Hi guys! My husband is very advanced stage IV, however until recently has been super healthy and able to do most anything he did before. We are 4.5 years in since diagnosed.
He has failed all the options except for chemo which he is so far refusing. He is now unmedicated except for Lupron and the cancer is moving fast! His PSA went up to 81, he then received radiation to his spine and it came down to 46. One month later we are back up to 58.
We have travelled to Germany for LU177, but only received one treatment which was minimally successful for a short period of time. We have also travelled to Sloan Kettering and Cornell in NY and Tulane in New Orleans. Neither MD Anderson nor Johns Hopkins has anything reasonable for him to try either. He is currently treated at Mayo,
He has been chosen to participate in a new Act225 and LU177 combo study that will be starting within a couple of months (supposedly).
We have been told less than 12 months a couple of months ago if he does nothing.
His doctors have all told him to start Docetaxel right away, at least to buy him time until the study begins. He is adamantly against chemo and believes he will get sick until he dies. Period,
He is in excruciating pain now but as far as we can tell still only has Mets to bones.
Do any of you have success stories or anything positive that I could show him about the chemo? If he doesn’t do it, at least until the trial begins, I’m afraid we won’t have much time left.
Thanking you in advance. Could really use your help convincing him to do the chemo,