In August, my husband was diagnosed with prostate cancer (Gleason 8; PSA 22). In October, he was started on Lupron shots and then bicalutamide. The plan is to have radiation, but it has not yet been started because he had to have two other unrelated surgeries first. One of the surgeries was to remove a large mass from his colon, and they are waiting for that to completely heal before scheduling the radiation.
Since August, he has not had a PSA check. This seems strange to me, as I thought they would want to monitor that, at least occasionally, just to make sure nothing unexpected is happening.
His urologist has been totally uninterested in his case since they made the decision not to have surgery, and the radiation people only care about radiation, so I feel like no one is looking at the overall picture. He had to ask the urologist for Lupron and bicalutamide.
Is it usual not to check PSA during treatment? Would it make a difference that we are having to wait over 7 months for radiation?
What will you do differently if his PSA is high or if it is undetectable?
Light a fire under the radiologists to get things moving faster. And perhaps feel a bit less nervous about what might or might not be happening (that's for me).
Then that's what you should tell the doctor. Doctor's don't want to provide tests unless there is an treatment decision to be made.
Really, all I want to know is if it is normal not to check PSA during hormone treatment or not. As I said, I don't think the urologist is paying any attention, and probably has not realized that radiation has not been started. I want to know what is normal and expected, and if the long delay makes any difference.
At his last Lupron shot, the nurse asked if he'd had his PSA checked recently. This makes me think she expected that it should have been.
Tell Him or Her to take his PSA.... Tell Him or Her.... you use those numbers to play the lotto..... and then Battle the sucker like there's a Mountain sitting on top of him/her.
The reason they wear white coats is so the blood will show once you punch them in the face.... what turds...........
Good Luck, Good Health and Good Humor.
j-o-h-n Sunday 03/15/2020 11:14 PM DST
I started with 1-month Firmagon shots at my Urologist office prior to my IGRT. I did 4-months worth and we did a blood test including PSA every month. It didn't change my treatment plan but it was comforting to see my PSA steadily going down prior to the RT. Plus it gave me a baseline of where I was before RT.
If it was still going up TA, wouldn’t adding Zytega now make sense ?
This is just neoadjuvant use before primary radiation. It's not unreasonable to stretch it out for healing from his unrelated surgeries. If the OP is anxious, she should get a PSA check to relieve her anxiety, but there is really no reason to do so.