What now? Help for Taxman, please! - Advanced Prostate...

Advanced Prostate Cancer

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What now? Help for Taxman, please!

taxman profile image
10 Replies

I have had prostate cancer for 18 years and in the middle of this awful pandemic, I do not want this to be the end of the road. I Have been on Xtandi,Zytiga, Radium shots and have been on Lupron for years. My PSA this month just rose from 45 to 68. I have not had chemo because I have a low

white blood cell count ( though this blood test showed it to be the highest its ever been so it now may be an option. Will be speaking to my ONC this week. I need something that I can do without going to to a hospital or facility because I run more of a risk of dying from Covid than the prostate cancer. I read something about a PARP inhibitor-

particularly OLAPARIB. Does anyone know anything more I can do w/o chemo and going to a facility until this mess is over.

I live in NY and am currently "stuck" in Florida because of the virus. Can someone please help. Any suggestions?

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taxman
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10 Replies
Tall_Allen profile image
Tall_Allen

Olaparib is not likely to work unless you have a BRCA mutation.

pcnrv.blogspot.com/2019/10/...

You can have a germline BRCA test without going to the hospital:

pcnrv.blogspot.com/2018/02/...

noahware profile image
noahware

Transdermal estradiol?

ncbi.nlm.nih.gov/pmc/articl...

scarlino profile image
scarlino

There is a clinical trial in process using olaparib and Keytruda. You need biopsied tissue for the drug manufacturer to verify you have the correct genetic mutation. Have you had a genetic test to determine any mutations?

Tim369 profile image
Tim369

Consider trying Fenbendazole-cant harm you costs very little and you have nothing to lose.

See joe tippens utube Panacur c

podsart profile image
podsart

Who is your Dr in ny?

I also am “stuck” in my florida condo as a snowbird who was here when Covid19 hit

I Live on Long Island where even Cuomo said today he’s troubled by the level and growth Covid19 Long Island

in reply topodsart

Staying in fla is A stoke of luck hopefully .🍀

taxman profile image
taxman in reply topodsart

His name if Daniel Petrylak and he is at Yale- New Haven. But he has an office also in

Greenwich, Ct and people come from all over including NYCity to see him.

taxman profile image
taxman

Taking blood tests tomorrow- hopefully PSA is not out of control. Not sure what Onc

will suggest- but I am weak and having trouble walking and I am concerned about side effects that at this stage will wipe me out. I will be 86 at the end of May and

I would like to give myself more time. Last time I teleconferenced with the doctor

he mentioned Olaparib. Does anyone know what the side effects are besides

lowering white blood cells. Any o

taxman profile image
taxman

I am having blood tests tomorrow and hoping my PSA isnt totally out of control.

ONC suggested last month when we video conferenced that maybe we can consider

Olaparib. I will be 86 in the middle of May. I am weak and am having trouble walking due to spinal surgery 3 years ago from the PC in my bones. So I dont want to

do myself in with medication, but I would like to buy some more time till I return home to NY. Does Olaparib have any serious side effects? Is there any other Med I should ask my doctor about that would buy me some more time? Tim mentioned Fenbendatzone- what is that?

scarlino profile image
scarlino

I have been on chemo a number of times and for more than a year straight. I don’t know how it would affect you but they can prescribe a white blood cell building med for you. I know it is a very personal decision. I wouldn’t dismiss it unless it is impossible for you to take. They can split the chemo doses so they are not as severe. 18 years is a long time, my hat off to you warrior! Keep fighting !

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