Suggestions : Please suggest. We are... - Advanced Prostate...

Advanced Prostate Cancer

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Suggestions

Ayra1 profile image
22 Replies

Please suggest. We are living in India. If my dad turns castrate resistant can we come to USA for further treatment. My brother is in California on HiB. Only concern is the huge cost as we are not medically insured. In India zytiga/ Xantdi and taxotere will be there but don’t see expertise and other advanced drugs for same

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Ayra1 profile image
Ayra1
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22 Replies
LearnAll profile image
LearnAll

Why Not ? If you have financial resources to pay the bills . There is no free ride in USA.

My information is that they have most of the modern treatments in India such as Immuno-therapy, Radium223, Lutecium, proton beam, all types of Radiation ,Chemos and so on.

Check with Max super speciality hospital in Gurugram, Tata Memorial Hospital in Mumbai or Apollo Hospital ., Delhi and the govt hospital, All India Institute of Medical Sciences, Delhi.

Ayra1 profile image
Ayra1 in reply to LearnAll

Thank you

Tall_Allen profile image
Tall_Allen

From posts on here from Indians, India seems to have everything the US has and more. People from the US fly to India for medical tourism.

Ayra1 profile image
Ayra1 in reply to Tall_Allen

Thank you

tango65 profile image
tango65

One has to be very rich to afford cancer care in the USA without medical insurance. I had a PET/CT at UCLA and by mistake they charged me as a regular patient instead of a patients in a clinical study. with a set price of $2,800. The bill from UCLA was $ 17,000.00.

Kodamolagai profile image
Kodamolagai in reply to tango65

India has very affordable treatment options .Cost is one tenth ofUS .Well qualified medical team and excellent hospitals in major cities

Ayra1 profile image
Ayra1 in reply to tango65

Thank you

LearnAll profile image
LearnAll in reply to tango65

I am getting price quotes for Ga68 PET CT from India ...Quotes range from $200 to $400 from Private hospitals in Delhi and Mumbai. Preparing for upcoming visit this year.

My US insurance refuses to cover the cost .

KSK54 profile image
KSK54

You may like to share contact details with me. I live in Gurugram, am a PC patient and had RRP in USA ten years back.

Ayra1 profile image
Ayra1 in reply to KSK54

Hi . I am Aggarwal S. My contact details Shipra.mamc@gmail.com. How can I reach out to u

Danielgreer profile image
Danielgreer

Hi Ayra1, if you are looking for a cancer center in CA and can afford it City of Hope is excellent, although there are other excellent centers here too.

Ayra1 profile image
Ayra1 in reply to Danielgreer

Thank you

Shanti1 profile image
Shanti1

We were actually investigating Lu-177 in India, we were considering Bangalore. You can get Lu-177 and actinium treatment earlier than you can in the US. Other advanced treatments appear to be available as well.

Ayra1 profile image
Ayra1 in reply to Shanti1

Where exactly in Bangalore

Shanti1 profile image
Shanti1 in reply to Ayra1

Hi, we were looking at Heath Care Global Cancer Center (hcgoncology.com/). I think their Banglore branch. I believe this is the address: Kalinga Rao Rd, Sampangi Rama Nagara, Sampangi Rama Nagar, Bengaluru, Karnataka 560002, India.

Shanti1 profile image
Shanti1 in reply to Shanti1

Clarification- we were looking at their Bangalore branch as they have several throughout the country.

LearnAll profile image
LearnAll

Friends...I just booked Gallium 68 PSMA scan in House Of Diagnostics, Delhi India .

Total charge will be exactly $200 (two hundred ) Seems reasonable to me.

Parscore profile image
Parscore in reply to LearnAll

Sorry for this question, but what are the benefits of a Gallium 68 PSMA scan and should all get this done?

LearnAll profile image
LearnAll in reply to Parscore

Ga68 PSMA scan is the most sensitive scan ....I have been reluctant to get it because it shows lot of false positive lesions...means the lesions which are NOT cancer tends to also appear as cancer. This can make people afraid and sometimes they end up getting unnecessary toxic treatment trying to chase that tiny lesion supposed to be cancer. I have booked it but I will be very careful interpreting the results.

Ga68 DOTATATE PSMA scan is excellent in picking up Neuro Endocrine Cells . But that also has similar problem. Because NE cells are scattered in human body even in normal people..which ones are truly cancerous ..which ones are harmless..that distinction is NOT possible. Too sensitive scans are like double edged sword...false positives lead to wrong conclusions.

Life5 profile image
Life5 in reply to LearnAll

Does this mean that my dad who was dx as being metastatic via PSMA Pet Scan with mets to 5 distant lymph nodes (enlarged bilateral external iliac, internal iliac, common iliac, paraaortic and interaortocaval lymph nodes) and only 1 bone met on pubic bone may not actually be metastatic ? Could all of them be false positive lesions? What is the alternative?

Also i thought it was the opposite - i remember reading somewhere only cells which are PSMA avid will be detected via this scan which always had me thinking if he has more mets from non psma avid cells... which of these two alternatives would be good?

LearnAll profile image
LearnAll in reply to Life5

Firstly, in 95% of men, cancer cells are PSMA avid...atleast in beginning years of treatment.

PSMA scan is super sensitive...it detects lesions as small as 0.2 mm. The important issue is what do you do even if you know there are two leasions on pelvic bone which are 0.1 mm and 0.2 mm size ? In most cases, there is no change in treatment.

I am doing PSMA scan out of curiosity and will be careful not to take tiny lesions /unclear lesions seriously.

I read that if PSMA PET/CT is performed along with an MRI , and both these scans are read together, one is likely to get a more accurate picture because PSMA PET CT reads metabolic side and MRI reads structural side.

Fuzzman77 profile image
Fuzzman77

Look up APAC Biotech in Gurgoan. I received their vaccines 3 years ago next month and they resolved appx 30 tumors in 2 months including many in my bones. APCEDEN is the name of the vaccines and they are offered at Medanta through Dr. Ashok Vaid, Apollo in Delhi, and Ruby Hall in Pune outside Mumbai among others. I was stable for over two years with just the primary and finally had it removed in September last year. PSA currently .03 after dx’d in August 2014 with PSA of 212, Gleason 9. Plenty of good options in India.

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