Brief synopsis of the latest on me. I had a partial cryo-procedure about eight years ago. With 60% of a remaining prostate, my PSA remained stable at about four for approximately five years. When PSA started going up, I did an MRI on my prostate and they found nothing. So about three years ago I did a C 11 Acetate test in Phoenix and they found three small mets. Two on my pelvis and one on the ribs. My oncologist, Dr. Scholz, wanted to hit it hard an early so I did four sessions of chemo, Zytiga, Lupron, SBRT radiation on the three mets, metformin, simivastin and for good measure I added Zometa and Celebrex (which together was proven to reduce deaths by over 20%). I also lost weight , worked out hard with weights and ate healthier albeit not perfect. I stopped all meds except the metformin, zometa and celebrex for a “vacation” about a year ago with a PSA of .02 that had been consistent for about six months. I did a PSMA test at that time to have a baseline for future imaging because with 60% of a prostate my psa would go up with or without PC progression and I needed a way to know when to end the “vacation”. My PSA over the last year since my vacation began has increased from .02 to the most recent 1.7. I did another PSMA test yesterday at ucla (ughh another $2700) and just got the results. 100% no change from a year ago and no sign of any lesions. 😁. So the plan is to continue with the metformin, zometa and Celebrex only and do another psma test in 3-6 months depending upon my psa progression. I’m hoping it peaks soon at 3ish and stays there. One question. does anyone think I should also do imaging for non psma avid cancer cells with FDG and or Axumin? Radiolgist at ucla says highly unlikely at my stage to have non psma avid cells. But I’m not so sure.
Finally I’m reluctant to post my good news here because so many others are not faring as well and that breaks my heart . But I wanted to make the point to hit it hard and early as my MO did. I see a lot of people here considering waiting and thinking waiting will reduce the time to castrate resistance. I do not believe that to be the case and most of the big recent studies are proof of that.
Schwah