When my husband was diagnosed in 2007 they did not remove his prostate. He was diagnosed stage iv. Since that time we've gone up and down with concern over tumors increasing as we've fought his psa rise and fall.
We are in one of those periods of rising psa. He's lately had pain that he says feels like his tailbone. He does have a small fracture there. Though he's now having some difficulty with pee stream, with discomfort while peeing and peeing very often. He said recently he's feeling a poking feeling there.
Normally, we have a color doppler done 3 times a year. This increase has only been the last 3 months and can't travel by plane or the 7 hour drive to have it done. It's unfortunate that medical centers only use them for biopsy. I know we can pay, though we'd still have to travel which is something we can't do during this Covid situation.
We are having a pelvic MRI today and a prostate MRI tomorrow as an alternative to the doppler.
My question is this. We were headed into this 6 years ago, but avoided it with Zolodex. Shrunk tumors 50%, we were also doing cannabis suppositories, though we think most of the shrinkage was Zolodex. For certain the cannabis has maintained us for a long while, though. The recommendation was palliative radiation. Understandably, we don't want that. He's had two spot radiations, one helped pain, though L4 2 years later is lit up again, and the second radiation was some improvement.
The Question.. I'm sure there are people here who were diagnosed metastatic, not had their prostate removed and have had to deal with tumors pressing on the urethra or actually posing a threat of breaking through the prostate wall.
I'd like to hear any information on this since we could be headed into this territory and want to be prepared prior to doctor's advice. (Though I respect it, we always try to stay ahead for decision making purposes.)
We have now after 13 great yet tiring years, are gearing up with new energy for diet, supplements, sun, earthing, (he is doing zolodex- the casodex we had to stop since it knocked him on his butt, he was like a zombie)..
And we are doing an out of the box protocol along with this.
We did many things over the years, I could fill pages, though we got tired- and older..
If we had the opportunity originally to have his prostate removed, we would have chosen proton beam. I did call them 6 years ago to see if he needed radiation they would do that thin beam. The answer then was no since they use something else with palliative, which doesn't make sense.. why not use a thin beam to protect tissue.
Also, why don't medical facilities with color dopplers check on their metastatic patients who still have their prostate with tumor size fluctuating. For me, I believe the use of palliative is unfortunate. Are we written off? We certainly pay high insurance rates.
Thanks for any information. We are hoping to pull another rabbit out of the hat..
Damn those rabbits lately have been wanting to stay in that hat.. we need to coax them out.. one MORE time.. to regroup...
Boy, this 'crap'.. as you guys say.. the beast needs a lot more good medical attention on clinical trials on supplements, alternative, less invasive methods, how DIET is crucial and detoxing the body.
genie (please forgive the typos.. i'm exhausted)