Update Latest Scans and Labs for Husband - NeuroPCA.

[softwaremom00]

Hi Folks,

My husband just got another set of scans and Labs. I am thrilled that it is good news. His Chromogranin is the lowest is has been - 55 - well below the high end of normal(95). His PSA is undetectable. The scans are great.. I always have hard time completely understanding the bone scan.. but my husband says that basically they show no disease.

He still struggles with the pain from the neuropathy damage to his feet(neuropathy from Chemo). He has Charcot foot on his one foot.(Had to google it.. the whole time I have been calling it sharko foot). He is still doing the Square One protocol integratively(with drugs) He also takes regular ozone steam sauna's with oxygen. I think that a good sweat contributes to his health. Glad to have the sauna for that since his feet make aerobic exercise tough. He does weight lifting a couple times a week.

His current Medical treatment is Zytiga and Lupron.

I am very happy that he is doing so well. Thank you all for your wonderful support, It has been a great help.

Sending lots of love, prayers and hugs!

Softwaremom

[erjlg3]

WOW!!! JUMPING UP AND DOWN WITH EXCITEMENT MRS. S!!!! I couldn't be more happy at this moment!! You both must feel like you're on a cloud floating Keep it up

That neuropathy is WICKED

Sending continued healing love for both of you 💗

Love,

🌼Jackie

[softwaremom00 in reply to erjlg3]

Thanks! We are very happy!

[Shooter1 in reply to softwaremom00]

Fighting neuropothy in hands and feet which is still slowly improving. Last of 9 chemo treatments ending last Feb. but still on Xtandi which had made me a complete invalid by 4 mo. after chemo. ended. Cut dosage 5 times and ended up at 86 mg /day as a living dosage. PSA bottomed at 0.122 which has held for the last 6 mo. after 0.140 for the 6 mo. before that. Planning on 10 yrs and moving to retirement home in North Idaho the end of June, just 2 yrs late.

[softwaremom00 in reply to Shooter1]

The Neuropathy is not fun.. but I bet North Idaho is lovely! I have only been to Boise. It seemed like a nice town. I hope you enjoy your retirement home!

[Shooter1 in reply to softwaremom00]

North Idaho is so different than Boise. 9 mile drive from Bonner's Ferry to Moyie Springs where my daughter lives is never complete without seeing deer, turkey, elk or moose.

[softwaremom00]

Thank you! And thank you for your wonderful help!

[NPfisherman]

It is pronounced that way--Sharko....it is French named after the MD that studied it...Charcot.. Your news is fabulous... Congratulations... Wishing you the best....

Fish

[softwaremom00 in reply to NPfisherman]

thanks

[pakb]

Wonderful news!!

[Pierreb]

Glad to hear the great news!!!

[softwaremom00 in reply to Pierreb]

Thanks

[j-o-h-n]

Now tell me softwaremom. Hubby and you, are you gonna in the sauna? If you catch my drift....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 04/26/2019 7:06 PM DST

[softwaremom00 in reply to j-o-h-n]

Hubba, Hubba. I never kiss and tell!

[j-o-h-n in reply to softwaremom00]

You're a rare find indeed.....

Happy Eastern Orthodox Easter.

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 04/28/2019 1:11 PM DST

[monte1111]

Great to hear good news. Especially after almost 2 years. I have chemo caused foot neuropathy and had never heard of Charcot Foot. Have been taking Gabapentin which does not seem to help. But almost eliminated hot flashes, so oh well. Hope I can Jump the Shark. Enjoy.

[softwaremom00 in reply to monte1111]

I hope you can jump the shark too.

[Hidden]

Always love to hear good news, thanks for sharing it with us.

[softwaremom00 in reply to Hidden]

Thank you. We are thrilled

[Pierreb]

It’s great to see good news!!! Glad it’s going so well!!! Hope you all are enjoying the weekend.