDYX in reply to j-o-h-n]

Covid shut down